Re: I need to vent....

October 24, 2006

,

If you need to vent this is the place to do it. We are all in the same boat

here and something I learned about 20 years ago is: 'A burden shared is

only half of a burden, a positive shared is twice as good'. I understand about

your need to be strong but more often than not we become bound by that need.

This turns to stress and so on and so on....let it all out here for we all

have the same feelings at times. It is OK!!!!!!!!!

Pat

October 24, 2006

Dont ignore your symptoms, I belive thats the worse thing you can

do. I was 22 years old when I got DX with CML in Nov of 2003. For

me the first year was the worse I even went in to the ememergancy

room a few times for pain. I still get a little tired and some

nausea after taking the meds. I do think i am tired because I am

trying to hold up working full time and I jusy recently got married

in July and we are finally moving into our home, but I never ignore

when I am feeling down. I hope this helps

400mg

DX 2003

>

> I am 23yrs old, dx with CML April 2006 just a few days after my

> son's first birthday. I have had to deal with a lot of medical

> issues since he was born. I got DVTs in both legs while I was

> pregnant, but they weren't discovered untill I was in lobor. I had

> to take blood thiners and was on pain killers for a little over

six

> months. I'm free of blood clots (for now...)and I was able to

enjoy

> Thanksgiving and Christmas that year drug free! But now I am

trying

> to deal with CML. I feel tired all of the time! I think it's a

> little from the Gleevec(400mg)I take and a little from the

> depression I feel. Well I'm not sure if it's depression as much as

> it's frustration. I think I have bad blood or something. I want to

> beat this, but I am afraid that something else life threatening

will

> happen to me! I just want to focus on my son. I lost most of his

> first year because I was over medicated, and so I have been lying

to

> my family and doctor about my pain as to avoid the same thing from

> happening. I try to take over the counter drugs for pain...it

helps

> but the pain comes back before I can take another dose. My doctor

> says that I feel tired because I am a mother of a (almost)2yr old.

> But my husband helps out all of the time, so I don't think that's

> it. I am sorry about the " complaining " I just feel I have to be

> brave for my family so this was all kind of built up for the past

7

> months.

> Thank you for your time and for listening.

>

> in Reno, NV

>

October 24, 2006

.

Sorry to hear about your diagnosis. Just make sure to keep taking the

gleevec. I am not sure what sort of pain medications they had you on, all I

can say is there has to be something you can take that will help the pain

and still enable you to enjoy your son. I am currently on 4 500mg Loritab

7.5 a day. They do not make me overly loopy, and actually help a little with

the fatigue I have. Now of course not everyone reacts to pain medication the

same way. You may not be able to take what I do. It was trial and error for

me. At first they had me on Tylenol 3's and all they did was make me sleep,

and made my nauesa worse. Then my doctor started me on the Loritabs and my

pain is managed very well. I am not trying to push drugs, but you cannot

stay in pain, because that will only make what depression you may have get

worse. I am not sure we have bad blood, but we do have a blood

disorder...hehe.

It is possible that your side effects may subside over time. In my case they

didn't but to many in our group they have so just hang in there. We all are

here for you whenever you feel like venting, so vent away:p

Take care,

Terry

On 10/24/06, taliez2005 <taliez2005@...> wrote:

>

> I am 23yrs old, dx with CML April 2006 just a few days after my

> son's first birthday. I have had to deal with a lot of medical

> issues since he was born. I got DVTs in both legs while I was

> pregnant, but they weren't discovered untill I was in lobor. I had

> to take blood thiners and was on pain killers for a little over six

> months. I'm free of blood clots (for now...)and I was able to enjoy

> Thanksgiving and Christmas that year drug free! But now I am trying

> to deal with CML. I feel tired all of the time! I think it's a

> little from the Gleevec(400mg)I take and a little from the

> depression I feel. Well I'm not sure if it's depression as much as

> it's frustration. I think I have bad blood or something. I want to

> beat this, but I am afraid that something else life threatening will

> happen to me! I just want to focus on my son. I lost most of his

> first year because I was over medicated, and so I have been lying to

> my family and doctor about my pain as to avoid the same thing from

> happening. I try to take over the counter drugs for pain...it helps

> but the pain comes back before I can take another dose. My doctor

> says that I feel tired because I am a mother of a (almost)2yr old.

> But my husband helps out all of the time, so I don't think that's

> it. I am sorry about the " complaining " I just feel I have to be

> brave for my family so this was all kind of built up for the past 7

> months.

> Thank you for your time and for listening.

