Guest guest Posted May 21, 2006 Report Share Posted May 21, 2006 At 05:11 AM 5/21/06 -0700, you wrote: > My common sense tells me that they use bone marrow in diagnosing our > disease, and we have some bone pain(hmmm). I know that my pain level has > increased in the 3 years I have been a survivor(hmmm). Our immune system, > bone marrow, and blood are all involved(hmmm); but my Oncologist, & 3 > Ortho Surgeons say that they aren't related. Go figure. . . Hi " K " and others, On my last visit with Dr. Druker, I showed him the abstract about the bone issue with Gleevec. He looked at it briefly, was aware of it and said that the way the study was done was not very scientific....that just because 2 things happen, in an aging population, it does not mean that one causes the other. That said....he did say that when you have CML, your bone x-rays will not be normal....this is before treatment and while on treatment. So, when an orthopedist sees something on x-ray and is concerned....it may really be a normal CML x-ray. I know from others who write on various lists that they have had doctors concerned about X-rays (looking like cysts or tumors or ???) and have been told by Dr. Talpaz that it is nothing....so he is saying the same thing. So if you have something like shoulder pain and see an orthopedist who takes an X-ray and expresses some concern.....it is best to have a CML specialist look at the X-ray (it may just be a 'normal' CML abnormality). Maui Nanc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2006 Report Share Posted May 24, 2006 My mum is having shoulder pain, too. But , what kind of abnormality they see in X rays?? http://spaces.msn.com/anabu36spain/ [ ] about bone pain and IM At 05:11 AM 5/21/06 -0700, you wrote: > My common sense tells me that they use bone marrow in diagnosing our > disease, and we have some bone pain(hmmm). I know that my pain level has > increased in the 3 years I have been a survivor(hmmm). Our immune system, > bone marrow, and blood are all involved(hmmm); but my Oncologist, & 3 > Ortho Surgeons say that they aren't related. Go figure. . . Hi " K " and others, On my last visit with Dr. Druker, I showed him the abstract about the bone issue with Gleevec. He looked at it briefly, was aware of it and said that the way the study was done was not very scientific....that just because 2 things happen, in an aging population, it does not mean that one causes the other. That said....he did say that when you have CML, your bone x-rays will not be normal....this is before treatment and while on treatment. So, when an orthopedist sees something on x-ray and is concerned....it may really be a normal CML x-ray. I know from others who write on various lists that they have had doctors concerned about X-rays (looking like cysts or tumors or ???) and have been told by Dr. Talpaz that it is nothing....so he is saying the same thing. So if you have something like shoulder pain and see an orthopedist who takes an X-ray and expresses some concern.....it is best to have a CML specialist look at the X-ray (it may just be a 'normal' CML abnormality). Maui Nanc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2006 Report Share Posted May 25, 2006 At 08:47 PM 5/24/06 +0200, you wrote: >My mum is having shoulder pain, too. But , what kind of abnormality they >see in X rays?? Many folks on IM and BMS have had joint and muscle pains, esp shoulder. I would treat it with heat (or ice) and maybe an anti-inflammatory, like Aleve. Dr. Druker just said that the x-rays do not look normal because of changes in the marrow from CML.........sometimes it can look like a cyst or a tumor and be nothing. With most shoulder pain, the x-ray would be normal and no show anything...it usually involves tendons, muscles, bursa, etc....which don't show anything on x-ray. C. ><http://spaces.msn.com/anabu36spain/>http://spaces.msn.com/anabu36spain/ > > [ ] about bone pain and IM > > > At 05:11 AM 5/21/06 -0700, you wrote: > > My common sense tells me that they use bone marrow in diagnosing our > > disease, and we have some bone pain(hmmm). I know that my pain level has > > increased in the 3 years I have been a survivor(hmmm). Our immune > system, > > bone marrow, and blood are all involved(hmmm); but my Oncologist, & 3 > > Ortho Surgeons say that they aren't related. Go figure. . . > > > Hi " K " and others, > > On my last visit with Dr. Druker, I showed him the abstract about the bone > issue with Gleevec. He looked at it briefly, was aware of it and said that > the way the study was done was not very scientific....that just because 2 > things happen, in an aging population, it does not mean that one causes > the > other. > > That said....he did say that when you have CML, your bone x-rays will not > be normal....this is before treatment and while on treatment. So, when an > orthopedist sees something on x-ray and is concerned....it may really be a > normal CML x-ray. I know from others who write on various lists that they > have had doctors concerned about X-rays (looking like cysts or tumors or > ???) and have been told by Dr. Talpaz that it is nothing....so he is > saying > the same thing. So if you have something like shoulder pain and see an > orthopedist who takes an X-ray and expresses some concern.....it is > best to > have a CML specialist look at the X-ray (it may just be a 'normal' CML > abnormality). > > Maui Nanc > > > > > Quote Link to comment Share on other sites More sharing options...
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