Guest guest Posted July 18, 2004 Report Share Posted July 18, 2004 Hi All, I haven't posted in a while; just needed to take a break. However, I have faithfully read all of your posts so here is a review of various topics. 1. First of all, welcome to new members Barbara, Pam, Simone and anyone else I forgot. You will find lots of information and good people here. 2. , good luck on your upcoming surgery on August 5. I will be thinking of you and praying for you. Loved the pictures of your family. What a good looking group! You look so pretty and so straight! Don't you just hate it when you are in a lot of pain and people keep telling you how good you look? If they only knew. 3. Ann, sure sounds like you are recovering nicely from your surgery. How many weeks has it been? Good wishes for your continued speedy recovery. 4. Loriann, I hope I haven't confused you with someone else, but I think you mentioned having nerve pain in your leg and that is what is most bothersome to you right now. My legs are killing me. I have no pain in my back but one leg has nerve pain and the other is sore because I need that hip replacement. I will be e-mailing you off list to ask some questions on this. 5. , good for you in standing up for your rights as far as getting good medical care. I agree that if a phone call doesn't get results, write a letter but make sure you set a business like tone. I've done it and believe me, I get results. I think that about covers it for now. I'll try not to get so far behind. Best wishes to everyone who is recovering from surgery or will be having surgery soon. Barbara in Missouri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2004 Report Share Posted July 18, 2004 Hi Barbara, I don't know if you have me confused with anyone or not, so I'll just go ahead and describe my nerve pain. I haven't had revision surgery yet, but have a bunch of random pains which are sort of hard to describe, and several diagnoses, so I'm not sure what is causing them. What I refer to as nerve pains are a zinging sort of electrical kind of a pain that shoots down the back of my leg (not the side with the hip replacement) to my foot. Also a burning in the back of my thighs when I'm sitting for too long. Part of the back of my thigh and leg has little or no sensation to hot and cold, and to pinprick, and I have other numb or tingly leg and foot parts. It's mostly annoying, but sometimes the zings of pains startle me and make me gasp out loud. Please note, some of these symptoms my OS has said are NOT related to my flatback syndrome, some are perhaps related to lateral recess stenosis at L5 and my neurologist attributes the rest to syringomyelia, but he admits that's mostly because he can't attribute them to anything else. I'm actually not as scared by the leg pain, as I am the pelvic numbnesss and the ocassional big numb patches in my upper back, side of my face and ear and neck. I'm sorry your legs are killing you, and that the injection didn't last. I emailed you about my hip replacement. Good luck and take care, loriann > 4. Loriann, I hope I haven't confused you with someone else, > but I think you mentioned having nerve pain in your leg and that is > what is most bothersome to you right now. My legs are killing me. I > have no pain in my back but one leg has nerve pain and the other is > sore because I need that hip replacement. I will be e-mailing you > off list to ask some questions on this. > > Barbara in Missouri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2004 Report Share Posted July 19, 2004 Hi, Barbara in Missouri, Thank you for the welcome note. I was wondering how I might search the messages for MN people, patients who have had surgery in MN and which surgeon did the work. Any tips!?! Barbara in MN > Hi All, > > I haven't posted in a while; just needed to take a break. > However, I have faithfully read all of your posts so here is a review > of various topics. > > 1. First of all, welcome to new members Barbara, Pam, Simone > and anyone else I forgot. You will find lots of information and good > people here. > > 2. , good luck on your upcoming surgery on August 5. I > will be thinking of you and praying for you. Loved the pictures of > your family. What a good looking group! You look so pretty and so > straight! Don't you just hate it when you are in a lot of pain and > people keep telling you how good you look? If they only knew. > > 3. Ann, sure sounds like you are recovering nicely from your > surgery. How many weeks has it been? Good wishes for your continued > speedy recovery. > > 4. Loriann, I hope I haven't confused you with someone else, > but I think you mentioned having nerve pain in your leg and that is > what is most bothersome to you right now. My legs are killing me. I > have no pain in my back but one leg has nerve pain and the other is > sore because I need that hip replacement. I will be e-mailing you > off list to ask some questions on this. > > 5. , good for you in standing up for your rights as far > as getting good medical care. I agree that if a phone call doesn't > get results, write a letter but make sure you set a business like > tone. I've done it and believe me, I get results. > > I think that about covers it for now. I'll try not to get so > far behind. Best wishes to everyone who is recovering from surgery > or will be having surgery soon. > > Barbara in Missouri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2004 Report Share Posted July 24, 2004 Thanks Barbara... xoxo's In a message dated 7/18/2004 10:11:34 AM Eastern Daylight Time, " midwestscoli " <BAStacey@...> writes: >Hi All, > > I haven't posted in a while; just needed to take a break. >However, I have faithfully read all of your posts so here is a review >of various topics. > > 1. First of all, welcome to new members Barbara, Pam, Simone >and anyone else I forgot. You will find lots of information and good >people here. > > 2. , good luck on your upcoming surgery on August 5. I >will be thinking of you and praying for you. Loved the pictures of >your family. What a good looking group! You look so pretty and so >straight! Don't you just hate it when you are in a lot of pain and >people keep telling you how good you look? If they only knew. > > 3. Ann, sure sounds like you are recovering nicely from your >surgery. How many weeks has it been? Good wishes for your continued >speedy recovery. > > 4. Loriann, I hope I haven't confused you with someone else, >but I think you mentioned having nerve pain in your leg and that is >what is most bothersome to you right now. My legs are killing me. I >have no pain in my back but one leg has nerve pain and the other is >sore because I need that hip replacement. I will be e-mailing you >off list to ask some questions on this. > > 5. , good for you in standing up for your rights as far >as getting good medical care. I agree that if a phone call doesn't >get results, write a letter but make sure you set a business like >tone. I've done it and believe me, I get results. > > I think that about covers it for now. I'll try not to get so >far behind. Best wishes to everyone who is recovering from surgery >or will be having surgery soon. > > Barbara in Missouri > > > > > > >Support for scoliosis-surgery veterans with Harrington Rod Malalignment Syndrome. Not medical advice. Group does not control ads or endorse any advertised products. > Quote Link to comment Share on other sites More sharing options...
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