Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 Hi My name is Rick Abbott and I just discovered this support group. I was diagnosed with CML Feb 16 2004 and having been taking 400 mg gleevec every day since May 2004. I first started in March but after 10 days developed a rash over my whole body so I stopped it for 2 weeks and started back up 100 mg at a time for a week then up to 200 mg etc. So far so good so major rashes just the side effects , tired etc you know them all. My counts are all good and I guess I'm in moloceular remission. I go for regular blood once a month and to Halifax( I live just outside Bridgewater, Nova Scotia, Canada) once every 3 months for BCR=ACL blood work which my doctor is using to track how the gleevec is working and once a year for bone marrow.So far I have been resonding well to it,but like all of us I'm sure we all are wondering how long can we take this medication. I have never taken any medication regularly in my life so it was a big adjustment for me to get in the daily routine. I'm 52 years old and would like to hear from anyone. There are no support groups around here for CML. Thanks Rick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 O!!! YIPPEEE!!! Number 934 in the Zero Club Zavie Hi Rick, Welcome to the club that no one really wants to be a member of. It sounds like you are doing really well and your doctor is doing all the correct tests at the right time. There are a couple of patients from Nova Scotia who participate on our regular chats. You might want join us and compare notes. Zavie I will write you off line. Zavie (age 67) 67 Shoreham Avenue Ottawa, Canada, dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club PCRU 5/02 at RVH 2.8 log reduction Sep/05 e-mail: zmiller@... Tel: 613-726-1117 Fax: 309-296-0807 Cell: 613-202-0204 ID: zaviem [ ] CML Hi My name is Rick Abbott and I just discovered this support group. I was diagnosed with CML Feb 16 2004 and having been taking 400 mg gleevec every day since May 2004. I first started in March but after 10 days developed a rash over my whole body so I stopped it for 2 weeks and started back up 100 mg at a time for a week then up to 200 mg etc. So far so good so major rashes just the side effects , tired etc you know them all. My counts are all good and I guess I'm in moloceular remission. I go for regular blood once a month and to Halifax( I live just outside Bridgewater, Nova Scotia, Canada) once every 3 months for BCR=ACL blood work which my doctor is using to track how the gleevec is working and once a year for bone marrow.So far I have been resonding well to it,but like all of us I'm sure we all are wondering how long can we take this medication. I have never taken any medication regularly in my life so it was a big adjustment for me to get in the daily routine. I'm 52 years old and would like to hear from anyone. There are no support groups around here for CML. Thanks Rick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2006 Report Share Posted January 28, 2006 Welcome Rick I hear ya. The cancer support groups around here center on breast cancers mostly. I was diagnosed in Sept of 2001. Takeing meds every day was odd to me too. I'd take a birth control pill in the mornings but found that I had fewer side-effects on gleevec if I took it at night. They have a few other meds in the works that might be better. Who knows for sure huh? It's great to hear your doing so well. Maybe we'll both catch a Chat session one of these days and we can BS. *hugs* Emy G Quote Link to comment Share on other sites More sharing options...
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