Guest guest Posted January 8, 2006 Report Share Posted January 8, 2006 Carolyn - thanks for that input The medical establishment has not accepted the notion of a familial component in CLL. Personally, I am very convinced of it. My mother had mult myeloma, and two of my great aunts had leukemia. (In those days diagnosis was not so specific.) Since I seem to be a genetic copy of my mother (I have literally everything that she had, physical and psychological) I cannot believe that her myeloma and my CLL are a coincidence. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2006 Report Share Posted January 9, 2006 , I received somewhat different info about the familial component at Dana Farber when Dr. Gribben was there. I was told that since my mother has it (now 86), the chances were greater for me getting it, which became reality and was diagnosed in 12/2001. My concern was for my son and I was told that statistically he has a greater chance than the general population to also develop cll. They also were really excited to have blood samples from my mother to look at the similarities. (61). jb50192@... wrote: >Carolyn - thanks for that input > >The medical establishment has not accepted the notion of a familial >component in CLL. > >Personally, I am very convinced of it. > >My mother had mult myeloma, and two of my great aunts had leukemia. (In >those days diagnosis was not so specific.) > >Since I seem to be a genetic copy of my mother (I have literally everything >that she had, physical and psychological) I cannot believe that her myeloma >and my CLL are a coincidence. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2006 Report Share Posted January 12, 2006 I just joined the Dana Farber study too because my mom had it, I have it and I'm worried about my son and nephew. The hospital that biopsied my mom still had the tissue and other than that I understand it just is necessary to fill out a survey and get a blood test. If there is anyone else out there that has a first degree relative with cll/sll please join the study. They are trying to find out which genes are turned off or turned on in people with the genetic component. It may help all of our kids. Carole from Vermont Quote Link to comment Share on other sites More sharing options...
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