RE: Re: What are my options?

[Guest guest]

Hi Chuck,

Do you know if Sprycel greatly affects your blood counts? Can I go on it if

my counts are still quite low?

Cam

On 12/6/06 4:32 PM, " full_of_chuckles " <no_reply > wrote:

>

>

>

>

> Cam,

> Have you spoken to your oncologist about Sprycel. I have been on

> Gleevec for 10 months and then had to come off to do side effects.

> Sprycel has only been FDA approved since July of this year so there

> isn't a ton of information out there. One of the prerequisites is to

> have been on Gleevec and had to quit taking it.

> I hope this helps,

> Chuck

>

>

>

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[Guest guest]

Hi Tracey and

Sorry for the delay in replying.

I agree with your comments, I have had a couple of heart echos which

have been fine. Coincidentally they discovered a possible congenital

problem but not one that caused the symptoms.

The bottom line is that my breathlessness seems to be caused by the BMS.

3 weeks off the BMS and everything seems much better and no palpitations

or what I thought were palpitations.

Onto the next stage of treatment in the New Year

regards

Leigh

Home Number: 0208-621-1664

Mobile: 07956 269 368

PLEASE NOTE MY NEW E-MAIL ADDRESS

[ ] Re: What are my options?

While I agree that anyone with shortness of breath should pursue

heart testing, I want to reassure you that just because you have

this symptom, doesn't mean you have CHF.

I had shortness of breath to the point where I was panting

vigorously after just bending down to tie my shoes and it turned out

to be nothing.

This was long before there were reports of Gleevec causing CHF but I

had it checked anyway since it was severely impacting my life at the

time. I had a variety of tests done including stress tests, echos,

xrays, holter monitors and lung function tests. Everything showed

my heart to be in terrific shape.

I guess the point of all this is to say that yes, I think everyone

who has shortness of breath, should have it evaluated, but on that

same note, don't panic before you have to because it could be

nothing.

Tracey

dx Jan 2002

>

>

> Dear,: (from sunny London)

>

> I am worried to hear that you are having alot of shortness of

breath.

> I was on Gleevec from June of 2001 to Oct 2006. For the last 6 to 9

> months I had alot of shortness of breath also, I did my best to

just

> ignore it, but I remembered hearing the Gleevec ( as well as other

new

> leukemia drugs) have been linked to heart damage, they are calling

it

> (CHF- congestive heart failure). Well I mentioned to my Onc, that I

> have heard of this study then I told him that I had been having

> shortness of breath. He did an office exam, but found no signs of

CHF,

> but he said that to be sure, he would do a (echo- ultra sound on

the

> heart). That test showed that indeed I have CHF and they did

surgery

> right away and installed a defibrillator. My heart feels better

but we

> stoped all meds for the leukemia. My last fish test showed that Im

no

> longer a member of Zavie's Zero club, but we are still not sure

what to

> do next. Dr. Weeks is checking on that and I see him again soon.

Anyway

> what Im trying to say is that you are right to be worried about the

> shortness of breath, maybe think about getting the echo test on

your

> heart.

> Best wishes to the group.

> TTFN.

>

>

>

>

>

>

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