Guest guest Posted July 24, 2006 Report Share Posted July 24, 2006 > Hello everyone, I've just joined the group and have been on Gleevec > for 6 years. We can't add " worry " to our list of problems as that can > be harmful and stressful too. It will be interesting to see what our > own Dr's have to say when we talk to them. Ollie *********************************** Welcome to the group Ollie. With 6 years under your belt, I wonder if you were in the phase I or II trials of Gleevec and how you're doing now. We'd love to hear more about you if you feel like sharing. Take care, Tracey dx Jan 2002 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2006 Report Share Posted July 24, 2006 , How nice to hear from you, thank you for writing. I'm in total remission with no signs of CML according to my Dr. He was so happy and was telling everyone " my patient has no signs of CML " but said I still have to continue taking Gleevec. I feel great, am 68 yrs old still going strong. I will ask him all about this next month when I see him. I'm interested to know what your Dr's have to say as well. I don't think we should be too alarmed right now as I'm sure they will work very hard to " fix " this. I do have severe leg pain at times but my my Dr. said to take Aleve which doesn't help much. Are any of you on pain meds and if so what are they. I will suggest it to my Dr. In 1999 I was told that I had 3 to 5 yrs to live then Gleevec came out and I was one of the first to take it at & White Hospital. They call me the Gleevec poster girl at S & W. Keep in touch, talking about this is good. I've never wanted to talk aout it until now. I have a prayer list that I pray over so if any of you want me to add your name to the list please let me know. I live in Temple, Texas and we have an excellent cancer research center her. I moved here to be with my family after losing my husband but they all died of cancer within 3 years of each other. Mother & Daddy had lung cancer and my sister had a gleoblasthoma brain tumor, not sure of the spelling, and went very fast. I have a son in Calif. and I live with my little baby dachshund. My Health Plan here covers my gleevec so I feel like a hostage here. I haven't checked to see if medicare covers it. Ollie dx Jan. 1999 Tracey <traceyincanada@...> wrote: > Hello everyone, I've just joined the group and have been on Gleevec > for 6 years. We can't add " worry " to our list of problems as that can > be harmful and stressful too. It will be interesting to see what our > own Dr's have to say when we talk to them. Ollie *********************************** Welcome to the group Ollie. With 6 years under your belt, I wonder if you were in the phase I or II trials of Gleevec and how you're doing now. We'd love to hear more about you if you feel like sharing. Take care, Tracey dx Jan 2002 --------------------------------- How low will we go? Check out Messenger’s low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2006 Report Share Posted July 24, 2006 It's so good to hear how well you're doing Ollie, you're an inspiration to us all and quite the Gleevec pioneer. Some members do take pain meds for whatever reason, hopefully they'll share their experience with you. Take care, Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2006 Report Share Posted July 24, 2006 O!!! YIPPEEE!!! Number 991 in the Zero Club Zavie Zavie (age 68) 67 Shoreham Avenue Ottawa, Canada, dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club PCRU 5/02 at RVH 2.8 log reduction Sep/05 3.0 log reduction Jan/06 e-mail: zmiller@... Tel: 613-726-1117 Fax: 309-296-0807 Cell: 613-202-0204 ID: zaviem Re: [ ] Re: welcome Ollie , How nice to hear from you, thank you for writing. I'm in total remission with no signs of CML according to my Dr. He was so happy and was telling everyone " my patient has no signs of CML " but said I still have to continue taking Gleevec. I feel great, am 68 yrs old still going strong. I will ask him all about this next month when I see him. I'm interested to know what your Dr's have to say as well. I don't think we should be too alarmed right now as I'm sure they will work very hard to " fix " this. I do have severe leg pain at times but my my Dr. said to take Aleve which doesn't help much. Are any of you on pain meds and if so what are they. I will suggest it to my Dr. In 1999 I was told that I had 3 to 5 yrs to live then Gleevec came out and I was one of the first to take it at & White Hospital. They call me the Gleevec poster girl at S & W. Keep in touch, talking about this is good. I've never wanted to talk aout it until now. I have a prayer list that I pray over so if any of you want me to add your name to the list please let me know. I live in Temple, Texas and we have an excellent cancer research center her. I moved here to be with my family after losing my husband but they all died of cancer within 3 years of each other. Mother & Daddy had lung cancer and my sister had a gleoblasthoma brain tumor, not sure of the spelling, and went very fast. I have a son in Calif. and I live with my little baby dachshund. My Health Plan here covers my gleevec so I feel like a hostage here. I haven't checked to see if medicare covers it. Ollie dx Jan. 1999 Tracey <traceyincanada@...> wrote: > Hello everyone, I've just joined the group and have been on Gleevec > for 6 years. We can't add " worry " to our list of problems as that can > be harmful and stressful too. It will be interesting to see what our > own Dr's have to say when we talk to them. Ollie *********************************** Welcome to the group Ollie. With 6 years under your belt, I wonder if you were in the phase I or II trials of Gleevec and how you're doing now. We'd love to hear more about you if you feel like sharing. Take care, Tracey dx Jan 2002 --------------------------------- How low will we go? Check out Messenger's low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
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