Re: Sinus Buster Spray/Lori

[Guest guest]

My new doctor would like me to try vioxx and or celebrex for headaches, he thinks they may not be entirely sinus related, any way has anyone had problems with these? Is anyone taking them with success? How well do they work? what kind of headaches are they for?? Is One better than the other? Please let me know your experiences, this group is a wealth of information. I am continuing with the pulmicort in saline nasal irrigation, it seems to work very well!

Re: Sinus Buster Spray/Lori

Lori,Thank you for your observations. I know how deathly allergic to aspirin you are from reading your posts. I was hoping that you and others would have some input for me. I truly appreciate thislist and all the help everyone gives so freely. In regards to Samterites having allergies to salicylates. I have run across so many articles where some think so and some don't. Most think that it is an intolerance and not an IgE allergy but the end results are as if there was an actual IgE allergy. There are just not enough studies yet. I have read that Samterites shouldn't react to sodium salicylates which is what most vegetables and fruits have and then there are a couple of other classes of salicylates that we should tolerate but I don't rememher which ones off hand. From what my doctor told me when I was first diagnosed, he believed that I had both mechanisms at work. The IgE reaction to aspirin and the intolerance (arachidonic, leukotriene cascade) but he wasn't certain. Back then, they just really didn't know. I really need to go to Nat. Jewish or out to Scripps or find a doctor that does know more about this disease than the one(s) I am going to now and have gone to in the past as they don't know much and I have just been surviving for the past years. I definitely know that I have this disease but I also think something else is going on along with it because of the severity. And there is a very real possibility that I am also reacting to some of the many other natural chemicals in the foods.Samter refuted the low salicylate diet before he died as he didn't see many results for those who followed it but he was using a list of salicylates in foods from the early 1900's. I wonder if he would have refuted it if they had followed the diet with the more recent lists but even the lists out now contradict each other. And then with different varieties within the same food families, there are varying amounts of the salicylates. From what I remember on reading the postings in this group, seems to me that those who haven't been desensitized seem more inclined to be following the low sal diets but those who have been desensed don't seem to have to worry with that and can eat a more nutritious diet. I could be off the wall here on that observation. The acetylated observation is something I will look into a bit more and see if I can find more info on that. I do cross react with tylenol and the NSAIDS. I would love to be able to take Celebrex and Vioxx for the headaches and when a person needs a pain medication. Right now I am on prednisone, proventil inhaler and proventil inhalaion solution for my breathing machine, vistaril, advair 500/50 and flonase. I don't use many of the asthma medications as I have had reactions to so many of them, they just discontinued them. We tried accolate and singulair and I had a very severe reaction to both of them. With the accolate, I had immediate itching in the ears, throat, hives and wheezing. With the singulair I didn't have the immediate reaction but immediately started having headaches, muscle aches, fever and the worst was the severe sinus inflammation. I thought my sinuses were bad before starting singulair but after starting it my head felt so swollen that it felt like it was going to bust open and the pain, it was horrible. My sinuses actually started bleeding. Then about the 4th day of taking it, I broke out with hives, wheezing, itchy ears and my throat swelled and I ended up in the emergency room so they took me off of it immediately and all those symptoms went away. I never did try the zyflo. I am also using the different positions for the nasal spray and I always irrigate before using it. I am definitely thinking of talking to the people at Scripps. I know that aspirin isn't the best medication in the world to take long term but it is probably better than the prednisone. They know much more than most about this. Then I would like to go to Nat. Jewish as they run a barrage of tests and see if something else is complicating the disease. That is a very interesting article on the capsicum. I do know that capsicum works in the stomach by assisting digestion. Not sure how that would tie in with decreasing the amounts of the bioavailability of salicylates and oral aspirin. I would like to read more on this. I do take a good supplement because of the lack of variety by following the low sal diet but I am very careful as to the ones I use. You have to have good nutrition to heal but if I don't follow the diet, even with taking prednisone, the polyps and allergic reactions just don't quit. Hopefully, I can find an answer to where I can begin eating more of a variety soon but the supplement I take is really good. It supplies over 70 nutrients and I don't react to it, thank goodness!!! I am beginning to see a difference in my energy levels with it. Have you been able to get that EFA formula again? I know that you felt like it was helping you. You know, I never had allergies as a child. My sister was the one with the allergies. Then when I was 15, had 2 bouts of strep, 2 bouts of bronchitis and the flu. Was given hormones because my periods stopped. Within a few days of starting the hormones, I started the rhinitis and had copious amounts of mucous from the sinuses and chest. I filled a grocery bag with tissues each day from the drainage. Then had my first asthma attack and they never stopped. Started allergy shots as I tested very high to most things. Next stop was the hospital with double walking pneumonia. Then I had my first anaphylactic shock to an aspirin I took for a headache but they still didn't know what I had. The polyps came up within a few weeks of the anaphylactic shock reaction. All were within that one year and the sequence was bacterial/viral infections, rhinitis, asthma, pneumonia, anaphylactic shock to aspirin, then polyps. Finally was diagnosed with Triad asthma after going into my second anaphylactic shock reaction when I was given a Darvon with aspirin by accident and by that time I had all the symptoms of the triad. Sorry for this being so long. Thanks again for your thoughts. You've been very helpful as always. ))-NM

