Re: Hello from Georgia

August 12, 2006

Hey Barbara:

I have been in the Atlanta area almost three years also. I was diagnosed with

CML in April 2005. It took almost a year to get to hematological remission with

the Gleevec. I got associated with Northside Hospital and was set up to do a

BMT if it went that direction. I was very fortunate to find an unrelated 10/10

match through the pool.

I also had some heart issues after starting the Gleevec. I had to have an

Angioplasty done in July of 2005. I had not had any issues with my heart up to

that point in my life. I was pretty sick last year but being a single parent, I

had to keep working everyday while I worked through my medical issues. I am

still not sure how I kept going. I am glad that I now am being monitored by my

heart doctor also. Keep an eye on that for sure.

I live on the southside of town in Stockbridge and I really like the area

overall. We came from the San Francisco bay area. It took a while to find a

doctor that was qualified to treat CML. Some to the Dr's claimed to know the

disease but the treatment I recieved was not right with the Gleevec. I kept

looking and found the right Doctor. Glad to hear from someone in the ATL and

don't give up hope with this.

Therese Stone

Barbara <barbdig@...> wrote:

Hello, my name is Barbara and I live in the metro Atlanta area. I was

diagnosed with CML last month. Of course, it was a complete shock as I

had a CBC to check my thyroid because I had started gaining weight for

no reason. I had my first blood test today after 1 week of

medicication. Very excited, WBC was down and spleen unltrasound not

enlarged. I have a son getting married on the 26th and hope the fluid

retention problem doesn't kick in, if it's going to, until after the

wedding. I moved my parents (80 & 85) to this area 3 years ago because

my Father has Alzheimers(in a home since Sept) and my Mother's health

is also not good. Since she doesn't drive any longer, I have to do all

the driving, going to check on Dad, doctor, groceries, etc. I'm very

concerned as to the long term effect this medicine/illness will have on

my energy level.

I have spent many hours on the internet learning about this type of

cancer. I look forward to getting to know everyone.

Anyone in this group in the Atlanta area?

Barbara

---------------------------------

Stay in the know. Pulse on the new .com. Check it out.

August 13, 2006

I am in Georgia but I am down on the coast in Brunswick. I was

diagnosed 3 years ago. I haven't hit remission yet! I was on 800 mg

of Gleevec, and then I became resistant. Now I am on Sprycel ( the

new BMS med). I go to Emory every other month. Email me if yall want

to keep in touch....

Germaine

>

> Hello, my name is Barbara and I live in the metro Atlanta area. I

was

> diagnosed with CML last month. Of course, it was a complete shock

as I

> had a CBC to check my thyroid because I had started gaining weight

for

> no reason. I had my first blood test today after 1 week of

> medicication. Very excited, WBC was down and spleen unltrasound

not

> enlarged. I have a son getting married on the 26th and hope the

fluid

> retention problem doesn't kick in, if it's going to, until after

the

> wedding. I moved my parents (80 & 85) to this area 3 years ago

because

> my Father has Alzheimers(in a home since Sept) and my Mother's

health

> is also not good. Since she doesn't drive any longer, I have to do

all

> the driving, going to check on Dad, doctor, groceries, etc. I'm

very

> concerned as to the long term effect this medicine/illness will

have on

> my energy level.

> I have spent many hours on the internet learning about this type

of

> cancer. I look forward to getting to know everyone.

> Anyone in this group in the Atlanta area?

>

> Barbara

>

August 13, 2006

I live in Locust Grove, so we are close to each other. I was referred to

Dr. Sidhu in Stockbridge. She basically said because I was 61 I probably

wouldn't be a candidate for BMT. I hope I don't have to deal with heart

problems in addition to this. I have to go to Emory for a consultation

because the FISH test shows Chmse #22 is now playing with #1 as well as #9.

Not a good sign I'm told. Just have to take it 1 day at a time.

Thanks for the reply.

Barbara

_____

From: [mailto: ] On Behalf Of

Therese Stone

Sent: Saturday, August 12, 2006 10:16 AM

Subject: Re: [ ] Hello from Georgia

Hey Barbara:

I have been in the Atlanta area almost three years also. I was diagnosed

with CML in April 2005. It took almost a year to get to hematological

remission with the Gleevec. I got associated with Northside Hospital and was

set up to do a BMT if it went that direction. I was very fortunate to find

an unrelated 10/10 match through the pool.

I also had some heart issues after starting the Gleevec. I had to have an

Angioplasty done in July of 2005. I had not had any issues with my heart up

to that point in my life. I was pretty sick last year but being a single

parent, I had to keep working everyday while I worked through my medical

issues. I am still not sure how I kept going. I am glad that I now am being

monitored by my heart doctor also. Keep an eye on that for sure.

I live on the southside of town in Stockbridge and I really like the area

overall. We came from the San Francisco bay area. It took a while to find a

doctor that was qualified to treat CML. Some to the Dr's claimed to know the

disease but the treatment I recieved was not right with the Gleevec. I kept

looking and found the right Doctor. Glad to hear from someone in the ATL and

don't give up hope with this.

Therese Stone

Barbara <barbdigcharter (DOT) <mailto:barbdig%40charter.net> net> wrote: