Guest guest Posted September 3, 2006 Report Share Posted September 3, 2006 Hey Group. . . I am still lurking out here and sending personal welcomes to the NEWBIES. I am getting the impression that the Hematology & Oncology Doctors are steering our Newbies to the BMTs. I understand that the Transplant Doctors need US as (pioneers/guinea pigs) to UP the statistics; but with our Gold, the AMS & BMS medications, the Vaccine, and new medications on the horizon. I personally don't feel that a BMT is the CURE that the Transplant Doctors have been 'tooting' it as with over 30% of us not surviving 3 months and over 50% not surviving 1 year. Dr. Drucker stated at the ASH Conference in December that our bug is truly a Chronic disease now (much like diabetes) and a newly diagnosed person has a 25 year median. I personally feel that the BMT is a 'last resort option' to be considered only when all has failed. GVHD is a KILLER and I personally don't want to lose another brother or sister, who would be SURVIVING on our Gold. BTW. . . I got the results of my 2nd RT-PCR on September 1, 2006 and I am holding at 0.00136. I've come a long way from 800,000+phillies per Million and 2-5 months to live on December 18, 2003 to " 0/Negative " on the FISH Test on January 1, 2005 to my 1st RT-PCR on December 27, 2005. My 18 fatal/terminal diseases. . . which I call CHRONIC ILLNESSES are being managed by my PCP and 5 Specialists. I have ALL in my prayers! I'M A SURVIVOR. . . I AIN'T FINISHED YET! ! ! " K " " I AIN'T FINISHED YET " !!! Quote Link to comment Share on other sites More sharing options...
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