Re: One more thing to add about the teleconference...

[Guest guest]

Hi Lynn,

I did hear him say that but I'm not holding my breath. I'll believe

it when I see it.

Maybe I'm just cynical but I don't see why Novartis would have this

test routinely available. Imagine all the people who are on 800mg,

if they had their serum levels tested and found that they didn't

need the double dose. Imagine all the money Novartis would lose. I

just can't see them opening themselves up to a loss of profits by

offering this test as much as I would LOVE to see it. I hope I'm

wrong.

Tracey

>

> Hi all,

>

> The one thing that I was happy to hear came from Dr. Druker at the

end

> of the conference.

>

> He mentioned that Novartis is going to kick off a new program,

next

> year, regarding serum level testing.

>

> I'm very interested in having my levels checked. They said that

due

> to different metabolisms, the drug may be stronger in some people

more

> than others. (I think my metabolism has really slowed down after

> diagnosis at 41), and deal with many side effects on 400 mg.. I'd

love

> to see where I fall.

>

> Did anyone else hear this information too?

>

> Thanks, Lynn

> Dx: 12/03

>

[Guest guest]

Hi Tracey,

I agree with you. I feel that this test is long overdue for

CML'ers. I could care less about profits! If they had our " best

interest " in mind, they should gladly approve of any CML patient to

have this test performed.

There are so many drugs, like ones for epilepsy, that are routinely

screened for serum level, to make sure that they are in therapeutic

range and having low toxicity. Of course the drug companies may

take a " loss " if the patient has to lower a dose or switch to

something else, but it's taking care of the patient's needs that

matters. I think it's the right thing to do, and should have

happened long ago.

If anyone regularly see's Dr. Druker, would they mind asking him

more about this to share with our group.

Thanks, Lynn

> >

> > Hi all,

> >

> > The one thing that I was happy to hear came from Dr. Druker at

the

> end

> > of the conference.

> >

> > He mentioned that Novartis is going to kick off a new program,

> next

> > year, regarding serum level testing.

> >

> > I'm very interested in having my levels checked. They said

that

> due

> > to different metabolisms, the drug may be stronger in some

people

> more

> > than others. (I think my metabolism has really slowed down after

> > diagnosis at 41), and deal with many side effects on 400 mg..

I'd

> love

> > to see where I fall.

> >

> > Did anyone else hear this information too?

> >

> > Thanks, Lynn

> > Dx: 12/03

> >

>

[Guest guest]

Hi Lynn. I am experienced the same problem as my metabolism has slowed down big

time. I walk every day (if weather allowed) 3 miles and some time 5 miles. I

watch my calories and still can not loose weight. I am interest to find out

more about what Novartis testing results,

T

dxd 1/03-400 mg

CCR7/03

[ ] One more thing to add about the teleconference...

Hi all,

The one thing that I was happy to hear came from Dr. Druker at the end

of the conference.

He mentioned that Novartis is going to kick off a new program, next

year, regarding serum level testing.

I'm very interested in having my levels checked. They said that due

to different metabolisms, the drug may be stronger in some people more

than others. (I think my metabolism has really slowed down after

diagnosis at 41), and deal with many side effects on 400 mg.. I'd love

to see where I fall.

Did anyone else hear this information too?

Thanks, Lynn

Dx: 12/03