CT Scan Results

[Guest guest]

There is a stable 5 mm low attenuation lesion in the posterior segment

of the right hepatic lobe.

1. Stable mild diffuse thickening of adrenal glands bilaterally. No

discreet nodule identified.

=Bialteral hyperplasia probably

2. Trace bilateral pleural effusions.

Eating too much salt and possible CHF?

3. Fatty liver. Eating and drinking too much?  What other illness have you

had?  Hepatitis, alcohol excess?

Can someone explain this to me?

This is your health care teams job as they know you best.

May your pressure be low!

CE Grim MD

Clinical Professor of Internal Medicine

Professor of Epidemiology

Board Certified in Internal Medicine, Geriatrics and Hypertension

CT Scan Results

The results of my recent CT Scan were:

There is a stable 5 mm low attenuation lesion in the posterior segment

of the right hepatic lobe.

1. Stable mild diffuse thickening of adrenal glands bilaterally. No

discreet nodule identified.

2. Trace bilateral pleural effusions.

3. Fatty liver.

Can someone explain this to me?

________________________________________________________________________

Email and AIM finally together. You've gotta check out free AOL Mail! -

http://mail.aol.com

[Guest guest]

Thanks for your response Dr. Grim.

Here are my responses.

1. Stable mild diffuse thickening of adrenal glands bilaterally.

Bilateral hyperplasia (using 100mg INSPRA in the AM and 100 mg

INSPRA in the PM)

2. Trace bilateral pleural effusions.

Eating too much salt and possible CHF?

I am following a low salt diet, and I will ask my cardiologist if I

am at risk or have Congestive Heart Failure.

____________________________________________________________________

Congestive Heart Failure

What Are the Symptoms?

The symptoms of heart failure are related to the pooling of fluid in

the body or can be secondary to the decreased blood flow to the body.

Sometimes, people with heart failure do not have any symptoms.

The most common symptoms of heart failure are:

Shortness of breath with exercise or difficulty breathing at rest or

when lying flat.

Swollen legs, ankles, or abdomen.

Dry, hacking cough, or wheezing.

Other symptoms include:

Fatigue, palpitations, or pain during normal activities.

Weight gain from fluid retention.

Increased need to urinate during the night.

Dizziness or confusion.

Rapid or irregular heartbeats.

Call Your Doctor If:

Your legs, ankles, or abdomen are swollen.

You have difficulty breathing, especially if you wake up short of

breath.

You gain 2 pounds in one day or 5 pounds in one week.

You have a feeling of fullness (bloating) in your stomach with a

loss of appetite or nausea.

You feel extreme fatigue or decreased ability to complete daily

activities.

You have a respiratory infection or a cough that has become worse.

Your heart rate is fast, about 120 beats per minute.

You experience a new irregular heart beat.

You feel chest pain or discomfort during activity that is relieved

with rest.

You notice changes in sleep patterns, including difficulty sleeping

or needing to sleep a lot more than usual.

You urinate less.

You feel restless or confused.

You suffer constant dizziness or lightheadedness.

You have nausea or poor appetite.

____________________________________________________________________

Metabolic Syndrome Linked to Heart Failure

Metabolic syndrome is a relatively new term used to describe a

cluster of common risk factors occurring at the same time --

including elevated fasting blood sugar levels, elevated blood

pressure, elevated blood fats (triglycerides), reduced " good "

cholesterol (HDL), and obesity – that have been linked to a variety

of health problems, including heart disease. The presence of at

least three of these risk factors can qualify for having metabolic

syndrome.

In the study, researchers looked at whether metabolic syndrome might

also contribute to heart failure in a group of more than 2,300 men

who were age 50 between 1970 and 1974 and were followed until age

70. None of the men had any history of heart failure, heart attack,

or heart valve disease at the start of the study.

The results showed that men who had metabolic syndrome at the start

of the study were 66% more likely to have heart failure by the end

of the study.

The relationship between metabolic syndrome and heart failure was

even stronger after adjusting for men who had known risk factors for

heart failure, such as a heart attack during the study period. Men

who had a heart attack and other hear failure risk factors in

addition to metabolic syndrome were 80% more likely to have heart

failure by age 70.

Researchers say the results suggest that metabolic syndrome may

affect the heart directly as well as contribute to the buildup of

fatty deposits in the arteries.

