Re: Thanks Annie

[Guest guest]

Hi Jane

You know that caravan park on the left hand side of the road going

into Stellenbosch? I started that one! Mountain Breeze. I mostly

lived in the Southern Suburbs though. Been here since 94.

is doing great - what a wonderful attitude this 'child' has -

no " siestog " with him! (another form of 'shame')

You can email me directly if you want to chat SAfricanese........ :-)

Love and light

Annie

www.livingwithcml.blogspot.com

www.Roadrunnersusa.blogspot.com

>

>

> Hey Annie

>

> Your statement about the Universe really made me laugh - I am MUCH

> more circumspect now! Whereabouts in CT are you from? We are in

> Somerset West. How long have you been in the States? How's your

> son doing? - he is so young to be dealing with this. Shame!

> Thought the use of that good old South African word will warm your

> heart. For the rest of you - " shame " in South Africa can mean

> anything from " poor thing " to " isn't he cute? " Weird country this.

>

> Regards

>

> Jane

>

> tennese

> >

> > Hello Jane

> >

> > I am sorry about your diagnosis and hope you find a doctor that

be

> > able to help you feel comfortable with your choices about BMT or

> not

> > and help you handle this disease.

> >

> > My 22 year old son was diagnosed with CML in March this year and

> > this board and the

> > http://asia./group/AsianCMLSupportGroup/

> > have been absolutely wonderful! Anjana and Roy and so many

> others

> > are a mine of information and so helpful and kind.

> >

> > Regarding " asking the universe..... " I have learned to be

> > reeeeeaaaallly careful how I word those questions and requests!

LOL

> >

> > We are from CT South Africa and live in Tennesse now.

> > Take care

> > Annie

> > (Mom of )

> > www.livingwithcml.blogspot.com

> > www.roadrunnersusa.blogspot.com

> >

> >

> >

> > >

> > > Hi there

> > >

> > > Been lurking but not posting for a while. Mainly because I

know

> I

> > > have questions but I haven't been sure how to form them. Now

I

> am

> > > feeling really low so I am just gonna take a shot at it. So

> many

> > of

> > > you are so wise, I can only benefit huh?

> > >

> > > During the whole oflast year I was fighting a horrible battle

at

> > > work which looked like it was going to end up in the labour

> court.

> > >

> > > I got really stressed out in November and asked 'the universe'

> to

> > > find a way for me toget out of the situation with a little

money

> > and

> > > without having to go to court. Later that same week, I took

> > myself

> > > off to the doctor to deal with the " stress " symptoms and got

the

> > CML

> > > diagnosis! Bummer.

> > >

> > > Anyway, it now became a possibility to apply for disability

> > benefits

> > > and to leave the organisation that way so I stopped fighting

my

> > > employer and concentrated on fighting the CML.

> > >

> > > The insurers are now suggesting that, because of Gleevec, the

> CML

> > is

> > > not a disability but something more like Diabetes and

therefore

> I

> > am

> > > not disabled. Which, I guess, is probably true except that I

am

> > so

> > > exhausted on the Gleevec that I can hardly do anything!

> > >

> > > I am 47 years old, I have 3 kids and a husband and am under

> > pressure

> > > to go full steam ahead for a BMT. My gut is shrieking " NO "

but

> > the

> > > doctors are really keen to try it. I do not have a sibling

> match.

> > >

> > > I really need to talk with a CML specialist because the more I

> see

> > > of my oncologist, the more I understand that her knowledge is

> > > shallow. Also, she just doesn't have the skill to help me

make

> my

> > > case.

> > >

> > > I live in South Africa and, to my knowledge, we don't have any

> CML

> > > specialists here (unless one of you knows better) so I was

> > wondering

> > > if any of the amazing docs that you all talk about would be

> > willing

> > > to enter into an email conversation with me.

> > >

> > > There is a chance that I may get the opportunity to travel to

> > > England in September - are there any really good specialists

> there?

> > >

> > > Another strange thing - a close friend and work colleague who

> has

> > > also gone through the kind of work stress that I did and is

also

> > > fighting a legal battle has also been diagnosed with CML - do

> you

> > > think that is at all significant?

> > >

> > > I will be interested to hear your responses

> > >

> > > Regards

> > >

> > > Jane

> > >

> >

>