Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 Hi all, got home today after a 7 to 8 hour drive. I had my biopsy yesterday and started my new BMS drug in the afternoon. Im on 100mg daily and so far..ive had just a slight headache. fingers cross it wont be anymore than that..I know its only early days...but so far looking good. Having blood test in adelaide on 22nd so will know more whats happending...then. Have a great weekend and will keep you posted. Susie Leech Dx Nov 2002 started BMS 8th March 2006 # 675 Zero Club Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2009 Report Share Posted July 23, 2009 So good to hear from you, dear friend. Take good care of yourself. Love, Gay On Jul 23, 2009, at 4:27 PM, Lottie Duthu wrote: > To everyone who called and wrote, I thank you for your thoughts and > prayers. I just wanted to stop in for a brief visit, as back pain > prevents me from sitting at my computer for very long. I can see > some improvement in my GI condition. Though no doctor has confirmed > it, I believe it is side effects from the pain meds, Darvon and > Darvon-n. Living with nausea 24/7 is something I never thought I > would experience, but it was full blown. I lost 25# in the process > and now am living with anoxeria of some sort. > > Clinic day at MDACC was an all day affair and there was standing > room only. There was a gentleman who was being held up against the > wall by his daughter, so I called for the nurse to tend to him and > he ran and got a wheel chair. I brought one upstairs with me, so I > didn't have to stand, but Jimmy and some others did. When I left > there was only one patient who was unseen. > The BMA went fine, no problem - #47. They are shorthanded in every > department because there is a money shortage and they are laying off > people. > > Bobby and the rest of you on the Ariad trial, you will be amused at > this. The doctor wants me to get into the Ariad trial. He said it > was new and he called the nurse to put my name in for it, totally > unaware that I had knowledge of it. I couldn't muffle my laughter > and told him I already was in contact with several people who were > in it. Anyway, he underestimates the power of support groups. I wish > you all the best of luck with it, because I may be joining you soon. > LOL. On the other hand, do I really think I want to go through the > preliminaries of yet another trial? That's going to be a balancing > act. > > If you would like a " My CML Tracker " , you can go to this website for > forms to keep your records in and other information about CML, here > is the website to visit: > http://www.leukemia-lymphoma.org/attachments/National/ > br_1201703397.pdf > > Good to be back and again, many thanks for all your support, > Lottie > > Quote Link to comment Share on other sites More sharing options...
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