Aggrivated

[Guest guest]

I've posted a time or two on how I was so freaked out with my counts

not cooperating. I was diagnosed with cml in August 2005 went on

400 mgs of gleevec and since then I have been on and off several

times because my white count and anc were too low. When I go off

the gleevec my platelets always get out of whack. So a couple of

weeks ago I had a nervous breakdown at the docs office over all of

this and the nurses assured me that everything was OK that the med

is just working too well. So my local onc called Mayo in MN and

discussed what was going on with me with the doc that I saw there.

Of course they told him unless my anc got below 1500 not to take me

off the gleevec. So I go back today and my platelets are finally

close to normal range and not over a million like they were and the

doc tells me that he's never had anyone respond like me and he just

can't figure me out that I was " special " to keep taking the med even

though my counts are low and that he was glad that I was going to

Mayo in March. Talk about being aggrivated I felt like he just

doesn't know what to do with me so should I be totally freaked out

again? Then he said something about me having myelofibrosis (a

different type of blood cancer) with the cml. I thought all cml

patients had fibrous tissue??? I fell like I'm in a fog here again

shoud I be freaked out and running scared or what. Thanks for

listening!

Sheila