_____________________________________________________________________

3. Fatty liver.

Eating and drinking too much? (40 pounds overweight and Metabolic

Syndrome)

What other illness have you had? Hepatatis A and chronic Genital

Herpes

Hepatitis, alcohol excess? I have had Hepatits A, but I do not drink

alcohol.

What should I ask my doctor or medical team?

>

>

>

>

> There is a stable 5 mm low attenuation lesion in the posterior

segment

> of the right hepatic lobe.

>

> 1. Stable mild diffuse thickening of adrenal glands bilaterally.

No

> discreet nodule identified.

>

> Bialteral hyperplasia probably

>

> 2. Trace bilateral pleural effusions.

>

> Eating too much salt and possible CHF?

>

> 3. Fatty liver.

Eating and drinking too much?  

What other illness have you had? 

Hepatitis, alcohol excess?

>

> Can someone explain this to me?

>

> This is your health care teams job as they know you best.

> May your pressure be low!

>

> CE Grim MD

> Clinical Professor of Internal Medicine

> Professor of Epidemiology

>

> Board Certified in Internal Medicine, Geriatrics and Hypertension

>

>

> CT Scan Results

>

>

>

>

>

>

> The results of my recent CT Scan were:

>

> There is a stable 5 mm low attenuation lesion in the posterior

segment

> of the right hepatic lobe.

>

> 1. Stable mild diffuse thickening of adrenal glands bilaterally.

No

> discreet nodule identified.

> 2. Trace bilateral pleural effusions.

> 3. Fatty liver.

>

> Can someone explain this to me?

>

[Guest guest]

Why do they think your liver is fatty. My guess is that it will get

better with BMI of 25.

Dr. grim

CT Scan Results

>

>

>

>

>

>

> The results of my recent CT Scan were:

>

> There is a stable 5 mm low attenuation lesion in the posterior

segment

> of the right hepatic lobe.

>

> 1. Stable mild diffuse thickening of adrenal glands bilaterally.

No

> discreet nodule identified.

> 2. Trace bilateral pleural effusions.

> 3. Fatty liver.

>

> Can someone explain this to me?

>

________________________________________________________________________

Email and AIM finally together. You've gotta check out free AOL Mail! -

http://mail.aol.com

[Guest guest]

Agreed, but having difficulty loosing weight.

>

> >

>

> >

>

> >

>

> >

>

> > There is a stable 5 mm low attenuation lesion in the posterior

>

> segment

>

> > of the right hepatic lobe.

>

> >

>

> > 1. Stable mild diffuse thickening of adrenal glands bilaterally.

>

> No

>

> > discreet nodule identified.

>

> >

>

> > Bialteral hyperplasia probably

>

> >

>

> > 2. Trace bilateral pleural effusions.

>

> >

>

> > Eating too much salt and possible CHF?

>

> >

>

> > 3. Fatty liver.

>

> Eating and drinking too much?  

>

> What other illness have you had? 

>

> Hepatitis, alcohol excess?

>

> >

>

> > Can someone explain this to me?

>

> >

>

> > This is your health care teams job as they know you best.

>

>

>

> > May your pressure be low!

>

> >

>

> > CE Grim MD

>

> > Clinical Professor of Internal Medicine

>

> > Professor of Epidemiology

>

> >

>

> > Board Certified in Internal Medicine, Geriatrics and Hypertension

>

> >

>

> >

>

> > CT Scan Results

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> > The results of my recent CT Scan were:

>

> >

>

> > There is a stable 5 mm low attenuation lesion in the posterior

>

> segment

>

> > of the right hepatic lobe.

>

> >

>

> > 1. Stable mild diffuse thickening of adrenal glands bilaterally.

>

> No

>

> > discreet nodule identified.

>

> > 2. Trace bilateral pleural effusions.

>

> > 3. Fatty liver.

>

> >

>

> > Can someone explain this to me?

>

[Guest guest]

Set your DASH calories at 1200 and it will melt away, maybe even at 1600.

CE Grim MD

**************************************

See what's new at

http://www.aol.com

[Guest guest]

It is wonderful to hear such good news. I am happy for you Cara.

I bet you have a permanent smile on your face.

