Re: Digest Number 522

[Guest guest]

appetite

>

> HI all,

> Has anyone ever experienced a loss of appetite while in a bad flare ?

> Thanks!

>

Yes. Usually it hits after losing weight to a particular threshold,

after which the body goes into severe starvation mode and you lose

appetite. It's really important to keep eating, especially in a flare.

Preferably a balance of high protein with some carbs, spread out

throughout the day -- the proteins take a long time to convert to sugars

and provide good calorie:mass ratios. Flares take a LOT of calories.

Different people encounter this phenomenon at different times, often due

to a combination of personal metabolism+initial weight+activity+caloric

demand due to flare ferocity.

If you don't watch it, it will get away from you, can lead to damage

very quickly, digestion of muscle tissue, and eventual box with dirt

overhead. Nothing to mess with.

HTH

Regards,

Geoff Crenshaw, ACC -----------------------

Captain Cook's Cruise Center ** Usual Disclaimers **

-----------------------

Religion: Man's attempt to discover God

Christianity: God's offer to save humankind

[Guest guest]

Very interesting!!! But I hope you got a good cleanse out of it. Some

people take the herb out of the capsule and make a tea out of it. I hope

you take it; it's good stuff. Someone may sell it in liquid form. Not

sure.

>

>Subscription email:

>mailto:bowel cleanse-subscribeegroups

>

[Guest guest]

Hey Kathleen, 2 things:

First, I don't mean to squabble over small numbers, but when I use only 1.5

teaspoons of sea salt in the solution, my body just absorbs the water! I

have to use 2. YMMV, as my motorcycle list says--your mileage may vary.

Two, I'd like to know how to take milk thistle. Can I make a tea out of it,

or would I have to take capsules?

Thanks!

-Todd

[Guest guest]

In a message dated 11/14/00 5:00:11 PM Eastern Standard Time,

egroups writes:

<< Message: 16

Date: Tue, 14 Nov 2000 13:50:21 EST

From: duffey48@...

Subject: Gail?

Where are you? Haven't heard from you in a while. How's Seth?

Donna >>

Hi Donna,

I have read every single post. I am still here! LOL Just really busy and I

have no knowledge of all the meds and issues going on with so many of the

kids on the list. Glad to hear that Maddie is doing so well. Seth is going

through a head banging stage now. I would love to get 5 " carpet on the walls

and floor! LOL But, like so many on the list, the boarded up windows and

chewed up walls are enough! LOL I think my house is beyond repair. Sure

wish I could find a school like Maddie's for Seth next year. My decision to

homeschool him is not a welcomed one with the " powers that be " , though his

teacher thinks that would be the best thing for him. The only other choice

that they are giving me is a 6-1-1 problem behavior room. I DON'T THINK

SO!!! LOL I will join LEAH in January to get the legal support I guess.

Thanks for asking about Seth Donna. (aren't you sorry you did now!) LOL

Gail

[Guest guest]

Pat,

I asked for them to teach to ride a bike during adaptive P.E. They

don't do it at his school, so he and his aide go over to the other JHS a few

miles away and ride over there. He goes on Community outing twice a week

with the other school's class and on those days he has that adaptive PE

class. My claim is that all the kids in the neighborhood ride bikes and come

by to say hi to and he can't join them. Do they want to hold him back

from this? He needs to be able to interact and be a part of the community

and do age appropriate things. I've even had them teaching him to

rollerblade in full gear twice a week. The skateboard they said no to and I

didn't push it.

Go for it!

[Guest guest]

Sorry , that last post was for you about riding Bikes at school.

[Guest guest]

Marissa,

My feelings exactly. They're trying to make him not so dependent on his

aide, and even though he has another part time aide (2 aides), he gets very

upset when this particular one leaves him. told me that " Lowe (Mrs.

Lowe) best friend " I've also suggested his walkman till she returns,

listening to music, preparing him for her leaving the room for a moment too.

They told me they welcome all suggestions, but we'll see. This new school is

a whole lot more supportive, so I hope they listen and can work through this

with him. If it were up to his aide, she'd take him to lunch with her, but

they won't allow it. He understands, but after the last abusive teacher he

had at the old school, I think he's afraid to be left alone with anyone he's

not as sure of.

[Guest guest]

,

was on Piracetam for 7 years and when I started him on Risperdal I had

to stop giving it to him. They're not sure what the interaction would be and

told me not to give it. I thought I'd noticed so much of a difference with

him on Piracetam, but when I took him off of it, I didn't see any

difference????????????? Maybe mind over matter. I wanted it to help.

