Guest guest Posted October 30, 2006 Report Posted October 30, 2006 Thanks so much Zavie! My husband has a fantastic GP - and now has a new Hematologist who is dealing with the CML care though we do not feel she has enough experience to do his care. She has only had 3 CML patients and none with 3 chromosomes involved or a deletion ( to be frank I do not know what this means but from what we were told it just means a poorer prognosis and the disease could get worse faster) We live in Vancouver, BC Canada. We have an excellent Cancer Care Clinic but we were referred to this hematologist. Can we ask our GP for a new referral and how does this work? Thank you so much for all the help...I really appreciate the encouragement and help...it is invaluable. I picked up his Gleevec from pharmacy hospital today- weird but it was sad..I guess life won't be the same was all I was thinking. People here may understand this...thanks a lot! Shalyn Quote
Guest guest Posted October 31, 2006 Report Posted October 31, 2006 Hi Shalyn, If you are in Vancouver, I would suggest Dr. Shepherd. He was running the STI571 (Gleevec) trials back in 2001. I don't know how the BC health care works, but it should be easy to see him. Zavie Zavie (age 68) 67 Shoreham Avenue Ottawa, Canada, dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club PCRU 5/02 at RVH 2.8 log reduction Sep/05 3.0 log reduction Jan/06 e-mail: zmiller@... Tel: 613-726-1117 Fax: 309-296-0807 Cell: 613-202-0204 ID: zaviem RE: [ ] Zavie-Gleevec time Thanks so much Zavie! My husband has a fantastic GP - and now has a new Hematologist who is dealing with the CML care though we do not feel she has enough experience to do his care. She has only had 3 CML patients and none with 3 chromosomes involved or a deletion ( to be frank I do not know what this means but from what we were told it just means a poorer prognosis and the disease could get worse faster) We live in Vancouver, BC Canada. We have an excellent Cancer Care Clinic but we were referred to this hematologist. Can we ask our GP for a new referral and how does this work? Thank you so much for all the help...I really appreciate the encouragement and help...it is invaluable. I picked up his Gleevec from pharmacy hospital today- weird but it was sad..I guess life won't be the same was all I was thinking. People here may understand this...thanks a lot! Shalyn Quote
Guest guest Posted October 31, 2006 Report Posted October 31, 2006 Zavie: I see people (including you) report about log reductions. What exactly are those? It is good to know that you have been on Gleevec since 2001 and have not fallen off yet. It gives me, and I am sure others, hope. I have heard that approximately 2% of patients fall of Gleevec per year. Thanks in advance for answering my question. With warm regards, Matt Maynor ville, FL Gleevec Since May 2005 mtmaynor@... Quote
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