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Re: Sprycel Trial in Virginia/land

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Posted

,

I'm gald to see that life is making a positive turnaround for you. Sprycel

seems to be doing it's thing for you, and the job sounds promising as a foothold

in the D.C. area.

Loewenkamp <loewen1@...> wrote:

Hello Everyone,

Decided to report in with information since I have now been on 100 mg Sprycel

for more than 6 months. I had my most recent BMA about 2 weeks ago and it was

negative for FISH and cytogenetics. I'm waiting for my qPcr. Three months ago it

was 0.0042 which was down from 5 when I entered the trial.

I got into the trial literally on the last day. I had 3 BMBs at town

University and they all varied widely and they wouldn't let me in the trial. So,

through Bristol Myers I found a trial at Greenebaum Cancer Center at the

University of land in Baltimore. My test BMB showed that cytogenetics were

12, FISH 5 and qPCR 5. I got in the trial immediately.

I also have news about my life here. After my odyssey across the country I'm

still working temp jobs but beginning Monday I have a 3-month temp job with

better wages at a non-profit for the homeless. I'm a Project Assistant for the

holidays making sure that this center for the homeless (82 beds) and the

surrounding community get some relief from abject poverty for the holiday

season. It's good because it gives me stability for 3 months and also gives me a

toe in the door of development in DC. I was a Director of Development in

California.

The traffic patterns seem to change everyday around here so it's hard to read

the best way to go. When I arrive I do get free parking which is a HUGE plus in

DC.

Now I have the time to really research other non-profit opportunities for when I

leave this job.

Hope everyone is doing well. I scan the posts but do not keep up like I used to.

Sprycel has obviously been good for me but I do have side effects of fatigue,

general body aches and occasionally it's hard to get a deep breath but that has

improved. Other than that I'm doing fine.

Best of everything,

L

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