Lots of love from Ann XX

From: spotoca <cspoto@...>

Subject: CT scan results

achalasia

Date: Wednesday, 6 October, 2010, 18:20

 

I am very happy to report that my CT scan came back completely normal and

healthy except for a giant mega esophagus that is compromising my posterior

trachea. Apparently, its so compromised that my Dr is amazed I dont' have

shortness of breath. But it certainly explains my hiking experience back in

2004. He also thinks the myotomy will help. Since I definitely am able to burp

air out of my esophagus, I believe that my UES is functioning normally. I will

ask Dr. L what he thinks. If its functioning normally then any breathing tests I

take post myotomy will show improvement over the ones I just took. Hopefully the

obstruction will be lessened.

I feel so much better. Weight has been lifted from my shoulders. Now I can focus

on the surgery and moving past it.

Other good news. The CT scan showed no scarring on my lungs from aspiration or

micro aspiration. My lungs are clear. And I was a smoker! I am truly blessed and

I am so thankful for this news.

1 week till show time, I will keep you all posted.Thanks again for reading and

for your kind words of support. You are all such a wonderful group of people!

Cara

[Guest guest]

Great news!!  Always a relief to hear that things are better than you expected!

 

From: spotoca <cspoto@...>

Subject: CT scan results

achalasia

Date: Wednesday, October 6, 2010, 12:20 PM

 

I am very happy to report that my CT scan came back completely normal and

healthy except for a giant mega esophagus that is compromising my posterior

trachea. Apparently, its so compromised that my Dr is amazed I dont' have

shortness of breath. But it certainly explains my hiking experience back in

2004. He also thinks the myotomy will help. Since I definitely am able to burp

air out of my esophagus, I believe that my UES is functioning normally. I will

ask Dr. L what he thinks. If its functioning normally then any breathing tests I

take post myotomy will show improvement over the ones I just took. Hopefully the

obstruction will be lessened.

I feel so much better. Weight has been lifted from my shoulders. Now I can focus

on the surgery and moving past it.

Other good news. The CT scan showed no scarring on my lungs from aspiration or

micro aspiration. My lungs are clear. And I was a smoker! I am truly blessed and

I am so thankful for this news.

1 week till show time, I will keep you all posted.Thanks again for reading and

for your kind words of support. You are all such a wonderful group of people!

Cara

[Guest guest]

Glad to hear the good news!  Now you can focus on the surgery, which is enough

in itself...!

Hang in there!  All will be well.

Julee So Calif.

________________________________

From: spotoca <cspoto@...>

achalasia

Sent: Wed, October 6, 2010 10:20:53 AM

Subject: CT scan results

 

I am very happy to report that my CT scan came back completely normal and

healthy except for a giant mega esophagus that is compromising my posterior

trachea. Apparently, its so compromised that my Dr is amazed I dont' have

shortness of breath. But it certainly explains my hiking experience back in

2004. He also thinks the myotomy will help. Since I definitely am able to burp

air out of my esophagus, I believe that my UES is functioning normally. I will

ask Dr. L what he thinks. If its functioning normally then any breathing tests I

take post myotomy will show improvement over the ones I just took. Hopefully the

obstruction will be lessened.

I feel so much better. Weight has been lifted from my shoulders. Now I can focus

on the surgery and moving past it.

Other good news. The CT scan showed no scarring on my lungs from aspiration or

micro aspiration. My lungs are clear. And I was a smoker! I am truly blessed and

I am so thankful for this news.

1 week till show time, I will keep you all posted.Thanks again for reading and

for your kind words of support. You are all such a wonderful group of people!

Cara

[Guest guest]

Hi Cara

So glad that you had the results from the CT scan that you were looking for.

Good Luck for your Myotomy next week and hope that all goes well for you.

from the UK

________________________________

From: e <xabishaix@...>

achalasia

Sent: Wed, October 6, 2010 10:20:12 PM

Subject: Re: CT scan results

 

Great news!!  Always a relief to hear that things are better than you expected!

 

From: spotoca <cspoto@...>

Subject: CT scan results

achalasia

Date: Wednesday, October 6, 2010, 12:20 PM

 

I am very happy to report that my CT scan came back completely normal and

healthy except for a giant mega esophagus that is compromising my posterior

trachea. Apparently, its so compromised that my Dr is amazed I dont' have

shortness of breath. But it certainly explains my hiking experience back in

2004. He also thinks the myotomy will help. Since I definitely am able to burp

air out of my esophagus, I believe that my UES is functioning normally. I will

ask Dr. L what he thinks. If its functioning normally then any breathing tests I

take post myotomy will show improvement over the ones I just took. Hopefully the

obstruction will be lessened.

