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Re: pain diary link

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Hi Loriann,

Yes, the internet is very intriguing, to the point where I can get pretty

carried away by checking a site that leads me to another site, etc., etc.!

But, I think we are all a bit smarter by virtue of our internet, don't you? I

am glad that you found what you needed!

I wish you and yours a very Happy Thanksgiving!

Sincerely,

Carole M.

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Hi Carole M.,

I did a Google search for " Pain Foundation " and found there seems to

be quite a few interesting groups with those words in their name, and

a search for " Pain Diary " found more good stuff. Since I can't even

remember what it was I particularly liked about the one I mentioned,

I'm sure one of the other ones I found will do just fine. Thanks for

prompting me to search around a bit. The internet is SO fascinating,

isn't it??

Take care,

loriann

> Loriann,

>

> If you can't find that one, the Pain Foundation has some that I

think can be

> printed out.Are you aware of them?

>

> Carole M.

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Loriann,

Yes, the Internet is quite fascinating! I'm very involved as a patient advocate

for Pain Management. I got involved shortly after I visited a 4th physician

trying to find SOMEONE, ANYONE to help me learn to live with the residual pain

...the key word here being " learn to live with the pain " ...I have since my

revision in 2000. I was shocked, dare say I was APPALLED, to realize how varied

and often bizarre (not to mention degrading and Dis respectful) the methods

were to treat chronic pain!!

After being called a " hypocondriac and menopausal housewife " by one so-called

" Pain Management specialist " (and I use that term very loosely here!!) and being

so drugged and gorked that I couldn't even remember my own name by another, I

finally fell apart in my Primary Care physician's office one day. By that time I

was darn near suicidal and was beginning to believe I was crazy. Unbeknownst to

me, my P.C. doc just happens to be quite knowledgeable in the latest GOOD

methods of Pain Management ! He explained that he had been getting more and

more patients coming into his practice who were suffering from chronic pain and

decided to start taking continuing education courses to become certified as a

Pain doc. He started me on a wonderful Pain Management regime that day and has

been treating me ever since. I had to sign a " Pain Management Contract " which at

it 's basic level says that I will follow the regime to the letter, will not

seek meds from any other physician, will not attempt to self medicate, etc. He

has me on OxyContin CR (the long acting form of Oxy), Oxy IR ( for breakthrough

pain...which I rarely have because the long acting pretty much keeps the pain to

a livable level), Neurontin and Soma. Occasionally, depending on my symptoms, he

will alter the med regime but it's pretty much remained the same over the past 3

years.

I am one of the lucky ones...I found someone who is not only well educated in

Pain Managment but compassionate, em pathetic and kind as well. I am one of the

lucky ones! I found a physician who has helped me " learn to live with the

pain " ...sadly, many people are not that fortunate. According to Dr.

Stacher, former Surgeon General of the US Public Health Service, " nearly 50

million Americans, almost one quarter of our adult population, suffer from

persistent pain. It is one of the most common reasons why people go to a

doctor " . I'm quoting Dr. Satcher here from a press conference I attended with

him and several other pain specialists where a new virtual teaching program was

introduced that will be used in medical schools as part of a med students'

curriculum in Pain Management. Chronic pain is THAT prevalent in this country

that it will soon (2005) be a regular course of study for medical students!!

Here are some excellent, on-line sources for Pain Management:

American Pain Foundation: www.painfoundation.org

American Academy of Pain Medicine: www.painmed.org

American Pain Society: www.ampainsoc.org/advocacy/opiods.htm

National Foundation for the Treatment of Pain:

www.paincare.org/pain_management/perpectives/patients/reluctance:html

Pain & Policy Studies Group: www.medsch.edu/painpolicy/publicat/90jpsmf.htm

I hope this gives you a place to start. Good luck with your searchch!

All the best,

Beth

-------------- Original message --------------

>

>

> Hi Carole M.,

>

> I did a Google search for " Pain Foundation " and found there seems to

> be quite a few interesting groups with those words in their name, and

> a search for " Pain Diary " found more good stuff. Since I can't even

> remember what it was I particularly liked about the one I mentioned,

> I'm sure one of the other ones I found will do just fine. Thanks for

> prompting me to search around a bit. The internet is SO fascinating,

> isn't it??

>

> Take care,

>

> loriann

>

>

> > Loriann,

> >

> > If you can't find that one, the Pain Foundation has some that I

> think can be

> > printed out.Are you aware of them?

> >

> > Carole M.

>

>

>

>

>

>

>

> Support for scoliosis-surgery veterans with Harrington Rod Malalignment

> Syndrome. Not medical advice. Group does not control ads or endorse any

> advertised products.

>

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