Re: Alternative Medicine for Nasal Polyps???

[Guest guest]

I think someone in the last few days just wrote about radioablation,

you might want to check the recent posts. I can't find a thing about

it on the internet using radioablation and nasal polyps, nose, etc.,

as search terms. So I don't think there's any studies on it, that's

for sure.

I don't know what you consider alternative treatments. I have found

antifungal treatments to be somewhat effective, including ingested

oregano juice (very diluted, and make sure it's oregano juice, not

oregano oil).

HTH

Lori

> Does anyone have any personal experience with any alternative

> treatment for nasal polyps?

>

> Is anyone familiar with radioablation?

>

> DDW

[Guest guest]

I was on two courses of oral antifunal (Lamisil 500mg per day) last

summer following my third sinus surgery at Univ of Pennsylvania.

The first course of eight weeks worked great, I could smell obvious

scents and could taste. I was able to keep my oral steroid daily

dose at 5-10mg. But after two months it was suggested I take a " drug

holiday " to see what happened, and within 10 days the polyps

returned. We attempted another run of eight weeks after that, but

the second course did not work. I was told to fly west and give

Scripps a go which I did in April. So far, so good for me on the

aspirin. I have been feeling much better and my ENT office visits

show a significant decrease in polyps and edematous tissue in my

sinuses.

*One thing, our insurance company would not cover the high dose oral

antifungal for a patient who did not have any signs of fungal

sinsusitis (my pathology showed no fungus.) They would not cover it

for an " off label " use but I filed an appeal through the proper

channels and they gave me an answer within six hours that they would

cover the two trials of Lamisil.

Barb V (NJ)

> Dear Will

>

> Interesting.. do you remember if your wife was just on Sopranox

when the polyps shrank and did she get her sense of smell back ?How

long did she take it for?

>

>

>

>

[Guest guest]

Also, the reason my surgeon gave me Lamisil was because Sporonox was

not on my insurance company's formulary. Since the two drugs are in

the same therapeutic class he was fine with using the Lamisil.

Barb V

[Guest guest]

,

Somehow I missed your message until I noticed that Barb had replied to your message. Sporanox was the only medication she was started on (at the time she was on just your standard asthma medications). Yes she did regain her smell. Its the only time since it started 8 years ago that she has ever been able to smell.

Barb,

We had problems with the insurance company as well but they eventually gave it to us afer enough protesting and pointing out the charcot layden crystals in the sinus polyp tissue samples (even though we were never able to show an actual fungal infectgions). Its true this is a bit of a red herring but it seemed to do the trick for us.

-Will