Re: New and just diagnosed with CML, taking Gleevac

July 26, 2006

At 12:24 AM 7/26/06 +0000, you wrote:

>Hey Im new...Im an 18 year old cali girl and was just diagnosed with

>CML 3 weeks ago if anyone has any advice for me it would be greatly

>appreciated.

Hi and Welcome,

I hope that Debbie sees your post.....she has a 19 year old daughter that

was diagnosed about in December and at 6 months on Gleevec she is at a

wonderful level of remission.

Gradually you will learn more and more about CML. Are you having any side

effects from Gleevec? you can ask the list about anything you want. Dr.

Druker who is in Oregon (at OHSU) is a famous CML specialist, he helped

develop Gleevec.....he now tells newly diagnosed that CML can be treated

like a chronic illness. There is not a cure yet (except for a transplant,

which is risky and has other issues to consider)........but we have the

best researchers working on this disease.

Take care,

C. (from Oregon, used to be a cali girl!)

August 26, 2006

Hello My name is and I am 25 years old. I was 22 when I was

DX. I have been on Gleevec it will be 3 years in November. The side

affects on me have not been that bad, I cant complain. You have to

keep looking forward dont look back. I have never stopped planning for

the future. I got married last month. I am still strong, and

hopefully getting stronger. Let me know if I can help you with any

thing else. I am also from Cali. what part are you from?

DX 11/2003

--- In , " downxforxkitxkat " <downxforxkitxkat@...>

wrote:

>

> Hey Im new...Im an 18 year old cali girl and was just diagnosed with

> CML 3 weeks ago if anyone has any advice for me it would be greatly

> appreciated.

>

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