Can anyone assist us with additional information?

[Guest guest]

We have a 21 year old disabled son. He has CP and has some autism, but it is not the primary disability. When we were interviewed for state services 'down the road' he was "denied" because he is mobile. His mobility is challenged by stairs, weather and crowds. He has braces in his shoes but he is not stable. However, he supposedly needs 3 strong disabilities. He qualifies for vision, learning and CP but his mobility, or the perceived mobility supposedly make him ineligible for future aid with regard to housing, etc.

We have challenged this and have a hearing set up next month. Is there anything else we should be aware of?

Thank you all ahead of time for any information you might be able to share.

Our hope is for him to live somewhat independently in the future. He will always need assistance in many areas and we will not always be around. We need to know that he has people he can trust to help him make the best decisions for himself.

[Guest guest]

,

I am not surprised that state refused to help you. After my

daughter ended up in the hospital, I was talking to someone at Little

Friends about getting her services. The woman also had a special

needs child. She told me to get anything, you have to make it sound

like you are close to looking for residential placement! Since Angel

was in the hospital, that put us in crisis mode. When you apply for

services, tell them all the difficulty you are experiencing taking

care of your son.

>

> We have a 21 year old disabled son. He has CP and has some autism,

but it is not the primary disability. When we were interviewed for

state services 'down the road' he was " denied " because he is mobile.

His mobility is challenged by stairs, weather and crowds. He has

braces in his shoes but he is not stable. However, he supposedly

needs 3 strong disabilities. He qualifies for vision, learning and

CP but his mobility, or the perceived mobility supposedly make him

ineligible for future aid with regard to housing, etc.

> We have challenged this and have a hearing set up next month. Is

there anything else we should be aware of?

> Thank you all ahead of time for any information you might be able

to share.

> Our hope is for him to live somewhat independently in the future.

He will always need assistance in many areas and we will not always

be around. We need to know that he has people he can trust to help

him make the best decisions for himself.

>

>

[Guest guest]

I am going to try to clip a definition the state is suppose to use to i-d

developmental disability.

This could help

http://www.dhs.state.il.us/mhdd/dd/DDdefinition.asp

Definition of Developmental Disability

Below is the definition of the term " developmental disability " used by the

Illinois Department of Human Services. Individuals will be assessed using

the parameters listed below.

Only individuals determined to have a developmental disability are eligible

for services within the service system. A person is determined to have a

developmental disability if the person has Mental Retardation or a Related

Condition.

Mental Retardation refers to significantly subaverage general intellectual

functioning existing concurrently with deficits in adaptive behavior and

manifested before the age of 22 years. Significantly subaverage is defined

as an intelligence quotient (IQ) of 70 or below on standardized measures of

intelligence. This upper limit could be extended upward depending on the

reliability of the intelligence test used.

A person with a Related Condition means an individual who has a severe,

chronic disability that meets all of the following conditions:

(a) It is attributable to-

1.. Cerebral palsy or epilepsy; or

2.. Any other condition, other than mental illness, found to be closely

related to mental retardation because this condition results in impairment

of general intellectual functioning or adaptive behavior similar to that of

persons with mental retardation and requires treatment or services similar

to those required for these persons.

( It is manifested before the person reaches age 22.

© It is likely to continue indefinitely.

(d) It results in substantial functional limitations in three or more of the

following areas of major life activity:

1.. Self-care

2.. Understanding and use of language

3.. Learning

4.. Mobility

5.. Self-direction

6.. Capacity for independent living

I am not too excited about the state's use of " retarded " BUT THIS IS WHAT

WE HAVE TO WORK WITH.iS pACT NOT HELPING WITH THIS. YOUR TRANSITION TEACHER

MAY BE ABLE TO HELP WITH SOME OF THE ABILITY DETERMINATIONS. yOU CAN CALL

ME OFF LINE AS WELL. gOOD LUCK, CINDI

[Guest guest]

Most of the other posters here are far more knowledgeable on this subject than I.I do wonder if the mobility issue is a big deal to the folks who turned your son down because you made CP the primary disability. I wonder if you ID'ed him as "multiply disabled" if that wouldn't "weight" the various disabilities equally.There are folks with autism and no mobility problems at all getting SSI and various services.Maybe you'd also wish to recheck the criteria for the services you applied for. There may be different programs where your son would be more qualified for assistance.If I were you, I'd do some of this homework, and then go to the hearing saying, "He was denied because of mobility, but we aren't applying because of his mobility. We're applying because of the constellation of these disabilities, and the difficulties this combination creates for his employability, etc."Best wishes in your quest!

-Gail Colombo <marleney2@...> wrote: We have a 21 year old disabled son. He has CP and has some autism, but it is not the primary disability. When we were interviewed for state services 'down the road' he was "denied" because he is mobile. His mobility is challenged by stairs, weather and crowds. He has braces in his shoes but he is not stable. However, he supposedly needs 3 strong disabilities. He qualifies for vision, learning

and CP but his mobility, or the perceived mobility supposedly make him ineligible for future aid with regard to housing, etc. We have challenged this and have a hearing set up next month. Is there anything else we should be aware of? Thank you all ahead of time for any information you might be able to share. Our hope is for him to live somewhat independently in the future. He will always need assistance in many areas and we will not always be around. We need to know that he has people he can trust to help him make the best decisions for himself.

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