I feel so much better. Weight has been lifted from my shoulders. Now I can focus

on the surgery and moving past it.

Other good news. The CT scan showed no scarring on my lungs from aspiration or

micro aspiration. My lungs are clear. And I was a smoker! I am truly blessed and

I am so thankful for this news.

1 week till show time, I will keep you all posted.Thanks again for reading and

for your kind words of support. You are all such a wonderful group of people!

Cara

[Guest guest]

 

Hi Cara

So glad that you had the results from the CT scan that you were looking for.

Good Luck for your Myotomy next week and hope that all goes well for you.

from the UK

________________________________

And I hope that things work out as well for you . It would be great to

hear some good news from you. We are all rooting for you.

Best Wishes from Ann XX

 

[Guest guest]

Ann, , and ,

Thank you so much for your well wishes. I feel so much better now. Ready for

surgery with a clear head and positive attitude.

, i will be thinking of you and praying for you. I hope there is a

solution out there that will improve your quality of life tremendously. I also

hope this solution is as non invasive as possible. I will be awaiting your reply

and hoping for the best!

Cara

>

> From: spotoca <cspoto@...>

> Subject: CT scan results

> achalasia

> Date: Wednesday, October 6, 2010, 12:20 PM

>

>  

>

> I am very happy to report that my CT scan came back completely normal and

> healthy except for a giant mega esophagus that is compromising my posterior

> trachea. Apparently, its so compromised that my Dr is amazed I dont' have

> shortness of breath. But it certainly explains my hiking experience back in

> 2004. He also thinks the myotomy will help. Since I definitely am able to burp

> air out of my esophagus, I believe that my UES is functioning normally. I will

> ask Dr. L what he thinks. If its functioning normally then any breathing tests

I

> take post myotomy will show improvement over the ones I just took. Hopefully

the

> obstruction will be lessened.

>

>

> I feel so much better. Weight has been lifted from my shoulders. Now I can

focus

> on the surgery and moving past it.

>

>

> Other good news. The CT scan showed no scarring on my lungs from aspiration or

> micro aspiration. My lungs are clear. And I was a smoker! I am truly blessed

and

> I am so thankful for this news.

>

>

> 1 week till show time, I will keep you all posted.Thanks again for reading and

> for your kind words of support. You are all such a wonderful group of people!

>

> Cara

>

>

[Guest guest]

Cara

Thank you for your kind thoughts and regards for Monday. I too hope there is a

non invasive solution out there for my problems. But i tell you one thing though

without the backing of this group i would have given up ages ago so bear that in

mind when you have your surgery. That the group are there for you is a

tremendous boost to your moral when facing surgery. I will post the results of

the surgical review from my appointment on Monday or Tuesday when i have got my

head round everything that was said. Once again Good Luck.

from the UK

________________________________

From: spotoca <cspoto@...>

achalasia

Sent: Thu, October 7, 2010 1:31:35 PM

Subject: Re: CT scan results

 

Ann, , and ,

Thank you so much for your well wishes. I feel so much better now. Ready for

surgery with a clear head and positive attitude.

, i will be thinking of you and praying for you. I hope there is a

solution out there that will improve your quality of life tremendously. I also

hope this solution is as non invasive as possible. I will be awaiting your reply

and hoping for the best!

Cara

>

> From: spotoca <cspoto@...>

> Subject: CT scan results

> achalasia

> Date: Wednesday, October 6, 2010, 12:20 PM

>

>  

>

> I am very happy to report that my CT scan came back completely normal and

> healthy except for a giant mega esophagus that is compromising my posterior

> trachea. Apparently, its so compromised that my Dr is amazed I dont' have

> shortness of breath. But it certainly explains my hiking experience back in

> 2004. He also thinks the myotomy will help. Since I definitely am able to burp

> air out of my esophagus, I believe that my UES is functioning normally. I will

> ask Dr. L what he thinks. If its functioning normally then any breathing tests

>I

>

> take post myotomy will show improvement over the ones I just took. Hopefully

>the

>

> obstruction will be lessened.

>

>

> I feel so much better. Weight has been lifted from my shoulders. Now I can

>focus

>

> on the surgery and moving past it.

>

>

> Other good news. The CT scan showed no scarring on my lungs from aspiration or

> micro aspiration. My lungs are clear. And I was a smoker! I am truly blessed

>and

>

> I am so thankful for this news.

