familial cll- Carolyn

[Guest guest]

Several people have raised the issue of familial cll.

My doctor at Dana Farber in Boston is doing a study of

families with more than one member with cll. In

addition to being her patient, I am part of her study

because my brother died after 17 years of an active

life with cll. Because of professional ethics, she can

not contact you, but if your family has more than one

member with our disease, she would be interested in

hearing from you and will respond. I have found being

part of the study has thus far been no problem--all I

have done is fill out a form and given her my DNA. I

believe her work is important for our children and

grandchildren, and I hope that all who are eligible

will take part. Her address is jbrown2@...

Carolyn, age 77, dx 2004,w & w

--- Carolyn Swift <swift_carolyn@...> wrote:

> , Your point is well taken. I realize also that

> by

> the time I ned treatment, my mind may have changed!

> I

> want to thank all of you who wrote to me. All the

> letters were very helpful. Carolyn

>

> --- jb50192@... wrote:

>

> > First, you were not diagnosed so long ago. It may

> be

> > a while before you

> > require anything.

> >

> > Second, there are very mild things that can be

> done,

> > some of the rough

> > stories we hear may never become applicable for

> you.

> >

> >

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

> >

> >