Guest guest Posted October 25, 2006 Report Share Posted October 25, 2006 Just wonder where we can all peruse the " List " . Is it posted somewhere? I'd like to see those that are before and after my induction in Oct 03. Best Regards, PCRU Zavie# 838 > > > > I am 23yrs old, dx with CML April 2006 just a few days after my > > son's first birthday. I have had to deal with a lot of medical > > issues since he was born. I got DVTs in both legs while I was > > pregnant, but they weren't discovered untill I was in lobor. I had > > to take blood thiners and was on pain killers for a little over > six > > months. I'm free of blood clots (for now...)and I was able to > enjoy > > Thanksgiving and Christmas that year drug free! But now I am > trying > > to deal with CML. I feel tired all of the time! I think it's a > > little from the Gleevec(400mg)I take and a little from the > > depression I feel. Well I'm not sure if it's depression as much as > > it's frustration. I think I have bad blood or something. I want to > > beat this, but I am afraid that something else life threatening > will > > happen to me! I just want to focus on my son. I lost most of his > > first year because I was over medicated, and so I have been lying > to > > my family and doctor about my pain as to avoid the same thing from > > happening. I try to take over the counter drugs for pain...it > helps > > but the pain comes back before I can take another dose. My doctor > > says that I feel tired because I am a mother of a (almost)2yr old. > > But my husband helps out all of the time, so I don't think that's > > it. I am sorry about the " complaining " I just feel I have to be > > brave for my family so this was all kind of built up for the past > 7 > > months. > > Thank you for your time and for listening. > > > > in Reno, NV > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2006 Report Share Posted October 25, 2006 Dear Zavie, I gather from your occasional " Zero Club " postings that you maintain a running list of PCRU CML'ers. (It took me a while to figure this out. I'm not too swift sometimes.) Anyway, I wanted to let you know that I reached 0.000 per PCR this past summer, about 15 months after diagnosis. If I've misunderstood the nature of the list, just ignore me. Warmest regards. (Dov) > > > > > > I am 23yrs old, dx with CML April 2006 just a few days after my > > > son's first birthday. I have had to deal with a lot of medical > > > issues since he was born. I got DVTs in both legs while I was > > > pregnant, but they weren't discovered untill I was in lobor. I > had > > > to take blood thiners and was on pain killers for a little over > > six > > > months. I'm free of blood clots (for now...)and I was able to > > enjoy > > > Thanksgiving and Christmas that year drug free! But now I am > > trying > > > to deal with CML. I feel tired all of the time! I think it's a > > > little from the Gleevec(400mg)I take and a little from the > > > depression I feel. Well I'm not sure if it's depression as much > as > > > it's frustration. I think I have bad blood or something. I want > to > > > beat this, but I am afraid that something else life threatening > > will > > > happen to me! I just want to focus on my son. I lost most of his > > > first year because I was over medicated, and so I have been lying > > to > > > my family and doctor about my pain as to avoid the same thing > from > > > happening. I try to take over the counter drugs for pain...it > > helps > > > but the pain comes back before I can take another dose. My doctor > > > says that I feel tired because I am a mother of a (almost)2yr > old. > > > But my husband helps out all of the time, so I don't think that's > > > it. I am sorry about the " complaining " I just feel I have to be > > > brave for my family so this was all kind of built up for the past > > 7 > > > months. > > > Thank you for your time and for listening. > > > > > > in Reno, NV > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2006 Report Share Posted October 25, 2006 Hi , I did have it on line, but had to remove it because of problems. I will put a list in the files section with minimum data e. g. name and Zero Club number. Zavie [ ] Hi Zavie Just wonder where we can all peruse the " List " . Is it posted somewhere? I'd like to see those that are before and after my induction in Oct 03. Best Regards, PCRU Zavie# 838 > > > > I am 23yrs old, dx with CML April 2006 just a few days after my > > son's first birthday. I have had to deal with a lot of medical > > issues since he was born. I got DVTs in both legs while I was > > pregnant, but they weren't discovered untill I was in lobor. I had > > to take blood thiners and was on pain killers for a little over > six > > months. I'm free of blood clots (for now...)and I was able to > enjoy > > Thanksgiving and Christmas that year drug free! But now I am > trying > > to deal with CML. I feel tired all of the time! I think it's a > > little from the Gleevec(400mg)I take and a little from the > > depression I feel. Well I'm not sure if it's depression as much as > > it's frustration. I think I have bad blood or something. I want to > > beat this, but I am afraid that something else life threatening > will > > happen to me! I just want to focus on my son. I lost most of his > > first year because I was over medicated, and so I have been lying > to > > my family and doctor about my pain as to avoid the same thing from > > happening. I try to take over the counter drugs for pain...it > helps > > but the pain comes back before I can take another dose. My doctor > > says that I feel tired because I am a mother of a (almost)2yr old. > > But my husband helps out all of the time, so I don't think that's > > it. I am sorry about the " complaining " I just feel I have to be > > brave for my family so this was all kind of built up for the past > 7 > > months. > > Thank you for your time and for listening. > > > > in Reno, NV > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2006 Report Share Posted October 25, 2006 Thanks, Zavie..... I thought I had seen it at one point, but then, at this age, thought maybe I had just imagined .... Regards, > > > > > > I am 23yrs old, dx with CML April 2006 just a few days after my > > > son's first birthday. I have had to deal with a lot of medical > > > issues since he was born. I got DVTs in both legs while I was > > > pregnant, but they weren't discovered untill I was in lobor. I > had > > > to take blood thiners and was on pain killers for a little over > > six > > > months. I'm free of blood clots (for now...)and I was able to > > enjoy > > > Thanksgiving and Christmas that year drug free! But now I am > > trying > > > to deal with CML. I feel tired all of the time! I think it's a > > > little from the Gleevec(400mg)I take and a little from the > > > depression I feel. Well I'm not sure if it's depression as much > as > > > it's frustration. I think I have bad blood or something. I want > to > > > beat this, but I am afraid that something else life threatening > > will > > > happen to me! I just want to focus on my son. I lost most of his > > > first year because I was over medicated, and so I have been lying > > to > > > my family and doctor about my pain as to avoid the same thing > from > > > happening. I try to take over the counter drugs for pain...it > > helps > > > but the pain comes back before I can take another dose. My doctor > > > says that I feel tired because I am a mother of a (almost)2yr > old. > > > But my husband helps out all of the time, so I don't think that's > > > it. I am sorry about the " complaining " I just feel I have to be > > > brave for my family so this was all kind of built up for the past > > 7 > > > months. > > > Thank you for your time and for listening. > > > > > > in Reno, NV > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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