[Guest guest]

Hello,

I have been able to use vioxx w/o any problems -- I asked for a

scrip for something when I was first given a probable diagnosis of

aspirin sensitivity. But, I may not have as severe a sensitivity as

others here. I also seem to be able to use tylenol.

[Guest guest]

...

I recently asked my doctor for Celebrex for inflammation (backaches &

headaches) since I cannot take Aspirin or any NSAIDS (including

Ibuprofen). I can take Tylenol, but of course it does not have the

anti-inflammatory effect. I am tolerating the Celebrex well - no

reactions of any kind. However, I can't say that I have releived

headache pain. I have had headaches (tension and migraine) since I

was a teenager (I'm now 49). I often was convinced that the

headaches were sinus-related, but many different doctors told me

sinus headaches would not be so severe... usually a " dull ache " when

it's sinuses. I went to a neurologist and we tried many meds for

headache prevention that didn't pan out, and finally I found

something on the web that made sense. Since I woke up with headaches

a lot of the time, and noticed I usually didn't have bad headaches

when I had a head cold and had to breathe through my mouth ... could

it be I was clenching my teeth at night? I went to this dentist and

got a mouthguard that goes on your front teeth and keeps you from

clenching. (The standard mouth guards just provide something to bite

down into!) It was like a miracle - I have gone from using several

Imitrex shots per week for migraine, to less than one per month. But

I also have to say that I do believe my sinuses may be " triggering "

the migraines. I often feel like I'm holding my eyes and cheeks in

tension - maybe due to a dull ache? I'm not really sure, but the

mouth guard, coupled with saline sprays, irrigation when necessary,

and taking Humibid fairly regularly, seems to keep me going. Someone

polled the group within the last couple of weeks about bruxism. I

wonder if anyone believes that our sinus probs somehow cause facial

tension and bruxism. I didn't see any commentary on it - perhaps I

missed it.

in Md.

> My new doctor would like me to try vioxx and or celebrex for

headaches, he thinks they may not be entirely sinus related, any way

has anyone had problems with these? Is anyone taking them with

success? How well do they work? what kind of headaches are they for??

Is One better than the other? Please let me know your experiences,

this group is a wealth of information. I am continuing with the

pulmicort in saline nasal irrigation, it seems to work very well!

>

>

[Guest guest]

Hi ,

It may have nothing to do with the Samters, but both Celebrex and

Vioxx caused swelling in my legs and therefore I can't take them.

That might have been a reaction unrelated to my Samters, or perhaps

not. Who knows with this screwy disorder?!

> My new doctor would like me to try vioxx and or celebrex for

headaches, he thinks they may not be entirely sinus related, any way

has anyone had problems with these? Is anyone taking them with

success? How well do they work? what kind of headaches are they for??

Is One better than the other? Please let me know your experiences,

this group is a wealth of information. I am continuing with the

pulmicort in saline nasal irrigation, it seems to work very well!

>

> Re: Sinus Buster Spray/Lori

>

>

> Lori,

>

> Thank you for your observations. I know how deathly allergic to

> aspirin you are from reading your posts. I was hoping that you

and

> others would have some input for me. I truly appreciate thislist

and

> all the help everyone gives so freely.

>

> In regards to Samterites having allergies to salicylates. I have

run

> across so many articles where some think so and some don't. Most

> think that it is an intolerance and not an IgE allergy but the

end

> results are as if there was an actual IgE allergy. There are just

not

> enough studies yet. I have read that Samterites shouldn't react

to

> sodium salicylates which is what most vegetables and fruits have

and

> then there are a couple of other classes of salicylates that we

> should tolerate but I don't rememher which ones off hand. From

what

> my doctor told me when I was first diagnosed, he believed that I

had

> both mechanisms at work. The IgE reaction to aspirin and the

> intolerance (arachidonic, leukotriene cascade) but he wasn't

certain.

> Back then, they just really didn't know. I really need to go to

Nat.

> Jewish or out to Scripps or find a doctor that does know more

about

> this disease than the one(s) I am going to now and have gone to

in

> the past as they don't know much and I have just been surviving

for

> the past years. I definitely know that I have this disease but I

also

> think something else is going on along with it because of the

> severity. And there is a very real possibility that I am also

> reacting to some of the many other natural chemicals in the foods.

