hello from newbie

[Guest guest]

1) Name:

2) Location: Cortez, Colorado, USA

3) Personal Info: have lupus, sjogrens, ?fibro, & all that fun stuff that goes with. Aisha is an old friend. I used to be in chronic chatter, and recognize some of you- so glad to see you around! I have 5 kids, and now 4 grandchildren- and plead insanity. I used to be a nurse, havent been able to work for about 1 1/2yrs now. Some days I can still remember things, but please dont count on it. I love critters, of just about any kind with 4 legs or less, and we have had just about every pet we can get away with in a residential area.

4) Interests: See above & crafts, used to sew a lot, but the hands dont let me do much, still trying to do some stained glass once in a while. Love to read, easy stuff now, like magazines. Love to go camping & fishing altho its been a while. LOVE to "work" in the yard, mostly stand there with the hose.

5) Email: son <paulsons5@...>

6) ICQ-74248454, messenger-paulsons5

7) Webpage: I can barely do email

8) Birthday: October 19th, Libra - age is not important? Yeah!

[Guest guest]

Hi ...

Welcome to the group!! :-)

I'm just trying to catch up on email...I got sooo far behind it's pitiful!!

lol

Hope all is well in your world today...I'm sorry that you have a need

to join us, but am so glad that you have!!

*hugs*

Aisha Elderwyn wrote:

1) Name: 2) Location: Cortez,

Colorado, USA3) Personal Info: have lupus, sjogrens, ?fibro, & all

that fun stuff that goes with. Aisha is an old friend. I used to be in

chronic chatter, and recognize some of you- so glad to see you around!

I have 5 kids, and now 4 grandchildren- and plead insanity. I used to be

a nurse, havent been able to work for about 1 1/2yrs now. Some days I can

still remember things, but please dont count on it. I love critters, of

just about any kind with 4 legs or less, and we have had just about every

pet we can get away with in a residential area.4) Interests: See above

& crafts, used to sew a lot, but the hands dont let me do much, still

trying to do some stained glass once in a while. Love to read, easy stuff

now, like magazines. Love to go camping & fishing altho its been a

while. LOVE to "work" in the yard, mostly stand there with the hose.5)

Email: son <paulsons5@...>6)

ICQ-74248454, messenger-paulsons57) Webpage: I can barely do

email8) Birthday: October 19th, Libra - age is not important? Yeah!

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[Guest guest]

In a message dated 5/26/2003 5:39:41 PM Central Daylight Time,

moosedoctor@... writes:

> Since my status is very iffy now, I doubt I'll say much around here.

> I really don't want to waste everyones' time with my ramblings, only

> to go off to USC or Boise and have the DS. But I didn't want to lurk

> around without introducing myself.

>

> So, hi, and all that.

> n

>

n,

So Sorry about the tricare mess....Maybe they will see the light

soon. Yeah Dr. K is great...As one who traveled from Alabama to use him. He gave

me hopes for a revision when few were offering any hope.

We have some folks who left to go to other docs due to insurance

messes or other reasons. Glad to see you posting. Don't be a stranger.

in Bama

http://hometown.aol.com/mdl1031/myhomepage/profile.html

Surgery- RNY to DS revision on12/6 -377.5

12/17 - 346.5 ( minus 31lbs)

01/15- 338.1 (minus 39.1lbs)

02/12-330.0 (minus 47.5 lbs)

04/06- 324.3 (minus 53.2 lbs)

05/02- 311 (minus 66.5 lbs)

05/12- 304.8 (minus 72.7 lbs)-BMI now 48

[Guest guest]

Hi n and welcome!

Don't give up easily, please. Many of us had insurance fights, and I do know

that locally our doctors refused to take BC, then after negotiations,

reinstated them, so there is always hope! I wish you the best success, first in

getting insurance issues out of the way, then with getting the best DS doctor --

Dr. K!

Hugs and blessings, Ann

[Guest guest]

n:

Thanks for the intro...feel free to lurk or post....we do have a few

here who have used other doctors. I want to wish you the best in

your pursuit of the DS however your able to get it.