[Guest guest]

michelle, cant say i blame billy for not being sure of things when aide is

gone to lunch....ashton seems more leery of people now.... who can blame

her....witchy teacher left a scar on her that will never go away.. i think

once a child has lost trust in those around them, it is detrimental to their

whole lifes.... hang in there and i hope it gets better for all.lea

[Guest guest]

Oh, I definitely agree with the lost trust....When was in Early

Intervention (around 3, I think, possibly pre-school, anyway Great Lakes and we

left when he was 4), we had just broke him of the habit of putting his finger in

his mouth. The speech teacher had him do finger-painting with pudding and lick

it off his finger. Blew a whole year of work on my part. Anyway, in a moment

of anger (after finding out what she had him do - he was more verbal then), I

said, well don't listen to that teacher. She had problems with that until we

left. I guess he took me literally, and didn't listen to a word she said after

that. Made me watch what I say.....

Loriann

Wife to Dewight

Mom to , 10 years, DS-ASD, ADHD, ODD

And , 16 months and Strong Willed

[Guest guest]

nathan goes roolerskating too, we usually take him on sundays when its not

sooo crowded as is on friday nites, and later on during the school year the

rink has skating after school on wednesdays this is always fun for him, he

isnt the most apt skater, but he is like most of the ohter boys, at the video

games or munching junk food, but it is a highly social activity so i

encourage it, our prob now is nathan is getting too big for his special

skates that dont roll backwards, and with regular ones he can barely stand

up, and blades dont offer any support on the ankles for him, ive noticed. any

hints? shawna.

[Guest guest]

> Liquid Talc

> 4 Tablespoons distilled water

> 4 Tablespoons Kaolin Clay, French Clay, cornstarch or arrowroot

> powder

> 1 cup Aloe Vera Gel

> 10 drops Essential oil.

>

> Does this have to be refrigerated because of the aloe vera? Thanks, Jacque

>

>

[Guest guest]

In a message dated 4/29/01 3:40:03 AM Eastern Daylight Time,

writes:

<< We studied the S/P manuals thoroughly and also got a lot of

valuable >>

Where did you get the S/P manuals.......or rather, where can I get them?

Thanks,

Beth

[Guest guest]

What about " more, all done and my turn " . Personally I would leave the colors

until later on. Ellie at 5 is just barely starting to learn the colors and

is doing it verbally.

Gwen

> Okay, this isn't a hot topic, but I could use some help, input... Since

my son, Mac (3), signs a LOT and he will be going to a " typical " preschool

where no one signs--not that they're not willing, it's just they've never

been asked to, exposed to it, etc... Mac will be the first child to attend

there with DS and the only one on an IEP this year. I'm really looking

forward to this experience for him. One of my hopes, is that he will become

more verbal. His receptive language is very good and really people do not

have to sign for him to understand, it's more he uses sign to express

himself. Anyway...16 months ago I started a playgroup in our area for Mac.

I did it for purely selfish reasons, I wanted him to be known and have

friends BEFORE he ever went to school. It has worked out wonderfully. It

started with 5 kids from 3 families and we now have 15 kids from 7 families,

with 2 new families with 3 new kids asking if they can join us. We meet

once a month--usually at one of the families homes, however, we've also had

our playgroup at the beach, at the park, at Burger King playland and the

pool. Since 3-4 of the kids (including Mac) will be going to the same

preschool, in addition to our monthly playgroup we will be meeting for seven

weeks this summer for me to teach sign language to the kids/moms. One of

the moms actually asked me if I would teach her son and daughter

individually, but the more I thought about it, again, for selfish reasons I

decided to see if anyone else was interested and everybody and then some are

interested. My hope is if a couple of the kids pick up some of the signs

they'll be able to help the teacher understand Mac better. I want to do

everything in my power to support and help this teacher--she's very willing

to have Mac in her class, but I know she's also very nervous about it. I'm

concerned that his weak verbal language skills may frustrate her and I don't

want her to feel she has to know every sign--as I said, it's not important

that she sign (I'd prefer she didn't--at least not too much), but it is

important that she understand his signs. Here's the big question for the

non-Suaree goers: What signs are the most important in a preschool

setting?? I don't want to overwhelm little kids with too many signs, so I

want to pick the ones that would be most appropriate and most used in a

typical preschool. I'm thinking: basic needs (bathroom, drink, eat, help,

please...), colors, and what else?!?! I'm anxious to hear what you guys

have to say on this " hot " (NOT) topic.

>

> Jill

[Guest guest]

Hey Skip. . . " Hello~~My Hero ! ! ! " I was getting ready to email you privately

because I hadn't heard seen your posts. Take care. . . I have you in my prayers.

.. . " K "

D (FYI) At 91, with only those few side effects; I think the newly diagnosed

lady will be 'fantastic " ; as I always say when asked " I AM FANTASTIC " with all

my side effects.

Take care all are in my prayers. . . " K "

" K "

" I AIN'T FINISHED YET " !!!