>

>

> 1 week till show time, I will keep you all posted.Thanks again for reading and

> for your kind words of support. You are all such a wonderful group of people!

>

> Cara

>

>

[Guest guest]

I have just seen a copy of my latest CT scan results and was

concerned about one statement which is copied below:

Extensive confluent nodal involvement with the abdomen leads

to a hamburger sign within a confluent mass of nodes

encasing the mesenteric vessels with associated paraaortic

nodes measuring 11 x 8.5 cm. Paraaortic nodes measure up to

4.2 cm diameter.

I was lead to believe that generally my CT Scan reported NO

large node mass, but a report of " 11 x 8.5 cm. Paraaortic

nodes measure up to 4.2 cm diameter " is of concern.

Might this be an error in the reference measurement i.e cm

but actually mm?

Or, is this normal or just slightly abnormal?

I also had to smile at the use of the word hamburger! Does

this have any specific meaning?

Regards

[Guest guest]

Do not think that because CT doesn't show adnormal growth you can not have PA.

Only that growth is to small to show on CT something that is very common.

>

> I just got a call from my doctors nurse and CT scan came back very normal. no

enlarged adrenals and no tumors. That is very good news but I am disappointed, I

still have all my symptoms and abnormal blood work.

> Not sure where to go from here. I have another appt. June 5th.

>

> Time to get better at DASHing and maybe my potassium will go up and I'll feel

better.

> I guess I don't have PA afterall.

> Thanks for the support and I'm going to keep up with the group for Na, K

> and DASHing.

>

>

>

[Guest guest]

,CT can easily miss an adrenal adenoma. An adenoma can be as small as a grain of sand. What are your K, aldo and renin results? Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of catherinekerth1I just got a call from my doctors nurse and CT scan came back very normal. no enlarged adrenals and no tumors. That is very good news but I am disappointed, I still have all my symptoms and abnormal blood work.Not sure where to go from here. I have another appt. June 5th. Time to get better at DASHing and maybe my potassium will go up and I'll feel better.I guess I don't have PA afterall.Thanks for the support and I'm going to keep up with the group for Na, Kand DASHing.

[Guest guest]

I have PA but normal CT scan. I have only had one, but it was read as normal adrenals. Kidney cyst, but those are common.

From: lvasiliu@... <lvasiliu@...>Subject: Re: CT scan resultshyperaldosteronism Date: Friday, May 25, 2012, 3:03 PM

Myself as other members here heard the same story from our PCPs!Maggie and have been told they "have no tumors" yet after they went to NIH the story was completly different (NIH doctors are much better at reading CT/MRI even seeing "bumps" on "NORMAL scan"). My adrenal CT is "NORMAL" yet I have all PA symptoms.I wish you do not have PA but with your high Aldo/renin ratio I would try to contact the NIH team for admission into protocol 00-CH-0160.http://clinicalstudies.info.nih.gov/cgi/wais/bold032001.pl?A_00-CH-0160.html@NCT00005927In the mean time try DASHing to feel better.>> I just got a call from my doctors nurse and CT scan came back very normal. no enlarged adrenals and no tumors. That is very good news but I am disappointed, I still have all my symptoms and abnormal blood work.> Not sure where to go from here. I have another appt. June 5th. > > Time to get better at DASHing and maybe my potassium will go up and I'll feel better.> I guess I don't have PA afterall.> Thanks for the support and I'm going to keep up with the group for Na, K> and DASHing.> > >

[Guest guest]

No PA is a biochemical and clinical DX. Never made on X-ray. So I'dF you have bichemical PA HOU ARE LIKE THE MAJORITY who do not have a bump on the x-rays. I am available to give second opinion and read CTs as some are not read correctly. And to work with your team to get back to feeling normal. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn May 25, 2012, at 14:22, catherinekerth1 <catherinekerth@...> wrote:

I just got a call from my doctors nurse and CT scan came back very normal. no enlarged adrenals and no tumors. That is very good news but I am disappointed, I still have all my symptoms and abnormal blood work.

Not sure where to go from here. I have another appt. June 5th.

Time to get better at DASHing and maybe my potassium will go up and I'll feel better.

I guess I don't have PA afterall.

Thanks for the support and I'm going to keep up with the group for Na, K

and DASHing.

[Guest guest]

Blood work came back:

Aldo/PRA Ratio 107.1

Renin 0.14

potassium 3.5 (i don't believe that at all)

but I was taking Diovan 160mg on a regular basis during. Not sure how much

effect that med would have on results. No 24 hour urine taken. My Endo was just

going by this so far....

