Re: Long Island CMLers?

[Guest guest]

Hi

I live in Greenwich Connecticut, not that far away

really. Always happy to make contact with another

CMLer.

--- doveh12 <deh12@...> wrote:

> Hi, everyone. I would appreciate hearing from any

> other CMLers who

> live on Long Island (NY). Thanks. Warm regards.

> (Dov)

>

>

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[Guest guest]

Hi, . I grew up in Bridgeport, where my folks still live.

Did you grow up in CT? Warm regards. (Dov)

>

> > Hi, everyone. I would appreciate hearing from any

> > other CMLers who

> > live on Long Island (NY). Thanks. Warm regards.

> > (Dov)

> >

> >

>

>

>

>

>

_____________________________________________________________________

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> Cheap talk?

> Check out Messenger's low PC-to-Phone call rates.

> http://voice.

>

[Guest guest]

Hey :

I live in Atlanta but have been spending half my week up in NY working. I

will be curtailing this soon. I was told it is time to transplant. I am no

longer able to take Gleevec, I am resistant. My transplant Dr. recommended I

get a second opinion and I am thinking about getting it in the NY area. Who do

you see and what facility do you recomend to have a second opinion done? I am

waiting on a test that was done to see the viability of taking Sprycel to bridge

the time until the transplant. I will get those results on Dec. 1st. If I am

one of the few that won't be able to get results from the Sprycel then I guess I

will get on the move to get the transplant. I have a window of time to work

with but I was told not to wait too long, my window could very well close.

Thanks

Therese Stone

doveh12 <deh12@...> wrote:

Hi, everyone. I would appreciate hearing from any other CMLers who

live on Long Island (NY). Thanks. Warm regards. (Dov)

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[Guest guest]

At 01:35 PM 11/27/06 -0800, you wrote:

>I am waiting on a test that was done to see the viability of taking

>Sprycel to bridge the time until the transplant. I will get those results

>on Dec. 1st. If I am one of the few that won't be able to get results from

>the Sprycel then I guess I will get on the move to get the transplant. I

>have a window of time to work with but I was told not to wait too long, my

>window could very well close. Thanks

>

>Therese Stone

Hi Therese,

Maybe you are having mutation testing done?

Srycel takes care of most known mutations except T-315I. I see Dr.

Druker....he recently told me that he preferred Sprycel over AMN107 (which

is still only available in trials) if someone is resistant to Gleevec or

has a mutation. Many people have done very well on Sprycel when they

relapseed on Gleevec. I hope you have options to consider and choose from.

C.

[Guest guest]

Hi, Therese. My doctor is Harry Staszewski, at Winthrop-University

Hospital in Mineola (Long Island). He's an excellent onc/hem and

I'd recommend him highly. I don't have a relationship with any of

the CML " luminaries " (Druker et al.), which might be what you need

in your situation. Others could probably advise you better than I

could. I wish you all the luck. Warmest regards. (Dov)

> Hi, everyone. I would appreciate hearing from any other

CMLers who

> live on Long Island (NY). Thanks. Warm regards. (Dov)

>

>

>

>

>

>

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