Guest guest Posted March 22, 2004 Report Share Posted March 22, 2004 Ann, Can definately relate to your comment about describing pain to the doctor, it's not just you! This message board has gone a long way towards helping me with that. I don't question and second guess myself nearly as much after having read about so many others with such similar symptoms and complaints. Unless of course, you guys are all crazy, too! You also mentioned " Restless Leg Syndrome " in one of your posts. I've had that for years. It flares up mostly during my menstral cycle and then started happening when I'd get overtired. I wouldn't call it painful, exactly, it's hard to explain how it feels, but " restless " in a deep beneath the surface, creepy way is close. It feels almost like, if you could only stetch your legs enough it would go away. I usually feel the most symptomatic at night in bed, though sometimes during the day as well if I'm really overtired. When I had a surgery unrelated to HARMS this past autumn, I noticed that when I started easing up on my pain meds my legs would literally jump and jerk so much it would wake me from sleep. And of course, the less sleep, the more tired, the more it would act up. I have a prescription for Xanax when it happens, but my sister-in-law also has it and her doc recommends getting up and walking it off. I'll have to ask her how that's working out. She's mentioned on a few occasions that she never sleeps well at night. Bye for now, Dianne S. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2004 Report Share Posted March 22, 2004 I've had what I think is restless leg syndrome. I also have pretty much constant twitching in the leg muscles, which I attribute to chronic tightness. But the restless leg thing is more likely to hit when I haven't been swimming, and it's at night in bed. Not painful, really, just a sensation that seems to start in my lumbar spine (sounds crazy, I know), which insists that if I don't kick my legs around I'll climb out of my skin. Mine hasn't been associated with painful spasms, but sometimes I get those in my chest or abs if I've over-done. Then there's the calf-hamstring-buttock spasm while walking, that I refer to as " seizing up " . I just don't try to do much walking, and the problem is under control by medication and limiting walking. Re: Scoliosis/HARMS Leg Pain Ann, Can definately relate to your comment about describing pain to the doctor, it's not just you! This message board has gone a long way towards helping me with that. I don't question and second guess myself nearly as much after having read about so many others with such similar symptoms and complaints. Unless of course, you guys are all crazy, too! You also mentioned " Restless Leg Syndrome " in one of your posts. I've had that for years. It flares up mostly during my menstral cycle and then started happening when I'd get overtired. I wouldn't call it painful, exactly, it's hard to explain how it feels, but " restless " in a deep beneath the surface, creepy way is close. It feels almost like, if you could only stetch your legs enough it would go away. I usually feel the most symptomatic at night in bed, though sometimes during the day as well if I'm really overtired. When I had a surgery unrelated to HARMS this past autumn, I noticed that when I started easing up on my pain meds my legs would literally jump and jerk so much it would wake me from sleep. And of course, the less sleep, the more tired, the more it would act up. I have a prescription for Xanax when it happens, but my sister-in-law also has it and her doc recommends getting up and walking it off. I'll have to ask her how that's working out. She's mentioned on a few occasions that she never sleeps well at night. Bye for now, Dianne S. Support for scoliosis-surgery veterans with Harrington Rod Malalignment Syndrome. Not medical advice. Group does not control ads or endorse any advertised products. ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2004 Report Share Posted March 23, 2004 Ann, No way do you sound crazy or would you sound crazy. Rand is good about helping describe any kind of pain. I've been getting that leg thingie too. It's usually in bed at night and I thought it was muscle jitters. Then I came across something describing Restless Leg Syndrome. I thought, no way I could have this too! But I think I do. We all have difficulty describing our pain. It's a tough thing to do because you feel like nobody understands or you don't sound believable. But it's all real! When I joined this group I was so exctied to see other people had pain/symptoms just like I do. I wasn't going crazy. You're in good hands with Rand. xoxo's Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2004 Report Share Posted March 25, 2004 Hi Ann... I scheduled my scoliosis surgery intentionally so that I wouldn't have my period while I was hospitalized. Unfortunately, the surgery brought on an extra period. I've since found out that that's a common experience. Regards, Quote Link to comment Share on other sites More sharing options...
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