>

> in Reno, NV

>

October 24, 2006

Hi in Reno, NV

I going to tell you about everything but the CML because that is what I don't

know about because I'm new too.

However, I can tell you that it is alright to vent about your trouble, because

with the CML, I have them to desparetly.

What is DVT, something painful in the leg?

I, myself, can't walk to well and I have pain while walking, and I can't stand

too long because of back pain. When I walk a little I have to sit down and rest

before going on. And, yes I take pain meds. It's only arthritis Tylenol

because the other meds didn't really help. Now as far as I know you can

become really tired with CML because I read it is one of the symptoms. I don't

know about the Gleevec making you tired because I'm not on it, and I've heard

that it does different things, like being tired, to different people.

Now to the depression, for which I'm queen of having that and knowing what

depression does to you. It makes you feel tired. Sometimes, all you can do or

feel like doing is sleep. (I just woke up) You can actually be depressed too

because you can't do the things that you used too, like me and that's part of

it. Sometimes, you can get so low in spirits that you just seem to cry for no

reason, and with no relief. That's depression. Plus, there are many many

things that go along with it.

My first suggestion is go and find someone to talk to about your depression.

I'm on meds for mine and right now I'm ok. I also believe in God and pray.

There is no because of that other than he has brought me from a long way, helped

me in my depression and done so much for me that I now put my trust in him and

have surrendered to him and things get better for me.

I'm sorry that you have all these things going on with you. I know you must

feel close to crazy. I'm been there and done that. And, now I'm waiting on the

true diagnosis of my bone marrow and biopsy. The technician told me last

Wednesday to read all the books about CML which made me think that I had it.

That was some of the beginning of my haywired anxieties, crying spells and

preparing for death. Then God started calming me down and accepting whatever

his Will is. (Let thy Will be done) It goes on further because we live this

life from day to day, sometimes moment to moment because of depression and the

wilds of living, if you know what I mean.

I'm basically telling you that you can learn and to cope and feel better,

whatever the condition and surrounds. If I've done it, you can do it too. I'm

just an old human, while you are younger than me, but human, flesh and blood

nonetheless.

So start smiling in your heart because it will be better. There are scriptures,

I can give you to read and I know you are going to call the doctor today or

tomorrow and find some help for your depression. And so far you husband looks

like he helping you, so that is a good thing. Hopefully, very soon, after

you've done what you have to do, you can enjoy your son. At two years old, it

is just chasing them around and smiling at how they have grown. I have a

daughter, who is 35 years old and I'm still amazed at her accomplishments and

mental growth. She is where I was when I was raising her years ago.

Honey, be blessed.

love you,

Muse

--------------------------------------------------------------------------------

I am 23yrs old, dx with CML April 2006 just a few days after my

son's first birthday. I have had to deal with a lot of medical

issues since he was born. I got DVTs in both legs while I was

pregnant, but they weren't discovered untill I was in lobor. I had

to take blood thiners and was on pain killers for a little over six

months. I'm free of blood clots (for now...)and I was able to enjoy

Thanksgiving and Christmas that year drug free! But now I am trying

to deal with CML. I feel tired all of the time! I think it's a

little from the Gleevec(400mg)I take and a little from the

depression I feel. Well I'm not sure if it's depression as much as

it's frustration. I think I have bad blood or something. I want to

beat this, but I am afraid that something else life threatening will

happen to me! I just want to focus on my son. I lost most of his

first year because I was over medicated, and so I have been lying to

my family and doctor about my pain as to avoid the same thing from

happening. I try to take over the counter drugs for pain...it helps

but the pain comes back before I can take another dose. My doctor

says that I feel tired because I am a mother of a (almost)2yr old.

But my husband helps out all of the time, so I don't think that's

it. I am sorry about the " complaining " I just feel I have to be

brave for my family so this was all kind of built up for the past 7

months.

Thank you for your time and for listening.

Ms. Muse

" I believe that unarmed truth and unconditional love will have final word in

reality. This is why right, temporarily defeated, is stronger than evil

triumphant. "

Luther King, Jr.

