Yesterday's e-mail

[Guest guest]

Hi - yesterday I sent around a copy of an e-mail where I was answering a

request to be allowed to post info on our page regarding the selling of " CLL

embroidered merchandise " , with the proceeds going to research and the like. I

was

asking your opinions.

What I did not realize is that you all did not have a copy of the proposal.

What do you think?

Here it is::

________________________________________________________________

Fundraising Proposal for CLL

Submitted by Debbie Groff

CLL Patient

407-628-3479

407-629-2037 PHAX

dzgroff@...

ACOR

CLLTopics

CureforCLL

SLL/CLL

CLL Alternatives

www.JoeTullman.com

Dear Ladies and Gentleman,

I am writing to all of you today concerning my fund-raising propos

al for CLL research for a cure. Two years ago, I did the CLL tee shirts (in

partnership with Beth Bathe and Mark Cohen) that were so warmly received and

worn with pride by our fellow patients. We raised over $3,000.00 dollars! As you

may recall, each patient was able to donate to the CLL cause of their choice

and I want to extend that offer of giving and benefit our charitable

endeavors.

I am going to do a web site and sell clothing featuring the CLL

logo that we used for the tee shirt design. I plan to sell a wide variety of

clothing products that will be embroidered with that same design. These products

will include hats, polo shirts, tote bags, blankets, sweatshirts etc. I will

maintain the web site, produce the clothing, handle all the shipping and

donate profits from each item sold to the organization of the patient’s

choice.

This is my area of expertise, I have a small company that sells logo’d

clothing

to businesses, and I have been doing this for over 10 years. I have always

wanted to help raise money for CLL and support research. I’ve been inspired by

all of you and your efforts and I know this will be a small but successful way

to help fund the cure for us. The idea really took root when Lise

Rasmussen- wore her tee shirt to USCD one day and Dr. Coutre said, “I

wish all of my

patients wore their diagnosis for their appointments!†With your help and

support, we can show the CLL logo everywhere!

I am seeking your permission to post information about Clothing

for a CLL cure on each of your websites and maintain a permanent link between

them. I would of course, maintain current information about each of your web

sites as well. While I’m new to running a website, I know a lot about

clothing

design and PR. I firmly believe that our efforts as patient advocates, funding

our own research are unique and newsworthy!

Please let me know via phone or email your thoughts on my request

and idea’s! I would like to have the site up and running by November 12th.

A little bit about me: CLL patient since 1999. I am stage 2 with

a dx of SLL/CLL. I am presently in W & W and a new patient at MD ,

Orlando FL. I am also a long-term subscriber on each of your lists.

I know this is a great idea and with your support, Clothing for a

CLL cure can generate a steady stream of donations. It’s truly a win-win

situation for everyone.

I am anxiously awaiting your feed-back!

Cordially,

Debbie Groff