Re: Very disappointed/Tracey

[Guest guest]

>

> I have no intention to intimidate newbies (as I've been accused of

> doing) but I just have to say how very disappointed I am in some

> list members and the posts I've seen.

>

> I posted earlier about how patients should get informed and

realize

> that some doctors don't know everything. I wanted to help

patients

> feel empowered and educated. In response, I was told how terrible

> this was and that members should put their entire trust in their

> doctor and not second guess anything he/she says.

>

> Now I see a list member asking opinions after her doctor suggested

> she should have a BMT and what happens? Some of these very same

> list members who accused me of fear mongering, are telling her to

do

> her research and perhaps not listen to her doctor.

>

> I'm absolutely disgusted at some of what has transpired over the

> last few posts. I had nothing but the best of intentions when I

> wanted members to feel empowered and in control of their lives. I

> wanted them to know that they shouldn't be bullied by any

doctors.

> Judging from the responses I got, it's obvious that I offended

> people in saying this which I find to be more than ridiculous.

>

> I don't want the list to go through any more unnecessary turmoil

> over this utter stupidity so I won't continue this discussion

> further except to say this, Good luck to you all.

>

> Tracey,

I dont wish for enimies Tracey and by far honstly I dont want you as

one I think this has just got out of hand and contex

Im sorry you feel like that Tracey and I know you were refering to

me. I have never ever accused you off bullying newbies..at all.

Nor have i said we cant suggest to people not to have a BMT. All i

did was let Jane know that I too was told cause of my age I should

have a BMT with in two years and I wanted to give her hope that Ive

just gone over my 3rd year. Im not gonna go over it as its repeating

ourselves. I wasnt gonna return post..but once again you say

things..which is as good as accusing me..as well as wanting the last

say...this is what i call and so beit a austrlian slang (richard)

tit for tat.

you can return a post if you wish, as you like the last say but i

wont be returning a post..

THE END

Susie Leech

DX Nov 2002

Currently Off Gleevec

>

[Guest guest]

Hey hey people let's all calm down. I think everybody here posts with

the best interests of managing this disease at heart. I am sorry if

my question caused this cos I understood where everyone was coming

from in their replies. In the end, we all have to make the decisions

that make sense to us and cannot hold people in this group responsible.

We are all facing a scary thing but we are so lucky that so much can

be done for us. All we need to do is keep informed and keep

connected. CML and ego don't seem to be able to live happily together!

On the subject of intimidating newbies...the most intimidating thing

is the use of acronyms - felt like I was swimming in an alphabet soup

for a while. I am slowly beginning to understand some of it and also

feeling more confident about asking the 'dumb' questions as I keep

onfinding that I am not the onlyone who gets consfused.

So...hang in there all of you....I need you!