Introduction and questions

June 9, 2006

Hello to all:

My name is Ann Long . I'm a 36 year old ,married mom of 3 . I live in

East Tennessee .

I was diagnosed with CML July of last year . and was put on 400mg of Gleevec.

And I'm already in remission . My fish test has been negative for the past six

months .

The problem that I have been having is what I read on websites on surivial

rates . Which worries me greatly, Since I have three kids. (a step daughter 21,

a daughter 20 and a son 8 ) . I get so depressed and discourage about the future

.. I want to return to school . I start to move and go forward and then the

doubts creep in . DO you guys feel the same way some time and how do you

re-train your brain to think otherwise?

Thanks for listening and I look forward to getting to know any of you .

Blessings !

Ann in TN

__________________________________________________

June 9, 2006

Ann,

The survival rates for many of us with CML are now in the decades. Dr. Mauro

from OHSU told me at my last visit, that I would probably live another 30 years.

(I am now 55.) I will be seeing him onMonday of next week, and I will talk to

him again about longgevity again. I have had CML for almost 7 years now! I have

since gone back to work full time. I have just driven from Kansas City to

Bremerton, WA with my 2 sons and daughter in law. I have been helping them

paint their house for the past 4 days. I hope that you do go vack to school

and try to get on with things in your life and enjoy your children.

Ann Long <etnmom3@...> wrote:

Hello to all:

My name is Ann Long . I'm a 36 year old ,married mom of 3 . I live in East

Tennessee .

I was diagnosed with CML July of last year . and was put on 400mg of Gleevec.

And I'm already in remission . My fish test has been negative for the past six

months .

The problem that I have been having is what I read on websites on surivial rates

.. Which worries me greatly, Since I have three kids. (a step daughter 21, a

daughter 20 and a son 8 ) . I get so depressed and discourage about the future .

I want to return to school . I start to move and go forward and then the doubts

creep in . DO you guys feel the same way some time and how do you re-train your

brain to think otherwise?

Thanks for listening and I look forward to getting to know any of you .

Blessings !

Ann in TN

__________________________________________________

October 25, 2006

O!!! YIPPEEE!!!

Number 1011 in the Zero Club

Zavie

[ ] Re: Introduction and questions

>

> Hello to all:

My name is I'm 25 and I was DX in 2003. I was

put on 400mg Gleevec I only hit remission January of this year. It

took me over two years to get in remission but I'm here and hope to

stay. As I was very young when I got DX, I really never thought my

live was over. Even though I postponed getting married I never

called it off, I will be getting married in 7 weeks. I get scared

that one day that the meds will not work, even though some people

say if the meds last 10 years that's a good sign, but I will still

only been 32 at the point, if it were to happen. It really hurts

knowing that I will be married soon and having to be careful,

because I can not conceive. I try not to let this Disease rule my

life, some days are better then others. I hope this helps.

> Blessings !

>

> Ann in TN

>

> __________________________________________________

October 25, 2006

Hi Zavie,

I was wondering if you had me down on your list? I think I remember

receiving an email from you about that but I am not sure if I ever replied

or not? Anyway thanks for always being there for us,

Terry

On 10/24/06, Zavie miller <zmiller@...> wrote:

>

> O!!! YIPPEEE!!!

> Number 1011 in the Zero Club

> Zavie

>

> [ ] Re: Introduction and questions

>

> >

> > Hello to all:

>

> My name is I'm 25 and I was DX in 2003. I was

> put on 400mg Gleevec I only hit remission January of this year. It

> took me over two years to get in remission but I'm here and hope to

> stay. As I was very young when I got DX, I really never thought my

> live was over. Even though I postponed getting married I never

> called it off, I will be getting married in 7 weeks. I get scared

> that one day that the meds will not work, even though some people

> say if the meds last 10 years that's a good sign, but I will still

> only been 32 at the point, if it were to happen. It really hurts

> knowing that I will be married soon and having to be careful,

> because I can not conceive. I try not to let this Disease rule my

> life, some days are better then others. I hope this helps.

>

> > Blessings !

> >

> > Ann in TN

> >

> > __________________________________________________

>

October 25, 2006

Hi Terry,

Yes, you are # 961 in the Zero Club.

I did send you a small questionnaire, and I will send it again.

Zavie

Zavie (age 68)

67 Shoreham Avenue

Ottawa, Canada, dxd AUG/99

INF OCT/99 to FEB/00, CHF

No meds FEB/00 to JAN/01

Gleevec since MAR/27/01 (400 mg)

CCR SEP/01. #102 in Zero Club

PCRU 5/02 at RVH

2.8 log reduction Sep/05

3.0 log reduction Jan/06

e-mail: zmiller@...

Tel: 613-726-1117

Fax: 309-296-0807

Cell: 613-202-0204

ID: zaviem