update!

[Guest guest]

Hello, I just wanted to give an update from my 6 month visit to

MDACC.

I just received a call from Dr. Faderl and my pcr was 0.04 and in

January it was 0.01 which he said was ok and nothing to worry about

at this time. So I guess i will have pcrs that bounce around a bit,

or at least thats all I hope it is. As for side effects some seem

to be getting worse for me. We drove from Houston back to ElDorado

Ks in one day it takes about 10 hours. When we got home I could

hardly walk I felt huge all over but mostly in my legs. It was so

bad that I could hardly get in and out of the bathtub. I took 40mg

of lasix and had to sit in a recliner for quite a few hours. It

actually took about 5 days to really start feeling better. I also

had alot of trouble breathing, just felt short of breath. Also for

me the cramps have gotten worse. I always mention these things to

both of my onc. but neither one ever is able to give me any new

information to manage these problems so I have been trying to do the

best i can. I found some compression socks that I wore home from

the Hospital after having my gallbladder removed and thought that

might help me to wear them when traveling or if I am on my feet more

that usual. So for me the worst side effects are edema, cramps, a

fatigue and sometimes shortness of breath.

I was wondering what the limit is for taking lasix. If your doing

really bad one day from traveling can you take more than one a day?

I have'nt done it yet, but I should have asked when I was there and

forgot. Other than a few problems I feel I am doing great and I

just wanted to give an update.

Blessings to everyone!

Shari from Kansas

dx feb 2003

ccr june 2003

july 17 2006 pcr 0.04