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,

Can someone send a tape of the show to the states so

we can pass it along? The show sounds like it was

great.

Pam mom to Hannah and ID twins DS. age 5.

and Josh age 19 Dusty age 14.

--- Harper <harper@...> wrote:

> The TV programme starring Carolyn's family has just

> aired in New Zealand and it was great!!

> Two gorgeous little girls in their double pushchair,

> and a wonderful demonstration of the benefits of

> signing, and showing that you can have children with

> DS and have a life.

> The whole programme was very balanced and

> interesting about the very difficult topic of

> pre-natal testing and abortion for abnormalities.

> What stunned me was that all the women who'd

> previously given birth to a baby with special needs

> ultimately decided they couldn't abort a similar

> child.

> This must say a great deal about how much of our

> reaction to children with problems is based on fear

> and imagination, rather than reality.

> All in all a very impressive programme, hope many of

> you get to see it

> (mum of 7 including Lily 11 and Noah 1 with

> DS)

>

__________________________________________________

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Hi All,

I am catching up on all of the messages for the past three weeks...lots

happening--So sorry to hear about Sloan's hospital stay, --what a thing

to have to go through for that precious little girl... and you, too! Hope

all is better, now! It's great to be able to say I know someone famous,

Carolyn and I am excited to spend some time on your new website, soon. Glad

to hear about 's tube being removed and hope all your travels go well,

Kay...We've just returned from 15 days of travel, ourselves...everything went

well for which I am thankful for. We learned that Sara is a great little

river rafter and camper--We could not have taken her too much sooner than

this, but she matured so much in preschool this year--it really helped. It

was very important that she listen to our commands, as you can well imagine

and she did great. The only thing that was hard for her, with her love of

swimming, was when we were on the river in the raft, she could not understand

why she couldn't go swimming in that great big swimming pool! I had lots of

support, as there were four families together, so someone was watching Sara

every second. I must say it is so nice to be home, to have our clothes in

drawers and to feel that Sara is safe on our home turf. Just before we left

on vacation, she was in a ballet recital--we were very proud of her. The day

before the recital, my Mom, was asking her to show her a little of what she

would be doing...all Sara did was turn summersalts (sp). My Mom told me

later she was so afraid that is what she would do the night of the recital,

but she did all the moves very well and she was a little star. I will post a

photo of her in her little mermaid ballet outfit, soon...

Gail, regarding potty-training--Sara still is not potty-trained at 5-l/2--I

am clueless as to what to do, except be patient and as says, when she is

very ready, it will happen quickly, as it did with my two boys. Tara may be

a little girl who trains early--I have heard of it happening with children

who have DS.

Pam, sorry to hear about Hannah's strep--hope she is better, too. I swear

there is a " momma-thing " with children--I've learned that Sara will often let

anyone, but me, give her her medicine, comb her hair, brush her teeth, take a

sliver out of her foot, etc...I'm learning, by trial, ways to take the power

out of the struggle; it's a challenge to stay on top of that with just Sara,

so I can imagine how exhausted you must get with both and Hannah

testing you.

Take care everyone!

Marcia

Mom to Sara (DS) and 5 and Lucas 9

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Hi Marcia

Welcome back from your trip! Sounds like you all had a fabulous time and

the Sara was a little star!!! Can't say my girls would be as well behaved

in a raft! Or listen to commands for that matter!! Well done.

Glad the recital went well....looking forward to seeing a photo of Sara in

her outfit. used to get stage fright in preschool recitals - hard

to believe it now though. Somewhere down the track she turned into a stage

junkie!! LOL.

Carolyn

Mum to on, , Emma (Ds) 4 and Nicki (Ds) 3

www.geocities.com/nz_mom/sykesfamily.html

Re: TV programme

> Hi All,

>

> I am catching up on all of the messages for the past three weeks...lots

> happening--So sorry to hear about Sloan's hospital stay, --what a

thing

> to have to go through for that precious little girl... and you, too! Hope

> all is better, now! It's great to be able to say I know someone famous,

> Carolyn and I am excited to spend some time on your new website, soon.

Glad

> to hear about 's tube being removed and hope all your travels go well,

> Kay...We've just returned from 15 days of travel, ourselves...everything

went

> well for which I am thankful for. We learned that Sara is a great little

> river rafter and camper--We could not have taken her too much sooner than

> this, but she matured so much in preschool this year--it really helped.

It

> was very important that she listen to our commands, as you can well

imagine

> and she did great. The only thing that was hard for her, with her love of

> swimming, was when we were on the river in the raft, she could not

understand

> why she couldn't go swimming in that great big swimming pool! I had lots

of

> support, as there were four families together, so someone was watching

Sara

> every second. I must say it is so nice to be home, to have our clothes in

> drawers and to feel that Sara is safe on our home turf. Just before we

left

> on vacation, she was in a ballet recital--we were very proud of her. The

day

> before the recital, my Mom, was asking her to show her a little of what

she

> would be doing...all Sara did was turn summersalts (sp). My Mom told me

> later she was so afraid that is what she would do the night of the

recital,

> but she did all the moves very well and she was a little star. I will

post a

> photo of her in her little mermaid ballet outfit, soon...

>

> Gail, regarding potty-training--Sara still is not potty-trained at

5-l/2--I

> am clueless as to what to do, except be patient and as says, when she

is

> very ready, it will happen quickly, as it did with my two boys. Tara may

be

> a little girl who trains early--I have heard of it happening with children

> who have DS.

>

> Pam, sorry to hear about Hannah's strep--hope she is better, too. I

swear

> there is a " momma-thing " with children--I've learned that Sara will often

let

> anyone, but me, give her her medicine, comb her hair, brush her teeth,

take a

> sliver out of her foot, etc...I'm learning, by trial, ways to take the

power

> out of the struggle; it's a challenge to stay on top of that with just

Sara,

> so I can imagine how exhausted you must get with both and Hannah

> testing you.

>

> Take care everyone!

>

> Marcia

> Mom to Sara (DS) and 5 and Lucas 9

>

> ------------------------------------------------------------------------

> Visit Ancestry.com for a FREE 14-Day Trial and find your ancestors now.

> Search over 550 million names and trace your family tree today. Click

here:

> 1/6254/2/_/598201/_/963300309/

> ------------------------------------------------------------------------

>

> http://DSyndrome.com/Multiples

>

>

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  • 2 years later...
  • 1 year later...

...

There were two surgeries, both were first time scoliosis surgeries

(one with growth rods and one with standard universal system rods).

--

>

>

>

> Do you know if the surgery on Discovery was for flat back?

>

>

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