BONE MARROW TRANSPLANTS vs. GLEEVEC/AMS & BMS/VACCINE/OTHER MEDICATIONS

September 14, 2006

Hey Group: FYI . . .

I have been emailing off list and chatting via phone; sooner or later I am

always asked about BMTs. All of my brother & sister survivors know my opinion

regarding this . . . but here it is again:

At diagnosis, with 15 fatal/terminal diseases. . . all of which I call Chronic

Illnesses. I had 800,000+phillies per Million and was given a morbid mortality

of 2-5 months on 12/18/2003 by the Cancer Center in my area. Side effects. . .

been there/done that. . . and still having them. I spent the children's

inheritance, and lived my lifetime. I'm broke but I AM SURVIVING (hehehehehe).

In fact with our Gold; my 2nd RT-PCR is 0.00136. Thanx God, Dr. Drucker, & my

brother & sister pioneers.

My personal opinion on the BMT, which I was never a candidate; is that it is

being 'tooted' as a Cure by Transplant Doctors and some Hematologists &

Oncologists. Which I don't believe, with BMT survivors relapsing and being put

back on our Gold to survive and GVHD is a KILLER. The statistics aren't in on

the BMTs, I was given +30% die in the first 3 months and +50% die in the first

year. That was for 2003, and in 2005 the same Doctor told me that the rate is up

..05% for 2004. This information is from a Hematologist/Oncologist Doctor at the

cancer center in my area. I know just as the pioneers were there for our gold;

someone has to be a pioneer/guinea

pig for the BMT. I guess I am being selfish because I don't want to lose

another brother or sister who would otherwise be a survivor. The patient I

personally talked too, told me that the 'darn thang' last a total of less than 9

months and she was back living the Gleevec life after surviving GVHD when the

CDC Doctor had told the family that she wouldn't survive and was out-of-pocket

+$90,000.

Dr. Drucker stated at the ASH Conference in December that a newly diagnosed

person has a 25 year median and our bug is truly a Chronic disease (much like

Diabetes). We have our Gold, the AMS & BMS medications, the Vaccine, and other

medications on the horizon.

I urge any brother or sister considering the BMT to research all information

pro and con; your personal family issues, talk to BMT survivors, your

quality/quantity of life, etc. After all is considered, remember the stats

aren't in and we are Surviving on our Gold and the other medications available

pre-BMT.

Take care, I have all in my prayers.

" K "

" I AIN'T FINISHED YET " !!!

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