Re: Price of Gleevec/Ursula

January 22, 2006

At 11:21 PM 1/22/06 +1100, you wrote:

>Hi ,

>

>my onc told me that if I do not respond to Gleevec as expected I will be

>cut off the drug.

>However it seems I respond very well just that the 400mg are too strong,

>at least that's what I believe.

>I soon will know more and will keep you and others who are interested,

>updated.

>I could not possibly pay close to AUD 4000,00 per month anyway.

>I am over 60, but not a pensioner, I was lucky to get Gleevec without any

>problems.

>I am not australian but a permanent resident of this Country.

>

>All the best,

>

>Ursula

I hope it works out well for you Ursula. I had heard your story before,

about being cut off the drug, but maybe the situation is changing. Even if

you don't get a cytogenetic response, the drug is still keeping you alive

if it is controlling your blood counts. I have many old cml friends who are

still 100% ph+ after being on Gleevec for years.

Also, some people do not need to be on 400mg and do just fine on 300mg. All

this is not totally understood.

Let us know how your bmb results come out.

Best to you,

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