Re: Joint and muscle pain

[Guest guest]

Barbara,

Yes I have joint and muscle pain, have been on Gleevec since 2001. My

oncologist said it's one of the side affects. I know how you feel, don't feel

bad about taking anything for pain. It's just one of those " thorns in the side "

that we have to deal with.

Hugs,

Ollie Odaka

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[Guest guest]

I'm not sure which it's from but yes it is directly related to the disease

and/or it's treatment. I've had bouts of it from the time my treatment started.

Some weeks I have nothing some weeks I'm in constant pain. I've had the pains

in my legs, thighs, back, feet, wrists, etc. When the pain comes it's

unbearable. My doctor gave me oxycondone for the pain and that works. I take

it sparingly when I can't bear the pain.

Good luck!

:{

[ ] Joint and muscle pain

Has anyone had problems with extreme pain in the joints and muscles? I

used to never take medicine for pain, but noticed in the last month, I

can't sleep for the pains especially in my hips and legs.

Is this the CML or the Gleevec?

Thanks

Barbara

[Guest guest]

Hi , I am very bemused at the moment. Today I didn't take any thyroid med.

i.e. Nature-throid, as I am having a blood test on Wednesday morning so am going

to miss taking it because of blood test results, also I am doing the 24 hour

urine test staring tomorrow so also have to miss taking thyroxine (results going

to Dr.P). What I can't understand, and I hope someone can is that miraculously

I have not had one pain today and have had so much energy that I haven't had for

weeks, I managed to do today things that would normally take me a week to do,

and I was walking everywhere with so much energy and didn't feel tired, no pains

in hips or knees, elbows or finger or toe joints and also I feel a lot happier

and better in myself. I really don't know why this should happen just because I

am not taking the Nature-throid today, only that maybe it doesn't agree with me,

I have been taking it for three weeks and when I look back I know realise that I

have had worse pains in the last three weeks than before. Before that I was

taking out of date Armour and I didn't feel very good either (although I did

take it before it went out of date over a year ago and I was o.k. then, but I

went back onto Levothyroxine because a doctor told me to) then I have been on

LevoT for about a year and didn't feel right, as I mentioned I had one or two

bad incidents where I nearly collapsed in the street as my muscles all seized up

thats why I went back on to Armour (although it was out of date). On Wednesday

after the G.P. blood test I have to go back onto some sort of thyroxin, maybe I

should go back on the LevoT again? I haven't got any alternative at present, I

just wish the old Armour was still available! Soon Dr. P will get my test

results when I send them to the Lab, I'm also doing an adrenal saliva test. I

would be interested in what people think is going on. I will look on the Dr.

Lowe sight too for any insight. Thanks.

In thyroid treatment , jenny stenning <jennystenning@...>

wrote:

Hi green becky,

could still be too muchT4- see http://www.drlowe.com see

if that picture fits you. it takes at least 25 days for any change in T4 dose to

level out so at 3 weeks it could still be a bit early.

> > Hi, I have been taking Nature-Throid for three weeks now and so far there

have been no lessening of the joint and muscle pain that I am experiencing.

> I have tried to increase the dose of Armour or Nature-Throid I feel anxious

and get palpitations and don't feel well so I feel o.k. on 2 grains apart from

the extreme pains in my joints I have no brain fog or memory problems. Can

anyone help. Thanks.

> >