RE: Upcoming activities for the CML Society of Canada

September 3, 2006

Cheryl,

I also just returned from holidays and was disappointed to see your

note. In case you were not aware, the Jewish High Holiday, Rosh

Hashanah, begins at sundown on September 22 and ends at nightfall on

September 24. Secular activity is completely prohibited on these

important days.

I do not think that just because the LLS and Bristol Meyers chose

September 22 to hold the Montreal LTN event is a reason for the CML

Society to go along with these dates for their meeting.

Unfortunately that precludes my attendance and that of any other

observant person of the Jewish faith. Send my best regards to everyone

who will be there.

Zavie

Cheryl-Anne Simoneau wrote:

> Hello Everyone,

>

> Just back from a lovely vacation on Martha's Vineyard. I think long walks

> on sunny beaches is much better than any drug!

>

> Even though it is summer and we have been swamped with a multitude of

> things, the CML Society has been working hard to firmly establish ourselves

> here in Canada.

>

> We are excited to announce a couple of upcoming activities. Hope you are

> able to join us for some or all of these exciting events.

>

> September 22, 2006 - Light the Night in Montreal - Presented by the Leukemia

> and Lymphoma Society and Bristol Myers Squibb. The CML Society will have a

> tent set up donated to us by the LLS (a value of usually $10,000 worth of

> sponsorship money). The purpose of the tent is to help raise awareness of

> the CML Society as well as CML in general. We do recognize that this date

> falls on Rosh Hashanah. We did not pick this date, and for those of you who

> know me well, know that it is troubling to me that this event is happening

> on a very special day for our Jewish friends. I spoke with Robin Markowitz

> at the LLS and she has prepared a letter which I will send in a separate

> e-mail regarding the holding of this event on this very special day. The

> following day is a Saturday and we will be holding a special meeting of the

> CML Society, we had to pick this date to correspond with the Light the Night

> Event to take advantage of the people who will be traveling to Montreal at

> that time.

>

> Saturday September 23, 2006 - Special fall meeting of the CML Society which

> will most likely include patient representatives from every province in

> Canada who are interested in helping us to establish the CML Society from

> coast to coast. This will be held in Montreal at the Royal

> Hospital

>

> Wednesday September 27, 2006 - Montreal, Royal . Special lunch

> meeting featuring Dr. Francis Giles from MD , Houston Texas. Dr.

> Giles is actually a Canadian, born in Ontario but raised in Dublin Ireland.

> His parents were/are Irish. We hope he speaks to us about his recent work

> on vaccines.

>

> Thursday, September 28th, 2006 - Toronto Ontario, Dr. Francis Giles, as

> mentioned above. Meeting at 4:00 PM or early morning meeting on the same

> day. For everyone in Ontario, please write back to me and let me know your

> preference. Either 4:00 PM or early morning, let's say 8:00 AM.

>

> Please e-mail me to confirm your presence for these events. It is very

> IMPORTANT for you to confirm to me no later than tomorrow evening (August

> 23rd, 2006) your availability for the Montreal and Toronto meetings

> featuring Dr. Francis Giles. We are working with him to firm up his agenda

> and need to do so this week. My deadline is late Wednesday evening.

>

> The Meeting in Montreal will be chaired by Cheryl-Anne and Suzan as well as

> Dr. Pierre Laneuville. The meeting in Toronto will be chaired by Cheryl

> Anne and Dr. Lipton.

>

> French version of this memo will follow later on today.

>

> We are looking forward to an excellent turn out for these events.

>

> Looking forward to seeing you soon.

>

> Sincerely,

> Cheryl-Anne Simoneau,

> President & CEO

> The CML Society of Canada

>

September 4, 2006

Zavie,

No doubt you read the other message that states we have changed our

meeting date. We haven't selected a new date, when we do we will be

happy to advise everyone.

Perhaps you should talk to Robin Markowitz at the LLS, when I

realized she had chosen Rosh Hoshanah as the date for the first ever

LTN event in Montreal, she explained that since she nearly completed

her masters degree in Jewish studies, she felt qualified to tell me

that she didn't see anything wrong with having the event on this

date. She explained that in fact doing a " charitable " act on that

day was considered a good thing. That was the reason we went along

with it in the first place and agreed to hold our meeting around that

date. After speaking with Dr. Lipton, who as you know is the VP

Medical advisory to the CML Society, we thought it best to change the

date.

