Guest guest Posted March 14, 2006 Report Share Posted March 14, 2006 Congratulations Zavie! Number 956 in the Zero Club O!!! YIPPEEE!!! Number 956 in the Zero Club Zavie Mar 8 (2 days ago) MD just called to say that I'm a big fat ZERO!!!!!!! They don't know how but we are all very happy. I was originally dx 5 /04 was on Gleevec till 5/05. I was intolerant of the Gleevec and my kidneys were failing. They took me off all drug completely and my kidney's came back to normal.I tried for BMS trials and was rejected. In 8/05 I started the PR! vaccine trail at MD. At that point, I was at 6%. The trial lasted till 12/05. At that point, I was at 25%. They did a BMB 2 weeks ago to see if I had increased to 30% which I needed to qualify for the BMS trial. Result was zero. They are getting in touch with the PR1 vaccine doctor, they think that I had a delayed reaction from the vaccine. They are going to be keeping a close eye on me. I have not taken Gleevec for 10 months now. I'll let you know of any updates. It gives us all hope when something like this happens. So everyone keep me on your prayer list that is the cure for CML Zavie Zavie (age 67) 67 Shoreham Avenue Ottawa, Canada, dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club PCRU 5/02 at RVH 2.8 log reduction Sep/05 3.0 log reduction Jan/06 e-mail: zmiller@... Tel: 613-726-1117 Fax: 309-296-0807 Cell: 613-202-0204 ID: zaviem Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2006 Report Share Posted March 15, 2006 Zavie, When did you start going to MD ? I thought when you came to the states, you went to OHSU. M > > Congratulations Zavie! > Number 956 in the Zero Club > > O!!! YIPPEEE!!! > Number 956 in the Zero Club > Zavie > > > Mar 8 (2 days ago) > > > MD just called to say that I'm a big fat ZERO!!!!!!! They don't know > how but we are all very happy. I was originally dx 5 /04 was on Gleevec till > 5/05. I was intolerant of the Gleevec and my kidneys were failing. They took > me off all drug completely and my kidney's came back to normal.I tried for > BMS trials and was rejected. In 8/05 I started the PR! vaccine trail at > MD. At that point, I was at 6%. The trial lasted till 12/05. At that > point, I was at 25%. They did a BMB 2 weeks ago to see if I had increased to > 30% which I needed to qualify for the BMS trial. Result was zero. They are > getting in touch with the PR1 vaccine doctor, they think that I had a > delayed reaction from the vaccine. They are going to be keeping a close eye > on me. I have not taken Gleevec for 10 months now. I'll let you know of any > updates. It gives us all hope when something like this happens. So everyone > keep me on your prayer list that is the cure for CML > > Zavie > > Zavie (age 67) > 67 Shoreham Avenue > Ottawa, Canada, dxd AUG/99 > INF OCT/99 to FEB/00, CHF > No meds FEB/00 to JAN/01 > Gleevec since MAR/27/01 (400 mg) > CCR SEP/01. #102 in Zero Club > PCRU 5/02 at RVH > 2.8 log reduction Sep/05 > 3.0 log reduction Jan/06 > e-mail: zmiller@... > Tel: 613-726-1117 > Fax: 309-296-0807 > Cell: 613-202-0204 > ID: zaviem > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 I think Zavie was posting that for someone else. Zavie was diagnosed before 2004....and has been at ZERO for a while now! > > > > Congratulations Zavie! > > Number 956 in the Zero Club > > > > O!!! YIPPEEE!!! > > Number 956 in the Zero Club > > Zavie > > > > > > Mar 8 (2 days ago) > > > > > > MD just called to say that I'm a big fat ZERO!!!!!!! > They don't know > > how but we are all very happy. I was originally dx 5 /04 was on > Gleevec till > > 5/05. I was intolerant of the Gleevec and my kidneys were > failing. They took > > me off all drug completely and my kidney's came back to normal.I > tried for > > BMS trials and was rejected. In 8/05 I started the PR! vaccine > trail at > > MD. At that point, I was at 6%. The trial lasted till > 12/05. At that > > point, I was at 25%. They did a BMB 2 weeks ago to see if I had > increased to > > 30% which I needed to qualify for the BMS trial. Result was > zero. They are > > getting in touch with the PR1 vaccine doctor, they think that I > had a > > delayed reaction from the vaccine. They are going to be keeping > a close eye > > on me. I have not taken Gleevec for 10 months now. I'll let you > know of any > > updates. It gives us all hope when something like this happens. > So everyone > > keep me on your prayer list that is the cure for CML > > > > Zavie > > > > Zavie (age 67) > > 67 Shoreham Avenue > > Ottawa, Canada, dxd AUG/99 > > INF OCT/99 to FEB/00, CHF > > No meds FEB/00 to JAN/01 > > Gleevec since MAR/27/01 (400 mg) > > CCR SEP/01. #102 in Zero Club > > PCRU 5/02 at RVH > > 2.8 log reduction Sep/05 > > 3.0 log reduction Jan/06 > > e-mail: zmiller@ > > Tel: 613-726-1117 > > Fax: 309-296-0807 > > Cell: 613-202-0204 > > ID: zaviem > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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