Guest guest Posted March 21, 2006 Report Share Posted March 21, 2006 Hi everyone, especially Susie and Ursula down under I was just wondering how you were both getting on with BMS. I started 100mg once a day today...... Will let you know how it goes Regards from cold London [ ] Moffitt Hi all, I have been back from Tampa a week after seeing Dr. Bhalla at Moffitt. I liked him very much. He was very knowledgeable and so was his staff. He would like for me to go off 800mg if possible. He thinks that is probably too high for me. But of course first we have to find out all the results from the tests they are running. Fish and PCR. Also I was low on potassium also. They put me on potassium pills. Dr. Bhalla said he attributes that to the Gleevec. I probably will not qualify for a trial right now unless. I have increased on 800mg. I have been waiting for a pcr to come back from Mayo since 2/16. I also have to have another bmb here in Jax, by my onc. Dr. Bhalla will tell him what to look for other translocations etc. This has been a terrible 2 months made worse by the fact I had the flu for 2 weeks. Thank you again and Zavie for the feedluck and support. I was going to call you, but had a friend with me driving and I was recovering from the flu and was generally not good company. I will return to Moffitt in 3 months if all goes well. Oh he also told me BMT was out I am too old. I was a little relieved.If anyone else is going to Moffitt I would love to talk to them. Take care, Joan Porter dxd 7/03 Gleevec 400mg until 1/6 increased to 800 mg. pcr 6.9% Zavie #662 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2006 Report Share Posted March 21, 2006 Joan, I go to Tampa and Moffit Clinic. My doctor is Dr. List. He is the head of the department. In matter of fact my next appointment is April 25th for BMB. All the staff there is a wonderfull team. Good Luck with new Gleevec dosage. T dxd 1/03-400 MG CCR7/03 Pending PCRU Zero club#764 -------------- Original message -------------- From: " cellphonejoan " <joanfporter@...> Hi all, I have been back from Tampa a week after seeing Dr. Bhalla at Moffitt. I liked him very much. He was very knowledgeable and so was his staff. He would like for me to go off 800mg if possible. He thinks that is probably too high for me. But of course first we have to find out all the results from the tests they are running. Fish and PCR. Also I was low on potassium also. They put me on potassium pills. Dr. Bhalla said he attributes that to the Gleevec. I probably will not qualify for a trial right now unless. I have increased on 800mg. I have been waiting for a pcr to come back from Mayo since 2/16. I also have to have another bmb here in Jax, by my onc. Dr. Bhalla will tell him what to look for other translocations etc. This has been a terrible 2 months made worse by the fact I had the flu for 2 weeks. Thank you again and Zavie for the feedluck and support. I was going to call you, but had a friend with me driving and I was recovering from the flu and was generally not good company. I will return to Moffitt in 3 months if all goes well. Oh he also told me BMT was out I am too old. I was a little relieved.If anyone else is going to Moffitt I would love to talk to them. Take care, Joan Porter dxd 7/03 Gleevec 400mg until 1/6 increased to 800 mg. pcr 6.9% Zavie #662 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2006 Report Share Posted March 22, 2006 , I thought I remembered that you did go to Moffitt. I wanted to go to Dr. List, but my Dr. wanted me to go to Dr. Bhalla I think he wanted me to go on a trial if possible. I really liked him a lot. Good Luck in April. Keep me posted. Love, Joan P. dxd 8/03 Gleevec 800mg pcr 6.9% Zavie #662 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2006 Report Share Posted April 5, 2006 Thank you. Good luck for you too. Hope we can meet one time in Tampa. T -------------- Original message -------------- From: " cellphonejoan " <joanfporter@...> , I thought I remembered that you did go to Moffitt. I wanted to go to Dr. List, but my Dr. wanted me to go to Dr. Bhalla I think he wanted me to go on a trial if possible. I really liked him a lot. Good Luck in April. Keep me posted. Love, Joan P. dxd 8/03 Gleevec 800mg pcr 6.9% Zavie #662 Quote Link to comment Share on other sites More sharing options...
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