Re: Re: I need to vent....

[Guest guest]

Hi ,

I saw this post and went to check your Zero Club number. To my surprise

there wasn't one. I checked my old emails and there was one from you

that was flagged. I never took action, so now I will. I will use the old

post and shout out your Zero Club number.

Congratulations on the marriage.

Also, I wouldn't rule out ever getting pregnant. If you do achieve PCRU

at some point, then you could go ahead and have a baby. Check out 's

blog at http://www.glamour.com/lifestyle/blogs/editor

Zavie

Zavie (age 68)

67 Shoreham Avenue

Ottawa, Canada, dxd AUG/99

INF OCT/99 to FEB/00, CHF

No meds FEB/00 to JAN/01

Gleevec since MAR/27/01 (400 mg)

CCR SEP/01. #102 in Zero Club

PCRU 5/02 at RVH

2.8 log reduction Sep/05

3.0 log reduction Jan/06

e-mail: zmiller@...

Tel: 613-726-1117

Fax: 309-296-0807

Cell: 613-202-0204

ID: zaviem

[ ] Re: I need to vent....

Dont ignore your symptoms, I belive thats the worse thing you can

do. I was 22 years old when I got DX with CML in Nov of 2003. For

me the first year was the worse I even went in to the ememergancy

room a few times for pain. I still get a little tired and some

nausea after taking the meds. I do think i am tired because I am

trying to hold up working full time and I jusy recently got married

in July and we are finally moving into our home, but I never ignore

when I am feeling down. I hope this helps

400mg

DX 2003

>

> I am 23yrs old, dx with CML April 2006 just a few days after my

> son's first birthday. I have had to deal with a lot of medical

> issues since he was born. I got DVTs in both legs while I was

> pregnant, but they weren't discovered untill I was in lobor. I had

> to take blood thiners and was on pain killers for a little over

six

> months. I'm free of blood clots (for now...)and I was able to

enjoy

> Thanksgiving and Christmas that year drug free! But now I am

trying

> to deal with CML. I feel tired all of the time! I think it's a

> little from the Gleevec(400mg)I take and a little from the

> depression I feel. Well I'm not sure if it's depression as much as

> it's frustration. I think I have bad blood or something. I want to

> beat this, but I am afraid that something else life threatening

will

> happen to me! I just want to focus on my son. I lost most of his

> first year because I was over medicated, and so I have been lying

to

> my family and doctor about my pain as to avoid the same thing from

> happening. I try to take over the counter drugs for pain...it

helps

> but the pain comes back before I can take another dose. My doctor

> says that I feel tired because I am a mother of a (almost)2yr old.

> But my husband helps out all of the time, so I don't think that's

> it. I am sorry about the " complaining " I just feel I have to be

> brave for my family so this was all kind of built up for the past

7

> months.

> Thank you for your time and for listening.

>

> in Reno, NV

>