RE: Dane T

[Guest guest]

dane714@... wrote:

Update 3/4/06

I know that this is something of and Anti-BMT list these days, but here is

an update for those who may be interested.

Best wishes, Dane Tessler

Hi Dane, I am so glad to see your post. I kinda thought you forgot about

us:)

Actually I check your caringbridge site often to make sure your doing well.

I am sorry to hear about the GVHD but also glad to know that it can help.

I think everyone is probably shaking their heads wondering why you would say

this is an anti BMT group?

As you know from previous experince we are using the Gleevec, AMN, BMS

rather than the BMT first line option. Personally speaking, I would like to

keep the BMT option for last. And even as a last resort option, there will

be those who may still have to resort back to Gleevec, AMN or BMS.

I have been particpating on these list for almost 5 1/2 years now and I am

sure you too rememeber that what we've learned is that most members not only

opt for the drugs before BMT just because their scared, there are also many

other important factors for each individual.

One in particular reason I am sure you may remember is that most of us don't

have the sibling match option. Some have no match at all.

Most who do, usually take the BMT route as we all know the success rate is

much higher versus an unrelated BMT.

Then there are other things to consider like insurance, finances or better

yet who will take care of me? Yes it's true some people don't have a family

member or a loved on that can be there to provide that strong support system

required for BMT patients. Maybe its who will care for my children even if I

do have someone to be there for me? Or what if I don't make it and I have

children is there any one other than the State to care for them. These

reasons may not be real for many but sadly they are for some. And of cours

the list of reasons go on and on which is why so many people don't take the

BMT opton as front line therapy. How about the fact that the best specialist

in the world when possible recommend the drugs first?

And then we have the best excuse that I can think of...

The one that motivates me daily and will motivate me to move to the next

phase of drugs if and when that's ever neccesary: I hope that the drugs I

take today can save a life tomorrow...

We miss your post Dan, you were always a very strong supporter on all the

list and I for one hope the reason you haven't posted isn't because you

think this is a anti- BMT list? If that's the case I will pray for the one

who started that rumor.

And my prayers are always with you as you continue on your journey.

ez