We can't change the date that the LLS chose - not Bristol Myers

Squibb nor the CML Society - but the CML Society can change the date

of our patient advisory board meeting. When we know the new date,

we'll certainly keep you and everyone else informed.

It is unfortunate that the date the LLS chose for their event

conflicts with an important event of the Jewish calendar. I

personally am less enthusiastic about participating in the event than

I ever was.

Cheers,

Cheryl-Anne

> > Hello Everyone,

> >

> > Just back from a lovely vacation on Martha's Vineyard. I think

long walks

> > on sunny beaches is much better than any drug!

> >

> > Even though it is summer and we have been swamped with a

multitude of

> > things, the CML Society has been working hard to firmly establish

ourselves

> > here in Canada.

> >

> > We are excited to announce a couple of upcoming activities. Hope

you are

> > able to join us for some or all of these exciting events.

> >

> > September 22, 2006 - Light the Night in Montreal - Presented by

the Leukemia

> > and Lymphoma Society and Bristol Myers Squibb. The CML Society

will have a

> > tent set up donated to us by the LLS (a value of usually $10,000

worth of

> > sponsorship money). The purpose of the tent is to help raise

awareness of

> > the CML Society as well as CML in general. We do recognize that

this date

> > falls on Rosh Hashanah. We did not pick this date, and for those

of you who

> > know me well, know that it is troubling to me that this event is

happening

> > on a very special day for our Jewish friends. I spoke with Robin

Markowitz

> > at the LLS and she has prepared a letter which I will send in a

separate

> > e-mail regarding the holding of this event on this very special

day. The

> > following day is a Saturday and we will be holding a special

meeting of the

> > CML Society, we had to pick this date to correspond with the

Light the Night

> > Event to take advantage of the people who will be traveling to

Montreal at

> > that time.

> >

> > Saturday September 23, 2006 - Special fall meeting of the CML

Society which

> > will most likely include patient representatives from every

province in

> > Canada who are interested in helping us to establish the CML

Society from

> > coast to coast. This will be held in Montreal at the Royal

> > Hospital

> >

> > Wednesday September 27, 2006 - Montreal, Royal . Special

lunch

> > meeting featuring Dr. Francis Giles from MD , Houston

Texas. Dr.

> > Giles is actually a Canadian, born in Ontario but raised in

Dublin Ireland.

> > His parents were/are Irish. We hope he speaks to us about his

recent work

> > on vaccines.

> >

> > Thursday, September 28th, 2006 - Toronto Ontario, Dr. Francis

Giles, as

> > mentioned above. Meeting at 4:00 PM or early morning meeting on

the same

> > day. For everyone in Ontario, please write back to me and let me

know your

> > preference. Either 4:00 PM or early morning, let's say 8:00 AM.

> >

> > Please e-mail me to confirm your presence for these events. It

is very

> > IMPORTANT for you to confirm to me no later than tomorrow evening

(August

> > 23rd, 2006) your availability for the Montreal and Toronto

meetings

> > featuring Dr. Francis Giles. We are working with him to firm up

his agenda

> > and need to do so this week. My deadline is late Wednesday

evening.

> >

> > The Meeting in Montreal will be chaired by Cheryl-Anne and Suzan

as well as

> > Dr. Pierre Laneuville. The meeting in Toronto will be chaired by

Cheryl

> > Anne and Dr. Lipton.

> >

> > French version of this memo will follow later on today.

> >

> > We are looking forward to an excellent turn out for these events.

> >

> > Looking forward to seeing you soon.

> >

> > Sincerely,

> > Cheryl-Anne Simoneau,

> > President & CEO

> > The CML Society of Canada

> >

September 4, 2006

Hi I am from London, England and don't often post on this site. However

I would love to know what kind of masters degree Robin is doing. No way

under any auspices is this sort of meeting suitable for Jewish people to

attend on Rosh Hashana. No way at all ever.......

Actually having said that the English group have a get together on

Succot and I will be forced to miss that as well.

Happy and Healthy New Year Zavie and others

BMS trial since March 06

Very very low PCR and finding the drug difficult to tolerate, now down

to 50 mg from 100mg.

Apologies if this is sent more than once having trouble!

Leigh

Home Number: 0208-621-1664

Mobile: 07956 269 368

PLEASE NOTE MY NEW E-MAIL ADDRESS

Re: [ ] Upcoming activities for the CML Society of Canada