RE: introduction-Trish

[Guest guest]

Trish, Joanne M. in CA has a son who's I believe in

his 30's who I feel would love to talk to you. If I

had a guess, I'd say she may be on this list, and if

not, I know of another list she's on and can give you

that list information, or I can contact her to see if

it's alright to give out her e-mail. I've met her son,

who is one terrific guy. Very active, and I'm sure

Joanne would love to talk to you. I really don't speak

to her anymore, but I can at least jot her an email to

see if I can give her e-mail to you. Just let me know.

I'm glad to see you on this list.

My name is Joy, and I have 2 boys who have Down

Syndrome. They are almost 5 and 4 yrs old and SOOOO

full of life and are great. I wouldn't know what to do

without them:) I didn't experience what many mothers

I've heard have, when their children were born to

them, as our boys are ours by adoption. I have faced

some uncaring " professionals " however who have been

negative, and we don't see them anymore. It's a shame

any parent has to experience that.

I'm glad you're here, and I'm glad to see some

familiar names from other groups I used to belong.

This is going to be so full of information and

support-I'm so happy to be here too. Thanks. Take care

and God Bless,

Joy

--- doihavtasay@... wrote:

> Hi Trish ! I am very GLAD you are here and I bet you

> have LOTS to offer those of us with younger kids.

> :-)

>

> That is so kewl Andy is learning to read!!! How much

> time is your daughter having to spend on the

> lessons?

>

> Tell us how things were when he was born. What is

> you birth story? I was asked if we were going to

> take our home too! She was born in

> 2000... then when she got to the NICU they asked us

> if we wanted just to let her DIE... some things

> take a long time to change.

>

> What did Andy do for school? What does he like to do

> now? And what pitfalls, if any, could you tell us

> about so we could maybe avoid it.

>

> --

> Carol in IL

>

>

>

> --------- Re: introduction

> Hello Kathy. This is Trish whom you met with my son

> Andy at Target some time back. I don't think anyone

> in this group has a DS child my son's age who is 34.

> I hope I can connect with someone with a DS adult

> child because I feel I can be of little help to

> those who have young DS children. I know the road I

> have walked and I know that we continue to help Andy

> accomplish in all he wants to do. I hope you were

> able to contact my Daughter who lives in

> Plymouth. She has been tutoring Andy, as I told you

> before, in his reading. He is doing great and the

> book is: " Teach Your Child To Read In 100 Easy

> Lessons " by Siegfired Engelmann for all you parents

> who want your child to read and may be told like we

> were that they can't. Yes they can! has

> proved with her own Brother just how well our DS

> kids can and do learn to read. I hope to hear back

> from you. Take care. Trish PS Andy's album is on

> the mishawakadownsyndrome sight if anyone cares to

> see it.

>

> Kathy Ratkiewicz <Kathy_R@...> wrote:

> Hi everyone-

> I know many of you from other listservs, and am very

> happy to have you hereJ I have seen names from

> people I haven’t heard from in years, and that is

> very cool, too. It will be nice to catch up with

> what has been happening with all of you.

> For those of you that I haven’t “met”, my name is

> Kathy-my husband, , and I have 7 kids whose ages

> range from 23 yrs to almost 8 yrs. Danny, our

> youngest, has Ds, hypothyroidism, and a repaired AV

> canal heart defect. He is a complete ham, loves

> dressing up, and is a budding practical

> jokester(thanks to intensive training from his

> sibs)

> His website is here:

> http://mypage.iusb.edu/~jratkiew/

> In my other life (B4KIDS;-) I was a pediatrics nurse

> for many years. Even though I had nursing

> experience, when Danny was born, I found that I knew

> virtually nothing about Ds. Certainly nothing very

> encouraging. I listened to the Ds ‘experts’ for

> several months, but basically all they gave me were

> worst case scenario info. When I finally got so

> depressed that I couldn’t stand it anymore, I

> connected with other parents, and that was one of

> the best things that ever happened to me. Instead of

> gloom and doom, I finally found hope. Parents on the

> listservs were incredibly giving of their time in

> their efforts to help me understand the basics of

> Ds……Ginger Houston Ludlam and Romero were

> especially helpful to me in those early days. Once

> we got Danny on the ‘right track’ as far as his

> health went, (nutrivene D and med for his thyroid

> when he was 16 months old made a HUGE difference in

> his health) I decided that I wanted to learn

> everything that I could about Ds so that I could be

> an informed advocate for him. And somewhere along

> the way I turned into an information junkie;-)

> I am very pro-life and strongly believe that the

> right to life should not be tied in to a person’s IQ

> or level of function.

> Thanks for joining us here. I look forward to

> getting to know all of you better.

> KathyR (wife to , and mom to (23)(21)

> (19) (16) (13) Sam (almost 11) and

> Danny(almost 8)

>

>

>

>

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