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Eeeek!

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Hi all

Not been posting but I have been lurking. Battling with energy

levels at the moment.

Now I feel a bit rattled after a discussion with my oncologist so I

thought I would reach out to the people who know...i.e. you guys!

I had a bone marrow biopsy on Monday this week and preliminary

results indicate that there are still abnormal cells athough the

levels have improved. I don't have the figures yet but I have just

talked to my oncologist who seems to feel that this is an indication

that the Gleevec(400mg) is not working. She seems disinclied to

consider a higher dosage and wants me to go and see the

haemotologist with a view to preparing for Bone Marrow transplant.

I did indicate to her that my contact with other CML patients all

over the world has lead me to understand that there are many steps

which can be tried before the transplant option but she did not seem

convinced. She was at pains to remind me that Gleevec is not

the " be all and end all " and that I needed to be careful about

thinking this way because ultimately I will need to go the

transplant route in any case.

What do you think?

Jane

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