Re: Hey all..

[Guest guest]

Hi Susie,

Which new drug was your dr. referring to? Is it Dasatinib?

My husband has been in a clinical study for Dasatinib after not responding to

Gleevec. I would like to correspond with others who have info on any other new

drugs and those also having to consider BMT. I am new to the group...looking on

info to give my husband who is not computer saavy.

Thanks...Judi

Susie <leechys@...> wrote:

Hi all, well just a update for wishes to know. I saw Tim and yes he

suggested I have a BMT. He said given my age and my donor, now would

be a good time. He did phone about the new drug and said i need be

able to fill in three catagaries before i would even be looked at.

Well i have two of them.. He will make contact with my next

wednesday. If that fails, then he suggested interferon...i freaked

cause ive only heard bad news about that but he assured me there was

successful stories. But he said given my toxic level..he didnt think

I would handle that either. I asked about going on Gleevec with a

200 or 300mg dose..he isnt happy with that. So he told my hubby and

me to go home and think hard about doing transplant...He gave me

stastistics and then said if i survived then he could promise me 20

years ..but he said with all the new drugs that are coming although

sound good...they cant promise that..saying that though he knows i

have a sister who is 100% match...but that still dosnt ease my

mind..hehe...but ill sit and wait till next wednesday and hopefully

have more to tell you at chat..

fingers x..

Thanks guys for your support its been great..

and a big hug to zavie..hes my insperation...love him..thanks zavie..

still in adelaide having a few days break be speak to you all soon..

Susie Leech

Dx Nov 2002

Currently off Gleevec

[Guest guest]

Hey Susie,

I will be praying very hard for you and your situation. Sorry you are at this

point. Good luck.

Moe

dxd 2/03

600 mg

Susie <leechys@...> wrote:

Hi all, well just a update for wishes to know. I saw Tim and yes he

suggested I have a BMT. He said given my age and my donor, now would

be a good time. He did phone about the new drug and said i need be

able to fill in three catagaries before i would even be looked at.

Well i have two of them.. He will make contact with my next

wednesday. If that fails, then he suggested interferon...i freaked

cause ive only heard bad news about that but he assured me there was

successful stories. But he said given my toxic level..he didnt think

I would handle that either. I asked about going on Gleevec with a

200 or 300mg dose..he isnt happy with that. So he told my hubby and

me to go home and think hard about doing transplant...He gave me

stastistics and then said if i survived then he could promise me 20

years ..but he said with all the new drugs that are coming although

sound good...they cant promise that..saying that though he knows i

have a sister who is 100% match...but that still dosnt ease my

mind..hehe...but ill sit and wait till next wednesday and hopefully

have more to tell you at chat..

fingers x..

Thanks guys for your support its been great..

and a big hug to zavie..hes my insperation...love him..thanks zavie..

still in adelaide having a few days break be speak to you all soon..

Susie Leech

Dx Nov 2002

Currently off Gleevec