Susie-Remission

[Guest guest]

Hi Susie!

I hope your next round of Gleevec does better for you than in the

past. Crossing my fingers and toes for you! :-)

I think the general public generally thinks of cancer as either

being " cured " or " remission " , so I tell people that my drug, Gleevec,

keeps me in a form of 'remission', but that I need the drug to keep

me stable and to stay alive.

It's hard for people to understand, since it's such a state of the

art drug.

Sincerely, Lynn (Snickersunny)

Dx'd 12/03

PCRU

> >

> >

> > In a message dated 1/30/2006 5:19:59 P.M. Central Standard Time,

> > leechys@b... writes:

> >

> > ..its only now im toxic free..and

> > thats cause I am off Gleevec and have been for two months.

> >

> >

> > Suzie, how is it that you are off Gleevec? My doctor told me I

> would take

> > it until my dying day.

> >

> > I've never been on the high dose - started with 400 mgs daily and

> have

> > stayed there for two and a half years. I've been in remission

for

> most of the

> > time, but the prospect of not taking it at all is very

> interesting. Did you

> > have some other treatment too? I'm too old for transplants.

> >

> > I do have the upset tummy and diahrrea sometimes. Depends on

what

> I take it

> > with. If I take it with Ensure or a yogurt drink I don't get

> sick. If I

> > only take it with water it will do me in very quickly.

> >

> > I just joined the list and will enjoy hearing about all of your

> experiences.

> > in MN

> >

> >

> >