Guest guest Posted June 14, 2006 Report Share Posted June 14, 2006 Hi everyone I would just like to introduce myself. My name is Jo and I have 2 lovely boys - Dylan 4 yrs and Conor 2 yrs. Conor has DS, prosthetic heart valve after 4 operations to repair AVSD, chronic lung disease as he has had pneumonia 4 times, repaired coarctation of aorta and repaired PDA. He also had to have his diagragm plicated after it was damaged in surgery and his ribs re-sutured after his aorta repair. He also got MRSA twice in his wound but managed to fight it off - he is a strong little boy. Conor is the smallest baby to get a prosthetic heart valve at 9lbs. Conor is on oxygen at night and sometimes during the day when he gets chesty and I check his blood at home every few days as he is on warfarin. I am separated from my husband so it can be tough sometimes. Apart from his health problems Conor is a happy little boy who is walking and says a few words. Everybody loves him. He has been to creche 4 times but hasn't been well enough to go more. Its hard for me to decide whether to take him as a simple cold can put him back on o2. It would be nice to hear from anybody with similar problems. Conor is also on MSBPlus vitamin supplement for over a year but it doesn't seem to be helping his immunity at all. Hope to hear from you all. Jo x Quote Link to comment Share on other sites More sharing options...
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