Jo

[Guest guest]

Hello Amy, Hang in there! My 5 year old was just diagnosed with OCD, but he

has been showing signs since 3 also. You are lucky you are getting him help

now. I had taken him to several therapists before this and they kept

telling me he was behaving this way because of his separation anxiety. Though

that

is partly true, I now realize that a lot of what he was doing was OCD. 2

nutritionists told me about a natural substance called 5HTP you can get in a

Vitamin store. 25mg twice a day is a good dose for my son. Works well with

OCD. Maybe you can check it out. Good Luck to your family, Jodi

[Guest guest]

Hi Amy and welcome to the board! My daughter now 11, had an abrupt onset of

severe OCD at 4 years old. Unlike your son, she did not exhibit anxiety

etc. problems until onset, though.

I strongly suggest you learn all you can about Cognitive Behavior Therapy

with Exposure and Response Prevention, the first-line suggested treatment

for children with OCD and the only type of therapy proved to reduce and

eliminate OCD symptoms. Does your child psychologist know about this

therapy, is he doing it with your son? If not, you'll want to find one who

does.

Your boy is very lucky to be identified and treated so young. Children who

are, tend to have the best outcomes. It *is* a long road you are right, but

by crafting an " ERP lifestyle " now, you can minimize the disorder's effect

on your son's development and avoid falling into the enabling behaviors that

allow OCD to thrive.

Again, welcome, and good luck to you and your son,

Kathy R. in Indiana

p.s. What books has the doctor suggested to you?

----- Original Message -----

From: " totobean2002 " <mikeandamy@...>

> My name is Amy and my 3 year old son Warren has just been diagnosed

> with OCD traits. I could see him heading down this road for some time

> now which is why I had him checked so young. My husband and I are

> trying to walk the fine line between letting him have control of his

> surroundings but still maintain the parent role. The child psychologist

> has given me a list of books to read to learn the tools to make our

> daily lives run a bit smoother. Books are great but tried strategies

> from other parents can be just as, if not more effective.I can't help

> but feel we have a long road ahead.

>

> Looking forward to hearing from you,

>

> Amy

[Guest guest]

hello everyone,

so glad I found this group.

My old GP done blood tests, TSH 4.85 and he said there was nothing wrong with

that and my symptoms were depression and threw me some anti-depressants.

I changed GP's after this and my new one has referred me immediately to a

Endocrinologist who I see at the end of May. My new GP thought maybe CFS but

seeing the specialist who might just help me.

My symptoms are cold feet, depression, weight gain, 'itchy' hair, appetite all

over the place, insomnia, exhaustion, lack of interest, total lack of libido and

plenty more.

I am welcome to any hints and tips about helpful diets or anything at all.

thank you all in advance, Gordie

[Guest guest]

thank you Sheila for all that information !

I cannot believe how many of the symptoms I ticked ! I have been so anxious

for the past 8 months now and if it is down to thyroid I will be furious !

The GP threw anti-depressants at me and Valium. The valium made me feel like a

zombie so I stopped that but the exhaustion and depression remain. The

anti-depressants did absolutely nothing at all so the GP finally stopped them

too but did nothing else.

As I said before the new GP seems more interested but will not give me more

blood tests as only my TSH was done last time along with something the old GP

called my inflammatory indicators? I cannot get him to understand that TSH 4.85

is too high and with my fathers thyroid issues, he went hyper and then hypo, he

will still not budge but wants me to wait and see the specialist.

The thought of another 6 weeks like this is unbearable when maybe, just maybe, a

small tablet each day would make the difference.

I am tempted to get something online to see if anything can help me feel better

but I don't know where to start as I don't want to take something that may make

me worse !

thank you again for all your great advice.

Gordie

[Guest guest]

Hi Gordi

You need to write a letter to your GP and send a copy to the

Head of Practice. In that letter tell the GP you are no longer satisfied to be

told there is nothing wrong with you that antidepressants won't work out - this

is not the case and you will now do whatever you can to find out the cause of

all your symptoms and signs.

First, list ALL of y our symptoms and signs (check these out on

our web site www.tpa-uk.org.uk under

'Hypothyroidism). It matters not how long the list is, mention each one and be

sure to add all the 'signs' - as these are things your GP should see if only

you were given a proper clinical examination.

Next, list all the members of y our family who have a thyroid or

autoimmune condition.

Next, take your basal temperature for 4/5 mornings before you

get out of bed or have anything to drink. Normal temperature is 98.6 degrees F

(37.0degrees C). If your temperature is less than 97.8 F or 36.5 C - this is an

indication your metabolism is running too slowly and the cause is most likely

hypothyroidism.

Next, list the full thyroid function tests you need done i.e.