>

> Samter refuted the low salicylate diet before he died as he

didn't

> see many results for those who followed it but he was using a

list of

> salicylates in foods from the early 1900's. I wonder if he would

have

> refuted it if they had followed the diet with the more recent

lists

> but even the lists out now contradict each other. And then with

> different varieties within the same food families, there are

varying

> amounts of the salicylates. From what I remember on reading the

> postings in this group, seems to me that those who haven't been

> desensitized seem more inclined to be following the low sal diets

but

> those who have been desensed don't seem to have to worry with

that

> and can eat a more nutritious diet. I could be off the wall here

on

> that observation.

>

> The acetylated observation is something I will look into a bit

more

> and see if I can find more info on that. I do cross react with

> tylenol and the NSAIDS. I would love to be able to take Celebrex

and

> Vioxx for the headaches and when a person needs a pain

medication.

>

> Right now I am on prednisone, proventil inhaler and proventil

> inhalaion solution for my breathing machine, vistaril, advair

500/50

> and flonase. I don't use many of the asthma medications as I have

had

> reactions to so many of them, they just discontinued them. We

tried

> accolate and singulair and I had a very severe reaction to both

of

> them. With the accolate, I had immediate itching in the ears,

throat,

> hives and wheezing. With the singulair I didn't have the

immediate

> reaction but immediately started having headaches, muscle aches,

> fever and the worst was the severe sinus inflammation. I thought

my

> sinuses were bad before starting singulair but after starting it

my

> head felt so swollen that it felt like it was going to bust open

and

> the pain, it was horrible. My sinuses actually started bleeding.

Then

> about the 4th day of taking it, I broke out with hives, wheezing,

> itchy ears and my throat swelled and I ended up in the emergency

room

> so they took me off of it immediately and all those symptoms went

> away. I never did try the zyflo.

>

> I am also using the different positions for the nasal spray and I

> always irrigate before using it.

>

> I am definitely thinking of talking to the people at Scripps. I

know

> that aspirin isn't the best medication in the world to take long

term

> but it is probably better than the prednisone. They know much

more

> than most about this. Then I would like to go to Nat. Jewish as

they

> run a barrage of tests and see if something else is complicating

the

> disease.

>

> That is a very interesting article on the capsicum. I do know

that

> capsicum works in the stomach by assisting digestion. Not sure

how

> that would tie in with decreasing the amounts of the

bioavailability

> of salicylates and oral aspirin. I would like to read more on

this.

>

> I do take a good supplement because of the lack of variety by

> following the low sal diet but I am very careful as to the ones I

> use. You have to have good nutrition to heal but if I don't

follow

> the diet, even with taking prednisone, the polyps and allergic

> reactions just don't quit. Hopefully, I can find an answer to

where I

> can begin eating more of a variety soon but the supplement I take

is

> really good. It supplies over 70 nutrients and I don't react to

it,

> thank goodness!!! I am beginning to see a difference in my energy

> levels with it. Have you been able to get that EFA formula again?

I

> know that you felt like it was helping you.

>

> You know, I never had allergies as a child. My sister was the one

> with the allergies. Then when I was 15, had 2 bouts of strep, 2

bouts

> of bronchitis and the flu. Was given hormones because my periods

> stopped. Within a few days of starting the hormones, I started

the

> rhinitis and had copious amounts of mucous from the sinuses and

> chest. I filled a grocery bag with tissues each day from the

> drainage. Then had my first asthma attack and they never stopped.

> Started allergy shots as I tested very high to most things. Next

stop

> was the hospital with double walking pneumonia. Then I had my

first

> anaphylactic shock to an aspirin I took for a headache but they

still

> didn't know what I had. The polyps came up within a few weeks of

the

> anaphylactic shock reaction. All were within that one year and

the

> sequence was bacterial/viral infections, rhinitis, asthma,

pneumonia,

> anaphylactic shock to aspirin, then polyps. Finally was diagnosed

> with Triad asthma after going into my second anaphylactic shock

> reaction when I was given a Darvon with aspirin by accident and

by

> that time I had all the symptoms of the triad.

>

> Sorry for this being so long.

>

> Thanks again for your thoughts. You've been very helpful as

> always. ))

>

> -NM

>

>

>

>

>

[Guest guest]

My allergist has prescribed Feldene for me when I need an NSAID-like

drug. I don't react to it, though I can take Tylenol also. I think

my case is a pretty mild one though.

> Hello,

>

> I have been able to use vioxx w/o any problems -- I asked for a

> scrip for something when I was first given a probable diagnosis of

> aspirin sensitivity. But, I may not have as severe a sensitivity

as

> others here. I also seem to be able to use tylenol.

>

>