October 25, 2006

Hi, . I can't add much to what Ms. Muse and the others have

so eloquently told you, other than to reiterate that you should feel

free to vent away! A lot of us, myself included, suffer from

fatigue due to Gleevec (and/or CML), and I would venture to guess

that probably more of us than not have suffered (or currently

suffer) from some form of depression. (I've been on Wellbutrin

since a little before I took a disability leave from my job back in

April. I'm feeling pretty good now and have been hinting to my

doctor that I'd like to try going off it, but he says that anti-

depressants should generally be taken for at least 9 months to be

therapeutic. So, I guess I won't push it for now.) I'm glad to

hear your husband is there for you. My wife is very supportive of

me, too -- throughout everything, she's been a blessing that I don't

know what I'd do without. Anyway, I hope you begin to feel better

soon. Warmest regards. (Dov)

>

> I am 23yrs old, dx with CML April 2006 just a few days after my

> son's first birthday. I have had to deal with a lot of medical

> issues since he was born. I got DVTs in both legs while I was

> pregnant, but they weren't discovered untill I was in lobor. I had

> to take blood thiners and was on pain killers for a little over

six

> months. I'm free of blood clots (for now...)and I was able to

enjoy

> Thanksgiving and Christmas that year drug free! But now I am

trying

> to deal with CML. I feel tired all of the time! I think it's a

> little from the Gleevec(400mg)I take and a little from the

> depression I feel. Well I'm not sure if it's depression as much as

> it's frustration. I think I have bad blood or something. I want to

> beat this, but I am afraid that something else life threatening

will

> happen to me! I just want to focus on my son. I lost most of his

> first year because I was over medicated, and so I have been lying

to

> my family and doctor about my pain as to avoid the same thing from

> happening. I try to take over the counter drugs for pain...it

helps

> but the pain comes back before I can take another dose. My doctor

> says that I feel tired because I am a mother of a (almost)2yr old.

> But my husband helps out all of the time, so I don't think that's

> it. I am sorry about the " complaining " I just feel I have to be

> brave for my family so this was all kind of built up for the past

7

> months.

> Thank you for your time and for listening.

>

> in Reno, NV

>

October 25, 2006

Thank you for your kind words...I pray often and I know all things happen for a

reason. I have a Dr. Apt next week to try out an antidepressant or two. A DVT is

a blood clot. Deep Vein Thrombosis. Here is a link if you feel like reading up

on it. http://www.webmd.com/hw/heart_disease/aa68137.asp

Thanks again,

in Reno

muse_dwr <muse_dwr@...> wrote:

Hi in Reno, NV

I going to tell you about everything but the CML because that is what I don't

know about because I'm new too.

However, I can tell you that it is alright to vent about your trouble, because

with the CML, I have them to desparetly.

What is DVT, something painful in the leg?

I, myself, can't walk to well and I have pain while walking, and I can't stand

too long because of back pain. When I walk a little I have to sit down and rest

before going on. And, yes I take pain meds. It's only arthritis Tylenol because

the other meds didn't really help. Now as far as I know you can become really

tired with CML because I read it is one of the symptoms. I don't know about the

Gleevec making you tired because I'm not on it, and I've heard that it does

different things, like being tired, to different people.

Now to the depression, for which I'm queen of having that and knowing what

depression does to you. It makes you feel tired. Sometimes, all you can do or

feel like doing is sleep. (I just woke up) You can actually be depressed too

because you can't do the things that you used too, like me and that's part of

it. Sometimes, you can get so low in spirits that you just seem to cry for no

reason, and with no relief. That's depression. Plus, there are many many things

that go along with it.

My first suggestion is go and find someone to talk to about your depression. I'm

on meds for mine and right now I'm ok. I also believe in God and pray. There is

no because of that other than he has brought me from a long way, helped me in my

depression and done so much for me that I now put my trust in him and have

surrendered to him and things get better for me.

I'm sorry that you have all these things going on with you. I know you must feel

close to crazy. I'm been there and done that. And, now I'm waiting on the true

diagnosis of my bone marrow and biopsy. The technician told me last Wednesday to

read all the books about CML which made me think that I had it. That was some of

the beginning of my haywired anxieties, crying spells and preparing for death.

Then God started calming me down and accepting whatever his Will is. (Let thy

Will be done) It goes on further because we live this life from day to day,

sometimes moment to moment because of depression and the wilds of living, if you

know what I mean.

I'm basically telling you that you can learn and to cope and feel better,

whatever the condition and surrounds. If I've done it, you can do it too. I'm

just an old human, while you are younger than me, but human, flesh and blood

nonetheless.

So start smiling in your heart because it will be better. There are scriptures,

I can give you to read and I know you are going to call the doctor today or

tomorrow and find some help for your depression. And so far you husband looks

like he helping you, so that is a good thing. Hopefully, very soon, after you've

done what you have to do, you can enjoy your son. At two years old, it is just

chasing them around and smiling at how they have grown. I have a daughter, who

is 35 years old and I'm still amazed at her accomplishments and mental growth.

She is where I was when I was raising her years ago.

Honey, be blessed.

love you,

Muse

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