TSH, free T4, free T3 and TPO and TgAb to see if you have thyroid antibodies.

Next tell your GP that you also need the following vitamin and

minerals checked to see whether any of these are low in the reference range -

if they are, any thyroid hormone being secreted by the thyroid gland (or

thyroid hormone replacement you might be taking) cannot be fully utilised at

cellular level. These are ferritin, vitamin B12, vitamin D3, magnesium, folate,

copper and zinc. In case your GP tries to tell you that there is absolutely no

connection between these and low thyroid, show him the links to just some of

the scientific research papers:

Low iron/ferritin: Iron deficiency is shown to

significantly reduce T4 to T3 conversion, increase reverse T3 levels, and block

the thermogenic (metabolism boosting) properties of thyroid hormone (1-4).

Thus, iron deficiency, as indicated by an iron saturation below 25 or a

ferritin below 70, will result in diminished intracellular T3 levels.

Additionally, T4 should not be considered adequate thyroid replacement if iron

deficiency is present (1-4)).

1.

Dillman E, Gale C, Green W, et al.

Hypothermia in iron deficiency due to altered triiodithyroidine metabolism.

Regulatory, Integrative and Comparative Physiology 1980;239(5):377-R381.

2.

SM, PE, Lukaski HC. In

vitro hepatic thyroid hormone deiodination in iron-deficient rats: effect of dietary

fat. Life Sci 1993;53(8):603-9.

3.

Zimmermann MB, Köhrle J. The Impact of

Iron and Selenium Deficiencies on Iodine and Thyroid Metabolism: Biochemistry

and Relevance to Public Health. Thyroid 2002;12(10): 867-78.

4.

Beard J, tobin B, Green W. Evidence for

Thyroid Hormone Deficiency in Iron-Deficient Anemic Rats. J. Nutr.

1989;119:772-778.

Low

vitamin B12: http://www.ncbi.nlm.nih.gov/pubmed/18655403

Low

vitamin D3: http://www.eje-online.org/cgi/content/abstract/113/3/329

and http://www.goodhormonehealth.com/VitaminD.pdf

Low

magnesium: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC292768/pdf/jcinvest00264-0105.pdf

Low

folate: http://www.clinchem.org/cgi/content/full/47/9/1738

and http://www.liebertonline.com/doi/abs/10.1089/thy.1999.9.1163

Low 

copper/zinc:http://www.istanbul.edu.tr/ffdbiyo/current4/07%20Iham%20AM%C4%B0R.pdf

and http://articles.webraydian.com/article1648-Role_of_Zinc_and_Copper_in_Effective_Thyroid_Function.html

In

your letter, ask that when the results have been received from the laboratory,

please would your GP send you a copy, together with the reference range for

each of the tests done, and then we, on the forum, can help with their

interpretation. NEVER allow a doctor to tell you your results are normal,

because they will tell you that wherever they appear in the reference range. We

need to know whether they are at the bottom, the middle or the top of the range.

Next,

ask for a referral to an endocrinologist of your choice. You do not have to go

to the endo. recommended by your GP. We have found that the majority of endocrinologists

have their speciality in diabetes and know little to nothing about the thyroid.

Ask me separately for my doctors list of those recommended by our members.

Last,

ask for your letter of requests to be placed into your medical notes and see

what happens. Doctors listen to the 'written word' more than they do to your

voice - but keep a copy of the letter yourself in case you need to refer to it

later.

Good

luck

Luv

- Sheila

thank you Sheila for all that information !

I cannot believe how many of the symptoms I ticked ! I have been so anxious for

the past 8 months now and if it is down to thyroid I will be furious !

The GP threw anti-depressants at me and Valium. The valium made me feel like a

zombie so I stopped that but the exhaustion and depression remain. The

anti-depressants did absolutely nothing at all so the GP finally stopped them

too but did nothing else.

As I said before the new GP seems more interested but will not give me more

blood tests as only my TSH was done last time along with something the old GP

called my inflammatory indicators? I cannot get him to understand that TSH 4.85

is too high and with my fathers thyroid issues, he went hyper and then hypo, he

will still not budge but wants me to wait and see the specialist.

The thought of another 6 weeks like this is unbearable when maybe, just maybe,

a small tablet each day would make the difference.

I am tempted to get something online to see if anything can help me feel better

but I don't know where to start as I don't want to take something that may make

me worse !

thank you again for all your great advice.

Gordie