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off gleevec /Ursula

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Thankyou and also your reply Ursula. Im not sure what Doctor

your under Ursula but im under Tim in Adelaide and ive also had

problems with Gleevec even at the very beginning when they said i

wasnt responding to the drug. And now i have responded but not as well

as theyd like plus i to have terrible side effects that ive had to

come off Gleevec for 8 weeks. Tim told me that if id lose response it

has to be up to 35%Philly and then they would then put me on one of

the new drugs that is on trial at the moment and if i didnt respond

and up with 35% which he conciders accelerated then they would then

give me back gleevec. So in his views Gleevec is avaliable in most

cases but as i said im not sure who your under maybe you need to get a

second oppinion not at any stage has Tim given me the view that I

would be left stranded without any drug.

Susie Dx Nov 2002

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