Wow. You guys are very supportive. I love this group. Seems like everyone has

had a similar difficult path.

>

> ,

>

> CT can easily miss an adrenal adenoma. An adenoma can be as small as a

> grain of sand. What are your K, aldo and renin results?

>

>

>

> Val

>

>

>

> From: hyperaldosteronism

> [mailto:hyperaldosteronism ] On Behalf Of catherinekerth1

>

>

>

> I just got a call from my doctors nurse and CT scan came back very normal.

> no enlarged adrenals and no tumors. That is very good news but I am

> disappointed, I still have all my symptoms and abnormal blood work.

> Not sure where to go from here. I have another appt. June 5th.

>

> Time to get better at DASHing and maybe my potassium will go up and I'll

> feel better.

> I guess I don't have PA afterall.

> Thanks for the support and I'm going to keep up with the group for Na, K

> and DASHing.

>

>

>

[Guest guest]

I may have missed it. Give us the normal bands for each. You should have 24-hour urine. (Your numbers look like PA to me.) Dr. Grim, why do CT anyway except to rule out a carcinoma? Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of catherinekerth1 Blood work came back:Aldo/PRA Ratio 107.1Renin 0.14potassium 3.5 (i don't believe that at all)but I was taking Diovan 160mg on a regular basis during. Not sure how much effect that med would have on results. No 24 hour urine taken. My Endo was just going by this so far....Wow. You guys are very supportive. I love this group. Seems like everyone has had a similar difficult path.>> ,> > CT can easily miss an adrenal adenoma. An adenoma can be as small as a> grain of sand. What are your K, aldo and renin results?

[Guest guest]

This is now funny ! They also read my CT as having: " upper pole renal

cysts " .

I was wondering if those are not really renal but adrenal masses since the

adrenals are sitting right on top of the kidneys and an " upper pole renal cyst "

could in reality be an adrenal adenoma.

I would not be surprised if my CT was actually read by an unexperienced

radiology student (since I am going to a university hospital) who confused

adrenal masses with renal cyst.

But this is life so every patient has to be his own doctor until you get the

correct diagnostic.

tiu

>

>

>

>  I have PA but normal CT scan. I have only had one, but it was read as normal

adrenals. Kidney cyst, but those are common.

[Guest guest]

You are right that it SHOULD be clinical and biochemical Dx. But ...

Unfortunately most doctors don't know it and when you ask about Conn's/PA they

do an " adrenal scan " which most of the times do not shows anything (either

missread or today scan resolution not enough).

The scan is done JUST to convince me, the PT, that I DO NOT have PA.

And then the hell starts since you do not have any diagnostic hence they do not

prescribe you any meds or advice any lifestyle changes (since you don't have PA

it has to be all just in your head, aka anxiety, depression etc). Once the write

anxiety in your charts you are being treated as an idiot and this will NEVER

change.

You can see my frustration but I even tried to suggest my specialist endo a

trial of Spiro/Epler (because my biochemical results was borderline) but she

just sent me back to cardiology because: " they know better what works for your

heart rate " . And then they pass you around to another " specialist " and just

collect money and hope that you'll get borred seeing them one day and you will

go away...

BTW, I left her copy of you article on PA but she said " thanks, but I have

access to PubMed so I can search it myself " (and that was the last time I saw

her).

Joining your group helped me more then any doctor I've seen!

tiu

>

> > I just got a call from my doctors nurse and CT scan came back very normal.

no enlarged adrenals and no tumors. That is very good news but I am

disappointed, I still have all my symptoms and abnormal blood work.

> > Not sure where to go from here. I have another appt. June 5th.

> >

> > Time to get better at DASHing and maybe my potassium will go up and I'll

feel better.

> > I guess I don't have PA afterall.

> > Thanks for the support and I'm going to keep up with the group for Na, K

> > and DASHing.

> >

> >

> >

> >

>

[Guest guest]

Good question about the location of the renal cysts. Dr G may have experience knowing if they misread these locations as kidney instead of adrenal.

But even a student or intern should have it overread, yet the attending often just quickly go over it. I often have sent my xrays back of fractured fingers and broken ribs (the 2 most common) among other things and let the radiologist know he could redo his or her report because they sent it back to me as "normal" and I didn't want them getting sued and also to rub it in a little how they missed something so obvious. Sometimes they were so clearly obvious fractures - fingers and hand were the most common I recall - that I doubted it was even glanced at at all . I think they just put it through and billed for it.

