Mom needs transplant

[Guest guest]

Hi,

My mom was diagnosed with Pre-B Cell ALL, a highly aggressive type

of leukemia. Motivated to raise funds to save my mother's life, I

have embarked upon a journey to collect a thousand cancer survivor

stories to inspire people like my mother, my family and many other

cancer inflicted families around the world.

I have created a website to raise money to pay for my mom's medical

bills. The address is http://www.mymomhascancer.com

I have belief in not only her survival but I believe that friends

and strangers alike will be willing to make this a personal battle

for themselves. I have challenged my mom to keep on fighting and I'm

challenging myself to make sure I don't let her down. All I need is

for all of you to take on this challenge and see how great a

community can be. Are you willing to accept the challenge?

Shabbi

>

> Hello

> I am soooo thankful for all of you that ran/walked that marathon

and

> half marathon! My 22 year old son, has CML and through

doing

> this you all have a direct hand in his future, in his life! Thank

> you so very much.

> We will be in Alaska on a fundraiser for the LLS in August this

> year, Fairbanks and Anchorage. Hopefully we will be able to raise

a

> meaningful amount of money in our efforts too.

> If any of you want your name written on the rv for the journey,

send

> me an email and ride with us You can see what the rv will look

like

> by going to www.livingwithcml.blogspot.com

> , I hope you PCR goes negative really soon and all your

> counts settle down. My son just got the results from his 2nd pcr -

> 0.028! Hopefully he next one will show even better results :-)

> I loved your www.upstairswindow.org site

> Again, deep thanks.

> Love

> Annie - mom of

> www.livingwithcml.blogspot.com

>

> >

> > Hi all,

> >

> > For those of you who are interested, I just wanted to let you

know

> that

> > the Leukemia Society's Team in Training groups (from across the

> US) that

> > ran in the Anchorage marathon and half-marathon last week raised

> more

> > than $4 million, collectively, for the LLS! That money goes to

> patient

> > services and treatment research.

> >

> > I personally ran the half-marathon and am happy with how I did,

all

> > things considered. I got a nasty case of food poisoning right

> after I

> > arrived in Alaska (I'm thinking from the airplane deli

sandwich),

> but

> > thankfully I had two days before the race to recover. So

although I

> > wasn't in best form, I did have a good time. Anyone else here

who

> was in

> > Alaska for the TNT races?

> >

> > I'm doing OK overall. My PCR remains positive, but I can live

with

> that.

> > Unfortunately, I've had to switch to daily heparin injections

and

> stop

> > taking the warfarin pill because my INR refused to stabilize --

it

> was

> > just all over the place. So, I'm back to daily jabs, sort of

like

> my old

> > interferon days. :-) My stomach is a mass of bruises thanks to

> the

> > anticoagulants, but at least they're not painful. I'd be

> interested in

> > hearing how others taking both Gleevec and warfarin (Coumadin)

are

> doing

> > (Zavie -- I know you're doing OK). The good doctors at OHSU told

> me a

> > few weeks back that the interaction between these two drugs can

> cause

> > unpredictable swings in INR, and that's indeed what was

happening

> to me,

> > and that can be a bit dangerous. The question that remains to be

> > answered is whether the warfarin changes the blood levels of

> Gleevec.

> > Apparently that is a possibility, but without monitoring of

Gleevec

> > blood levels, we won't know for sure.

> >

> > Novartis has become very interested in my case because of my

> unexplained

> > deep vein thrombosis and pulmonary emboli and managed to track

me

> down

> > both by phone and email. They've requested a copy of my records

> and to

> > speak to my current hematologist. I did talk to a pharmacist and

a

> > safety specialist at Novartis. They told me that they have had

> reports

> > of thrombosis in Gleevec patients, but they claimed that they

did

> not

> > keep statistics on how many incidents there have been (which I

> find hard

> > to believe!). The current Gleevec prescribing information has

> listed

> > DVT/PE as a possible but rare adverse event since it was updated

in

> > 2004.

> >

> > I'm sorry that I don't keep in better touch with you all, but I

do

> read

> > your emails and hold you all in my thoughts.

> >

> > G.

> > www.cmlsupport.com

> > www.upstairswindow.org

> >

> >

> >

> >