Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 At 06:30 PM 3/16/06 +0000, you wrote: > Well, back in August >when diagnosed at Mayo in MN they said that 98% of my cells were >leukemic. When I had a FISH done is Nov. they said that 3.8% were >leukemic. Since then is when I started every other day. I had a >FISH drawn a week ago and now it's showong that 28% of my cells are >leukemic. I am going to Mayo on March 27 and will be having a bmb >done and seeing the doc. I spoke with here on the phone a little >bit ago and she said that she doesn't know if I have failed gleevec >because I haven't been on the normal dosage or if it's just that, >that I haven't been on the proper dosage. Hi Sheila, First, FISH has a margin of error....it is not an exact correct number, there can be false positives. So you don't know exactly how big the chance is, except that it has increased. To me it seems to clearly indicate that the every other day dose of 400mg is not enough and that you have regressed on this dose.....but it does not indicate relapse (to my thinking). Mayo needs to experiment with you a little.....maybe you could take 300mg/day and use a white cell booster shot to keep the white count and ANC up.....many people need to do that. If they seem to be scratching their head about what to do, ask them to consult with Dr. Druker.........but I don't think he would be in favor of an every other day dose. C. Quote Link to comment Share on other sites More sharing options...
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