From: lvasiliu@... <lvasiliu@...>Subject: Re: CT scan resultshyperaldosteronism Date: Friday, May 25, 2012, 4:35 PM

This is now funny ! They also read my CT as having: "upper pole renal cysts".I was wondering if those are not really renal but adrenal masses since the adrenals are sitting right on top of the kidneys and an "upper pole renal cyst" could in reality be an adrenal adenoma.I would not be surprised if my CT was actually read by an unexperienced radiology student (since I am going to a university hospital) who confused adrenal masses with renal cyst.But this is life so every patient has to be his own doctor until you get the correct diagnostic.tiu>> > > Â I have PA but normal CT scan. I have only had one,

but it was read as normal adrenals. Kidney cyst, but those are common.

[Guest guest]

Dr. Grim,

I am is San Diego, but I can travel to any PA literate MD in SoCal (even

NorCal).

Myself I was looking forward for the Skyline/Lake Tahoe clinic ... hope it

comes.

Thank you for your offer and please let me know if you trust anybody in SoCal.

tiu

>

> >

> >

> > You are right that it SHOULD be clinical and biochemical Dx. But ...

> >

> > Unfortunately most doctors don't know it and when you ask about

> > Conn's/PA they do an " adrenal scan " which most of the times do not

> > shows anything (either missread or today scan resolution not enough).

> >

> > The scan is done JUST to convince me, the PT, that I DO NOT have PA.

> > And then the hell starts since you do not have any diagnostic hence

> > they do not prescribe you any meds or advice any lifestyle changes

> > (since you don't have PA it has to be all just in your head, aka

> > anxiety, depression etc). Once the write anxiety in your charts you

> > are being treated as an idiot and this will NEVER change.

> >

> > You can see my frustration but I even tried to suggest my specialist

> > endo a trial of Spiro/Epler (because my biochemical results was

> > borderline) but she just sent me back to cardiology because: " they

> > know better what works for your heart rate " . And then they pass you

> > around to another " specialist " and just collect money and hope that

> > you'll get borred seeing them one day and you will go away...

> >

> > BTW, I left her copy of you article on PA but she said " thanks, but

> > I have access to PubMed so I can search it myself " (and that was the

> > last time I saw her).

> >

> > Joining your group helped me more then any doctor I've seen!

> > tiu

[Guest guest]

Hey tiu, I'm not sure if I gave you this info in the past or not. The

medical team that diagnosed and treated my PA is in Santa and at UCLA.

Not exactly close to San Diego, but if you're willing to travel a bit at least

you'll know you are being treated by someone with experience.

Dr Earl Gordon - nephrologist and HTN specialist (PA diagnosis)

(310) 453-4599

Dr Antoinette Gomes - interventional radiologist (AVS)

310-206-8909

Dr Avital Harari - endocrine surgeon (adrenalectomy)

(310) 206-0585

> >

> > >

> > >

> > > You are right that it SHOULD be clinical and biochemical Dx. But ...

> > >

> > > Unfortunately most doctors don't know it and when you ask about

> > > Conn's/PA they do an " adrenal scan " which most of the times do not

> > > shows anything (either missread or today scan resolution not enough).

> > >

> > > The scan is done JUST to convince me, the PT, that I DO NOT have PA.

> > > And then the hell starts since you do not have any diagnostic hence

> > > they do not prescribe you any meds or advice any lifestyle changes

> > > (since you don't have PA it has to be all just in your head, aka

> > > anxiety, depression etc). Once the write anxiety in your charts you

> > > are being treated as an idiot and this will NEVER change.

> > >

> > > You can see my frustration but I even tried to suggest my specialist

> > > endo a trial of Spiro/Epler (because my biochemical results was

> > > borderline) but she just sent me back to cardiology because: " they

> > > know better what works for your heart rate " . And then they pass you

> > > around to another " specialist " and just collect money and hope that

> > > you'll get borred seeing them one day and you will go away...

> > >

> > > BTW, I left her copy of you article on PA but she said " thanks, but

> > > I have access to PubMed so I can search it myself " (and that was the

> > > last time I saw her).

> > >

> > > Joining your group helped me more then any doctor I've seen!

> > > tiu

>