Guest guest Posted May 4, 2006 Report Share Posted May 4, 2006 Hello and Cammy, It seems to me that you are both rather young to be having these kind of troubles. I would also suspect that the common denominator here for both of you is the fact that you both are being treated with IM for CML. This leads me to my question - have either of you been told what is causing this problem? Is this another " rare " side effect of Gleevec? What do we know about this? Your replies would be gratefully appreciated. , good luck with your marathon. Cheers and brightest blessings, Cheryl-Anne > > Hi Cammy, > > Isn't it fun?! > > Seriously, I know it's not. I am taking warfarin (Coumadin) as a result > of multiple clots in both of my lungs just under a year ago now. I > didn't think I was going to live through that episode, so I know how you > feel. > > My INR is still very unstable, often dropping way too low > (subtherapeutic) or way too high (supratherapeutic, as it is right now). > It does take a while for the INR to stabilize, and any little thing you > do, almost, can change it. Consistency in lifestyle and diet is the key > to stablizing the INR. > > If you're interested in chatting more about INRs, warfarin, > interactions, etc., please write to me privately and I can provide you > with some resources and additional information (not really relevant to > this CML list). > > G. > www.cmlsupport.com > www.upstairswindow.org > > > [ ] Warfarin (coumindin) problems > > > Hello everyone, > I have been off for a long time, but still lurk every once in awhile. I > am currently on 400 mg of im and 60mg of protonix, a weekly shot of > procrit. Well abouyt 8 weeks ago I was diagnosed with DVT and a PE > (blood clots in the left leg and left lung) I was put in the hospital > for a night and given warfarin and shots of heperin. Well here it is > almost 8 weeks lat4er and my level of warfarin has not gone up to a > theraputic level. I am currently am at 1.4 (sould be between 2.0 and > 3.0). I happened to read the sheet from my pharmacist and #1 on the > list is about IM. I spoke to him and he said that my levels wouled rise > quickly and that there was a possibility that that I would get toxic. > Well not here. I am currently up to 15 mg 3 days a week and 10 the > other days. It has not leveled off. The Anti-Coagulation clinic is > faxing the info to my Onc to see what she says. I am at my whits end. I > am soooooooo tired and still GAINING weight. I have now gained almost > 45 pounds since I was diagnosed. I have been out of work since the 5th > of January, with September being the time I WANT to be back (6 months > on the warfarin-time to get OFF) > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2006 Report Share Posted May 11, 2006 Hi Cheryl, Not ignoring you. I'm in the middle of finals and just swamped. I will get back to you on this when I can collect my data. G. [ ] Warfarin (coumindin) problems > > > Hello everyone, > I have been off for a long time, but still lurk every once in awhile. I > am currently on 400 mg of im and 60mg of protonix, a weekly shot of > procrit. Well abouyt 8 weeks ago I was diagnosed with DVT and a PE > (blood clots in the left leg and left lung) I was put in the hospital > for a night and given warfarin and shots of heperin. Well here it is > almost 8 weeks lat4er and my level of warfarin has not gone up to a > theraputic level. I am currently am at 1.4 (sould be between 2.0 and > 3.0). I happened to read the sheet from my pharmacist and #1 on the > list is about IM. I spoke to him and he said that my levels wouled rise > quickly and that there was a possibility that that I would get toxic. > Well not here. I am currently up to 15 mg 3 days a week and 10 the > other days. It has not leveled off. The Anti-Coagulation clinic is > faxing the info to my Onc to see what she says. I am at my whits end. I > am soooooooo tired and still GAINING weight. I have now gained almost > 45 pounds since I was diagnosed. I have been out of work since the 5th > of January, with September being the time I WANT to be back (6 months > on the warfarin-time to get OFF) > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.