bms side effects and interferon

[Guest guest]

Hi

I also have been on (and off) BMS since March 06.

My PCR is very low - 0.002%. I have had 3 breaks for varying side

effects.

I am having to take a diuretic. The side effects seem to come one after

another. No sooner than I get one under control than another appears.

Currently I am having terrible problems with inflammation in my feet. My

feet hurt when I get out of bed in the morning and this got worse so

that everytime I started to walk they were painful. This has got worse,

it improved with steroids and also got better when I was off the BMS. I

have seen an orthopaedic doctor but he found nothing significant.. Has

anyone had a similar problem?. I am currently taking anti-inflamatories

and pain killers to try and blitz the pain.

I had numerous side effects with glivec.

Interestingly enough my consultant ( here in London ) was also talking

about my trying interferon. Apparently if you can tolerate it it works

very well at controlling the leukaemia if it is at very low levels. I

think I got this right!

It is so difficult with subjective symptoms and more so when the drugs

work so well for me.

I would be interested in hearing what others think.

Regards

Leigh

Home Number: 0208-621-1664

Mobile: 07956 269 368

PLEASE NOTE MY NEW E-MAIL ADDRESS

Re: [ ] 9 months

Hi Susie, hi everyone,

Like Susie I am in the BMS Trial (Dasatinib) and am responding 100% to

this Drug.

Gleevec was not working well with me and I had to be taken off it in

January this year and since March I'm in the BMS Trial with hardly any

side effects after the first couple of months.

I don't write much in this forum as everyone seems to be with Gleevec.

I am still working and living a normal life just like before I was

confronted with CML some years ago, and finally diagnosed in March 2004.

Thanks to the wonderful medications we all have been given a fair chance

to survive CML.

Health and Happiness to all of CML Survivors.

Ursula

Susie <leechysbigpond (DOT) <mailto:leechys%40bigpond.com> com> wrote: Hi

everyone..its been solong since ive come on the site...ive been

so busy with my new life. For those who don't know I was on Gleevec

for three years..Life for me was zero...zilch... I was bed ridden

with vomiting atleast three times a day...severe diareah and such

joint ache...I wanted to die. I didn't have a life. Then Nov last

year I took myself off Gleevec with the doctors permission for

atleast a months holiday. (Within going of Gleevec the first two

weeks I lost 8 kilo's)..a month turned into 2 then suddenly I was 4

months without medication. My doctor tried to get me on the AMN

trial without no avail..(In Australia we are behind USA) even to the

last day he had no hope...then thankfully they were letting me on

the BMS trial. Its been a journey..I started on March 8th and im on

100mg once a day. I probably have one sick day a week...and in the

last 9 months ive vomited maybe 3 times. I no longer have IBS and

now I want to live life to the fallest. I now am a qualified

Parent and loving it. Its something I knew I couldn't do on Gleevec

but Disatinib has given me hope...

So now instead of my family looking after me and trying to give me

constant hope...I look after my family including my disable son..and

as well as my other children and husband I give lots of hope, hugs

and love to a 15 year old, 5 year old and a 1 year old...and loving

it. Its very healing...to be able to give back.

Susie Leech

Dx Nov 2002

Gleevec 3 Years

Disatinib March 8th 2006

# Zero 765

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